ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey (doi:10.7910/DVN/XE1SKQ)

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Part 1: Document Description
Part 2: Study Description
Part 3: Data Files Description
Part 4: Variable Description
Part 5: Other Study-Related Materials
Entire Codebook

Document Description

Citation

Title:

ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey

Identification Number:

doi:10.7910/DVN/XE1SKQ

Distributor:

Harvard Dataverse

Date of Distribution:

2025-05-23

Version:

Bibliographic Citation:

The ALS Association, 2025, "ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey", https://doi.org/10.7910/DVN/XE1SKQ, Harvard Dataverse, V1, UNF:6:hoWVymNP4mW15I0+FXJazw== [fileUNF]

Study Description

Citation

Title:

ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey

Identification Number:

doi:10.7910/DVN/XE1SKQ

Authoring Entity:

The ALS Association

Distributor:

Harvard Dataverse

Access Authority:

Sherman, Alexander

Depositor:

Katsovskiy, Igor

Date of Deposit:

2025-03-24

Holdings Information:

https://doi.org/10.7910/DVN/XE1SKQ

Study Scope

Keywords:

Medicine, Health and Life Sciences, ALS, Survey, ALS Focus, Clinical trial, Participation, Treatment, Need, Preference, Symptoms, Drug, Benefit, Risk, Demographics, Disease history, Health status

Abstract:

The NeuroVERSE record contains the following files: <OL> <LI>ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions.</LI> <LI>ALSFocus_CTTN_Survey_Public – ALS Focus Clinical Trials and Treatment Needs Survey written questions.</LI> <LI>ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions.</LI> <LI>ALSFocus_Demographics_Methodologies_Public – ALS Focus Demographics Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_CTTN_Methodologies_Public – ALS Focus Clinical Trials and Treatment Needs Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_Demograhics_Dictionary – ALS Focus Demographics Survey data dictionary. <LI>ALSFocus_CTTN_Dictionary – ALS Focus Clinical Trials and Treatment Needs (and Health Status Survey) data dictionary.</LI> <LI>ALSFocus_Demographics_Public_Stata – ALS Focus Demographics Survey data file in Stata (.dta) format.</LI> <LI>ALSFocus_CTTN_Public_Stata – ALS Focus Clinical Trials and Treatment Needs Survey data in Stata (.dta) format.</LI> </OL>

Methodology and Processing

Sources Statement

Data Access

Restrictions:

The Amyotrophic Lateral Sclerosis Association (“The Association”) grants a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (“Secondary Analyses”). Data shall not be used for any purpose other than Secondary Analyses. Data Requestor shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual.

Access Authority:

Sarah Parvanta ALSFocus@als.org 202-464-8847

Citation Requirement:

The Association must be acknowledged as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data, and a link to the Direct Object Identifier (DOI) must be included in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse.

Disclaimer:

The Association reserves the right to withhold, remove, and/or discard Data from the Dataverse without notice to You. Except to the extent prohibited by law, You assume all liability for damages which may arise from Your use, storage, disclosure, or disposal of Data. The Association will not be liable to You for any loss, claim, or demand You make, or made against You by any other party, due to or arising from the use of Data by You, except to the extent permitted by law when caused by the gross negligence or willful misconduct of The Association.

Notes:

