10.7910/DVN/XE1SKQThe ALS AssociationHarvard Dataverse2025Medicine, Health and Life SciencesALSSurveyALS FocusClinical trialParticipationTreatmentNeedPreferenceSymptomsDrugBenefitRiskDemographicsDisease historyHealth statusSherman, AlexanderAlexanderShermanHarvard University2025-03-242025-05-23290733243414999101054555283543665991250980722703778310application/vnd.openxmlformats-officedocument.spreadsheetml.sheetapplication/pdftext/tab-separated-valuesapplication/pdfapplication/vnd.openxmlformats-officedocument.spreadsheetml.sheetapplication/pdftext/tab-separated-valuesapplication/pdfapplication/pdf1.0The NeuroVERSE record contains the following files: <OL> <LI>ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions.</LI> <LI>ALSFocus_CTTN_Survey_Public – ALS Focus Clinical Trials and Treatment Needs Survey written questions.</LI> <LI>ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions.</LI> <LI>ALSFocus_Demographics_Methodologies_Public – ALS Focus Demographics Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_CTTN_Methodologies_Public – ALS Focus Clinical Trials and Treatment Needs Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_Demograhics_Dictionary – ALS Focus Demographics Survey data dictionary. <LI>ALSFocus_CTTN_Dictionary – ALS Focus Clinical Trials and Treatment Needs (and Health Status Survey) data dictionary.</LI> <LI>ALSFocus_Demographics_Public_Stata – ALS Focus Demographics Survey data file in Stata (.dta) format.</LI> <LI>ALSFocus_CTTN_Public_Stata – ALS Focus Clinical Trials and Treatment Needs Survey data in Stata (.dta) format.</LI> </OL>