DATA SHARING TERMS These Data Sharing Terms ("Terms") are effective as of the date of Your acceptance ("Effective Date") and are between you ("You" or "Your") and The Amyotrophic Lateral Sclerosis Association ("The Association"), which specifically states the license terms, liability, limitations and warranty relating to Your use of the ALS Focus Data and corresponding Data Dictionary ("Data"). I. Limited Rights of Use and Restrictions a. By accepting these Terms, The Association grants You a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes ("Secondary Analyses"). You agree that all rights, titles, and interests relating to Data belong to The Association, or to the owner of Data you use. Furthermore, you agree that you do not assert any title or interest in Data other than the rights and license granted in these Terms. b. You agree that you do not have any rights to copyright, rights to trademark ownership or patents, or any other rights or licenses that belong either to The Association, or to the owner of Data, other than those given in these Terms. c. Data shall not be used for any purpose other than Secondary Analyses. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual. d. Except as set forth in Section III.a., You agree that You will be the only one to retain control over Data and shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. e. You agree to use Data in compliance with all applicable laws, rules, and regulations, as well as all professional standards applicable to such research, including the completion of any Institutional Review Board (IRB) or ethics review or approval that may be required. It is Your responsibility to determine whether IRB or ethics review or approval is needed and what laws, rules, regulations, and professional standards apply to You. f. You shall promptly report to The Association any use or disclosure of Data not provided for by these Terms of which You become aware. g. You are not authorized in any manner to use The Association's name, logos, web graphics, or trademarks without express written permission from The Association except as permitted under Section III below. II. Termination of these Terms a. You agree that The Association may terminate these Terms at any time without notice if Data were used by you in violation of any law or of any terms or limitations imposed by these Terms. b. If these Terms are terminated, the license granted under these Terms will be revoked, and you must either destroy Data or return to The Association. III. Publication and Citation Requirements You are encouraged to publish and disseminate discoveries derived from Data. You must acknowledge The Association as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data and include a link to the Direct Object Identifier (DOI) in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse. IV. Acceptance of Risk YOU AGREE THAT USING DATA IS ENTIRELY AT YOUR OWN RISK. DATA ARE PROVIDED "AS IS" WITHOUT ANY WARRANTY OR FITNESS FOR ANY PURPOSE WHATSOEVER, EITHER EXPRESSLY OR IMPLIED OR THAT THE USE OF DATA WILL NOT INFRINGE ANY PATENT, COPYRIGHT, TRADEMARK, OR OTHER PROPRIETARY RIGHTS. THE ASSOCIATION DISCLAIMS ALL AND ANY RESPONSIBILITY FOR WARRANTY OR FITNESS FOR A PARTICULAR PURPOSE. YOU AGREE AND UNDERSTAND THAT DATA MAY CONTAIN ERRORS, OMISSIONS AND/OR INACCURACIES. NOTWITHSTANDING, THE ASSOCIATION, TO THE BEST OF ITS KNOWLEDGE AND BELIEF, HAS THE RIGHT AND AUTHORITY TO PROVIDE DATA TO YOU FOR SECONDARY ANALYSES. V. Indemnity You agree to indemnify, defend and hold blameless The Association, its officers, directors, employees, agents, successors, assigns, contractors, and grantees (the "Association Indemnitees") against any and all damages or loss incurred by you, including without limitation any legal fees, as a result of or in connection with Your use of Data.

Other Study Description Materials

File Description--f11558027

File: ALSFocus_CTTN_Public_Stata.tab

Number of cases: 1094
No. of variables per record: 120
Type of File: text/tab-separated-values

Notes:

UNF:6:pq4L2MlOvk49qaayoILSfA==

ALS Focus Clinical Trials and Treatment Needs Survey data in Stata (.dta) format.

File Description--f11558020

File: ALSFocus_Demographics_Public_Stata.tab

Number of cases: 3602
No. of variables per record: 114
Type of File: text/tab-separated-values

Notes:

UNF:6:chcTTpAZu00rcWGE8R5bFQ==

ALS Focus Demographics Survey data file in Stata (.dta) format.

Variable Description

List of Variables:

randomid
neurostamp
group
dyad_id
cttn_heard
cttn_opportunity
cttn_imagine_p_oe
cttn_imagine_c_oe
cttn_interest_drug
cttn_interest_placebo
cttn_interest_negative
cttn_interest_risks
cttn_interest_phys
cttn_interest_pain
cttn_interest_otherdrug
cttn_interest_continue
cttn_interest_slow
cttn_interest_longer
cttn_interest_improve
cttn_interest_future
cttn_interest_understand
cttn_interest_topmed
cttn_interest_share
cttn_interest_rep
cttn_interest_docencourage
cttn_interest_otherpeople
cttn_interest_paid
cttn_interest_parttravel
cttn_interest_caretravel
cttn_interest_drive
cttn_interest_fly
cttn_interest_home
cttn_participate
cttn_eligible
cttn_bodyv1_breath
cttn_bodyv1_cog
cttn_bodyv1_dig
cttn_bodyv1_hand
cttn_bodyv1_low
cttn_bodyv1_saliv
cttn_bodyv1_arm
cttn_bodyv1_speak
cttn_bodyv1_swallow
cttn_bodyv1_priority
cttn_bodyv2_priority_1
cttn_bodyv2_priority_2
cttn_bodyv2_priority_3
cttn_bodyv2_priority_4
cttn_bodyv2_priority_5
cttn_bodyv2_priority_6
cttn_bodyv2_priority_7
cttn_bodyv2_priority_8
cttn_bodyv2_priority_9
cttn_othersym_oe
cttn_daily_1
cttn_daily_2
cttn_daily_3
cttn_daily_4
cttn_daily_5
cttn_daily_6
cttn_risks_oe
cttn_fda_responder
cttn_fda_1
cttn_fda_2
cttn_fda_3
cttn_fda_4
cttn_fda_5
cttn_fda_8
cttn_fda_6
cttn_fda_7
hs_alsfrs_responder
hs_alsfrs_dk
hs_alsfrs_unknown
hs_alsfrs_score
hs_alsfrs_year
hs_fvc_responder
hs_fvc_sitting
hs_fvc_lyingfaceup
hs_fvc_dk
hs_fvc_unknown
hs_fvc_percent
hs_fvc_year
hs_svc_responder
hs_svc_sitting
hs_svc_lyingfaceup
hs_svc_dk
hs_svc_unknown
hs_svc_percent
hs_svc_year
hs_speaking
hs_resp_responder
hs_resp_none
hs_resp_sleeping
hs_resp_awake
hs_resp_dk
hs_resp_pnta
hs_resp_numhours
hs_resp_invasive
hs_resp_device
hs_resp_device_oe
hs_mob_responder
hs_mob_none
hs_mob_cane
hs_mob_walker
hs_mob_manualwc
hs_mob_motorizedwc
hs_mob_other
hs_mob_pnta
hs_mob_other_oe
hs_wheelchair_responder
hs_wheelchair_joystick
hs_wheelchair_headcontrols
hs_wheelchair_sipnpuff
hs_wheelchair_eye
hs_wheelchair_caregiver
hs_wheelchair_other
hs_wheelchair_pnta
hs_wheelchair_other_oe
hs_feedingtube
hs_feedingtube_oe
randomid
neurostamp
group
dyad_id
screener_consent
screener_responder
screener_18plus
screener_us
screener_pals
screener_caregiver
screener_pastcaregiver
screener_proxypals
screener_caredforalso
screener_caregiveralso
screener_caregiverproxypals
demo_age
demo_gender
demo_gender_oe
demo_sex
demo_ethnicity
demo_responder_race
demo_amerin_alaskan
demo_asian
demo_black
demo_hawaii_pacific
demo_white
demo_race_pnta
demo_veteran
demo_education
demo_language
demo_language_oe
demo_urbanrural
demo_state
demo_marital
demo_hear_responder
demo_hear_family
demo_hear_group
demo_hear_provider
demo_hear_web
demo_hear_social
demo_hear_email
demo_hear_event
demo_hear_org
demo_hear_other
demo_hear_dk
demo_hear_oe
med_alstype
med_genetest
med_geneinterest
med_onset_location
med_responder_onset
med_onset_datetime
med_onset_pnta
med_onset_dk
med_responder_diag
med_diag_datetime
med_diag_pnta
med_diag_dk
med_timetodiag
med_timetodiag_ord
inc_prediag
inc_current
emp_prediag
emp_prediag_oe
emp_prediag_unable_oe
emp_current
emp_current_oe
emp_current_unable_oe
lsit_responder
lsit_nocare
lsit_carevisit
lsit_sharehome
lsit_facility
lsit_living_other
lsit_living_pnta
lsit_living_oe
med_physician_type
med_physician_type_oe
med_mtd_clinic
med_commute_clinic
ins_responder
ins_medicare
ins_va
ins_tricare
ins_medicaid
ins_employer
ins_private
ins_tribal
ins_other
ins_oe
ins_none
ins_dk
ins_pnta
insmc_responder
insmc_feeforservice
insmc_partd
insmc_supplement
insmc_advantage
insmc_dk
insmc_pnta
ccg_professional
ccg_empcurrent
ccg_empcurrent_oe
ccg_empcurrent_unable_oe
ccg_living
ccg_living_oe
ccg_inc_prediag
ccg_inc_current
pcg_lastcare
pcg_lastcare_dk
pcg_lastcare_pnta
pcg_professional
pcg_empcurrent
pcg_empcurrent_oe

Variables

randomid

f11558027 Location:

Variable Format: character

Notes: UNF:6:ny0GjKhNL1Kqp4O77Ld4lQ==

neurostamp

f11558027 Location:

Variable Format: character

Notes: UNF:6:H19tdbnpAHirveHHsvfWVQ==

group

f11558027 Location:

Variable Format: character

Notes: UNF:6:WEI54PWCMJ2ka4VATwIQtg==

dyad_id

f11558027 Location:

Variable Format: character

Notes: UNF:6:/+WaMLHgOBLaRxQTq3T9ew==

cttn_heard

f11558027 Location:

Value	Label	Frequency
3.	Do not know	16
1.	Yes	1012
2.	No	66

Summary Statistics: StDev 0.3330268275522118; Mean 1.0895795246800737; Min. 1.0; Valid 1094.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:x7CaZEnN8FBVoO2d7ghdXw==

cttn_opportunity

f11558027 Location:

Value	Label	Frequency
1.	Not at all interested	114
4.	Very interested	469
5.	Prefer not to answer	28
2.	Slightly interested	103
3.	Moderately interested	233

Summary Statistics: Max. 5.0; Valid 947.0; StDev 1.0784540143426653; Mean 3.2048574445617737; Min. 1.0

Variable Format: numeric

Notes: UNF:6:0Orj3nxY+TwQQyETxULZVw==

cttn_imagine_p_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:b3zkkL9p/NMexWT8s1hN/A==

cttn_imagine_c_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:RKT9EXLnDgidmazW63usAg==

cttn_interest_drug

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	28
2.	Less interested	24
5.	Much more interested	289
3.	Neutral	257
4.	More interested	404

Summary Statistics: StDev 0.9397535970969116; Max. 5.0; Min. 1.0; Mean 3.9001996007984028; Valid 1002.0

Variable Format: numeric

Notes: UNF:6:kpf8q7/dUhOAhSFBc5BLIw==

cttn_interest_placebo

f11558027 Location:

Value	Label	Frequency
4.	More interested	48
1.	Much less interested	233
5.	Much more interested	22
3.	Neutral	379
2.	Less interested	321

Summary Statistics: StDev 0.9516346587478863; Min. 1.0; Max. 5.0; Valid 1003.0; Mean 2.3070787637088737;

Variable Format: numeric

Notes: UNF:6:Mb9QaeT7LoztvoxIyHF58w==

cttn_interest_negative

f11558027 Location:

Value	Label	Frequency
2.	Less interested	380
3.	Neutral	199
4.	More interested	34
1.	Much less interested	373
5.	Much more interested	18

Summary Statistics: StDev 0.929899260674699; Min. 1.0; Max. 5.0; Valid 1004.0; Mean 1.9482071713147404

Variable Format: numeric

Notes: UNF:6:R+1aprd+0YmdXSrKR3VBaw==

cttn_interest_risks

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	245
4.	More interested	45
2.	Less interested	395
3.	Neutral	301
5.	Much more interested	18

Summary Statistics: Mean 2.1992031872509963; StDev 0.9195773458848394; Max. 5.0; Valid 1004.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:X7G6a0PKrC7R9XwQ9V8gDg==

cttn_interest_phys

f11558027 Location:

Value	Label	Frequency
3.	Neutral	451
2.	Less interested	311
1.	Much less interested	156
4.	More interested	58
5.	Much more interested	27

Summary Statistics: Valid 1003.0; Mean 2.4905284147557327; Min. 1.0; Max. 5.0; StDev 0.9159596365716797

Variable Format: numeric

Notes: UNF:6:qvV1xZIHWa8l8am4OYIVEg==

cttn_interest_pain

f11558027 Location:

Value	Label	Frequency
3.	Neutral	448
5.	Much more interested	22
4.	More interested	43
1.	Much less interested	172
2.	Less interested	319

Summary Statistics: Min. 1.0; Mean 2.426294820717131; Max. 5.0; StDev 0.897290602567919; Valid 1004.0

Variable Format: numeric

Notes: UNF:6:Hg7YzSE3vFx/5ORWayOQcQ==

cttn_interest_otherdrug

f11558027 Location:

Value	Label	Frequency
4.	More interested	216
5.	Much more interested	114
3.	Neutral	558
1.	Much less interested	31
2.	Less interested	85

Summary Statistics: Mean 3.295816733067729; Min. 1.0; StDev 0.8892525625035435; Max. 5.0; Valid 1004.0

Variable Format: numeric

Notes: UNF:6:ICWgvEcGkd6kSfLtmD0OmQ==

cttn_interest_continue

f11558027 Location:

Value	Label	Frequency
3.	Neutral	54
5.	Much more interested	582
4.	More interested	347
2.	Less interested	7
1.	Much less interested	14

Summary Statistics: Valid 1004.0; StDev 0.7525984138567915; Mean 4.47011952191235; Min. 1.0; Max. 5.0

Variable Format: numeric

Notes: UNF:6:5QREhFOSgKEk77GfzOA8nA==

cttn_interest_slow

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	16
5.	Much more interested	572
4.	More interested	318
2.	Less interested	13
3.	Neutral	85

Summary Statistics: StDev 0.8252680508185323; Mean 4.411354581673306; Valid 1004.0; Max. 5.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:QM1prvavF8G21gAByxhLrg==

cttn_interest_longer

f11558027 Location:

Value	Label	Frequency
2.	Less interested	9
5.	Much more interested	587
3.	Neutral	91
4.	More interested	301
1.	Much less interested	16

Summary Statistics: Min. 1.0; Mean 4.4282868525896415; Valid 1004.0; StDev 0.8196469909766055; Max. 5.0

Variable Format: numeric

Notes: UNF:6:l4KIV7InrDWuV/sru83dDw==

cttn_interest_improve

f11558027 Location:

Value	Label	Frequency
2.	Less interested	23
4.	More interested	462
5.	Much more interested	341
1.	Much less interested	18
3.	Neutral	160

Summary Statistics: Max. 5.0; Valid 1004.0; Min. 1.0; StDev 0.863844002156666; Mean 4.080677290836653;

Variable Format: numeric

Notes: UNF:6:BrUMkk9iu7QF/yvFSepT2A==

cttn_interest_future

f11558027 Location:

Value	Label	Frequency
4.	More interested	37
2.	Less interested	294
1.	Much less interested	88
5.	Much more interested	20
3.	Neutral	565

Summary Statistics: Max. 5.0; Mean 2.608565737051793; Min. 1.0; StDev 0.779322976535459; Valid 1004.0

Variable Format: numeric

Notes: UNF:6:aHCZga/0gOJk2loJzniqFQ==

cttn_interest_understand

f11558027 Location:

Value	Label	Frequency
2.	Less interested	11
1.	Much less interested	8
5.	Much more interested	411
3.	Neutral	122
4.	More interested	452

Summary Statistics: StDev 0.7670860395053946; Valid 1004.0; Max. 5.0; Min. 1.0; Mean 4.242031872509959;

Variable Format: numeric

Notes: UNF:6:a2vSI6ANatz7gLAZ9e28iA==

cttn_interest_topmed

f11558027 Location:

Value	Label	Frequency
5.	Much more interested	451
1.	Much less interested	13
4.	More interested	395
2.	Less interested	7
3.	Neutral	138

Summary Statistics: Valid 1004.0; StDev 0.8152762089124783; Max. 5.0; Min. 1.0; Mean 4.258964143426295

Variable Format: numeric

Notes: UNF:6:v/Yg0TrtCe/hQtKVI1y+sw==

cttn_interest_share

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	12
4.	More interested	431
5.	Much more interested	403
3.	Neutral	154
2.	Less interested	4

Summary Statistics: Mean 4.204183266932272; Min. 1.0; Max. 5.0; Valid 1004.0; StDev 0.7982673349603443

Variable Format: numeric

Notes: UNF:6:7ugN35vSSTAwhp9ZztEBSQ==

cttn_interest_rep

f11558027 Location:

Value	Label	Frequency
2.	Less interested	7
3.	Neutral	144
1.	Much less interested	12
5.	Much more interested	390
4.	More interested	451

Summary Statistics: StDev 0.7936293273720566; Valid 1004.0; Mean 4.195219123505977; Min. 1.0; Max. 5.0

Variable Format: numeric

Notes: UNF:6:M+Rg1AYZBQHi+mfe+K+eDA==

cttn_interest_docencourage

f11558027 Location:

Value	Label	Frequency
5.	Much more interested	354
1.	Much less interested	16
2.	Less interested	7
4.	More interested	447
3.	Neutral	180

Summary Statistics: Min. 1.0; Mean 4.111553784860558; StDev 0.8315237104571728; Valid 1004.0; Max. 5.0

Variable Format: numeric

Notes: UNF:6:ZagKIEFdDmhLBH849qGOEw==

cttn_interest_otherpeople

f11558027 Location:

Value	Label	Frequency
2.	Less interested	20
1.	Much less interested	24
3.	Neutral	542
5.	Much more interested	103
4.	More interested	315

Summary Statistics: Valid 1004.0; Max. 5.0; StDev 0.7979338759108281; Min. 1.0; Mean 3.4511952191235062;

Variable Format: numeric

Notes: UNF:6:3CDWy0nwG+r4r/YAerevhQ==

cttn_interest_paid

f11558027 Location:

Value	Label	Frequency
4.	More interested	288
3.	Neutral	487
5.	Much more interested	193
1.	Much less interested	17
2.	Less interested	19

Summary Statistics: StDev 0.8721316285939361; Min. 1.0; Max. 5.0; Mean 3.6185258964143427; Valid 1004.0

Variable Format: numeric

Notes: UNF:6:equVWcBCmggSxHtUHDH5TQ==

cttn_interest_parttravel

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	19
4.	More interested	403
3.	Neutral	219
5.	Much more interested	337
2.	Less interested	26

Summary Statistics: Max. 5.0; Valid 1004.0; Min. 1.0; StDev 0.9101835093250208; Mean 4.008964143426295;

Variable Format: numeric

Notes: UNF:6:P++GpNmyPjOp+PwQySkgZQ==

cttn_interest_caretravel

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	28
3.	Neutral	203
2.	Less interested	23
4.	More interested	406
5.	Much more interested	344

Summary Statistics: Valid 1004.0; Max. 5.0; Mean 4.010956175298805; Min. 1.0; StDev 0.9424515040886842

Variable Format: numeric

Notes: UNF:6:Ww/VtkjlbCV1imp6uxFjvg==

cttn_interest_drive

f11558027 Location:

Value	Label	Frequency
4.	More interested	423
5.	Much more interested	387
1.	Much less interested	17
2.	Less interested	18
3.	Neutral	159

Summary Statistics: Min. 1.0; Valid 1004.0; StDev 0.8654197554435497; Max. 5.0; Mean 4.140438247011954;

Variable Format: numeric

Notes: UNF:6:kgR5Ii4Zbxk6JzBYyfl7uA==

cttn_interest_fly

f11558027 Location:

Value	Label	Frequency
4.	More interested	74
3.	Neutral	325
1.	Much less interested	294
5.	Much more interested	49
2.	Less interested	262

Summary Statistics: StDev 1.1164265250347478; Min. 1.0; Mean 2.3247011952191245; Valid 1004.0; Max. 5.0;

Variable Format: numeric

Notes: UNF:6:o3p920+TYegTMIOQMn2MDg==

cttn_interest_home

f11558027 Location:

Value	Label	Frequency
1.	Much less interested	12
2.	Less interested	6
4.	More interested	451
5.	Much more interested	432
3.	Neutral	103

Summary Statistics: Valid 1004.0; StDev 0.7658941207795219; Mean 4.279880478087651; Min. 1.0; Max. 5.0

Variable Format: numeric

Notes: UNF:6:qn372fHNopUc4ltCXxpiIA==

cttn_participate

f11558027 Location:

Value	Label	Frequency
6.	Prefer not to answer	3
3.	Yes but the Person with ALS withdrew before the end	30
2.	Yes and the trial is compete	115
4.	No	725
1.	Yes and the trial is ongoing	116
5.	Do not know	13

Summary Statistics: Valid 1002.0; Mean 3.4121756487025956; Min. 1.0; Max. 6.0; StDev 1.1007088158039977

Variable Format: numeric

Notes: UNF:6:tPgC12dOhrvlGtqpULVO0g==

cttn_eligible

f11558027 Location:

Value	Label	Frequency
4.	Prefer not to answer	2
2.	No	726
3.	Do not know	37
1.	Yes	236

Summary Statistics: Valid 1001.0; Mean 1.8051948051948052; Max. 4.0; StDev 0.49296347431933396; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:YWtORVD6RMKbUKjNz2O9EQ==

cttn_bodyv1_breath

f11558027 Location:

Value	Label	Frequency
4.	Very Important	409
3.	Moderately Important	69
2.	Minimally Important	16
1.	Not Important	4

Summary Statistics: StDev 0.5370750161193908; Min. 1.0; Max. 4.0; Mean 3.7730923694779115; Valid 498.0

Variable Format: numeric

Notes: UNF:6:i5c/8G/65cHeaoEIgsA4tg==

cttn_bodyv1_cog

f11558027 Location:

Value	Label	Frequency
2.	Minimally Important	55
3.	Moderately Important	150
4.	Very Important	283
1.	Not Important	10

Summary Statistics: Valid 498.0; Mean 3.4176706827309236; StDev 0.7653519304533244; Max. 4.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:byZ79UmWj98GyOMLROcQtw==

cttn_bodyv1_dig

f11558027 Location:

Value	Label	Frequency
3.	Moderately Important	219
1.	Not Important	16
4.	Very Important	178
2.	Minimally Important	85

Summary Statistics: Max. 4.0; StDev 0.8018189989907054; Valid 498.0; Min. 1.0; Mean 3.122489959839357

Variable Format: numeric

Notes: UNF:6:SQ4ZmJKfGu8774U57OaWpQ==

cttn_bodyv1_hand

f11558027 Location:

Value	Label	Frequency
4.	Very Important	317
1.	Not Important	1
2.	Minimally Important	26
3.	Moderately Important	154

Summary Statistics: Valid 498.0; Min. 1.0; Mean 3.5803212851405624; StDev 0.600615292484427; Max. 4.0;

Variable Format: numeric

Notes: UNF:6:fjf2IctFB8ylC/oKjX/EAQ==

cttn_bodyv1_low

f11558027 Location:

Value	Label	Frequency
1.	Not Important	2
2.	Minimally Important	23
3.	Moderately Important	146
4.	Very Important	327

Summary Statistics: Min. 1.0; Mean 3.602409638554217; Valid 498.0; StDev 0.597238966550632; Max. 4.0

Variable Format: numeric

Notes: UNF:6:uG9DbWQNVXSiblM1NR5wcw==

cttn_bodyv1_saliv

f11558027 Location:

Value	Label	Frequency
1.	Not Important	9
3.	Moderately Important	198
4.	Very Important	193
2.	Minimally Important	98

Summary Statistics: StDev 0.7962365925325271; Valid 498.0; Max. 4.0; Min. 1.0; Mean 3.154618473895583;

Variable Format: numeric

Notes: UNF:6:XN7ofjH+I/87nhjJCS+Dtw==

cttn_bodyv1_arm

f11558027 Location:

Value	Label	Frequency
3.	Moderately Important	158
1.	Not Important	1
4.	Very Important	320
2.	Minimally Important	19

Summary Statistics: StDev 0.5735271920296484; Valid 498.0; Max. 4.0; Min. 1.0; Mean 3.600401606425703

Variable Format: numeric

Notes: UNF:6:4WFEQyKdiC79h67kYyx67w==

cttn_bodyv1_speak

f11558027 Location:

Value	Label	Frequency
1.	Not Important	6
4.	Very Important	394
3.	Moderately Important	87
2.	Minimally Important	11

Summary Statistics: StDev 0.5541365386066012; Max. 4.0; Mean 3.744979919678715; Valid 498.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:LeJio2lGF2PmRus5yxivzQ==

cttn_bodyv1_swallow

f11558027 Location:

Value	Label	Frequency
4.	Very Important	419
2.	Minimally Important	10
1.	Not Important	5
3.	Moderately Important	64

Summary Statistics: Max. 4.0; Mean 3.8012048192771086; Valid 498.0; StDev 0.5100977874224396; Min. 1.0

Variable Format: numeric

Notes: UNF:6:mDl2sgxDY/DYRCIzJwCmgQ==

cttn_bodyv1_priority

f11558027 Location:

Value	Label	Frequency
9.	Swallowing ability	40
8.	Speaking ability	65
1.	Breathing ability	249
2.	Cognitive function	17
6.	Salivation	4
3.	Digestion	3
5.	Lower body strength	66
4.	Hand and finger strength	29
7.	Shoulder and arm strength	25

Summary Statistics: Mean 3.6485943775100416; Min. 1.0; Valid 498.0; StDev 3.0414652881005964; Max. 9.0

Variable Format: numeric

Notes: UNF:6:7XZvIiRL2YaeCUFeu9k3Sg==

cttn_bodyv2_priority_1

f11558027 Location:

Summary Statistics: Min. 1.0; StDev 0.6272646424911151; Mean 1.3218997361477574; Valid 379.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:dkihGBfPEe4bWbTtuaWIvg==

cttn_bodyv2_priority_2

f11558027 Location:

Summary Statistics: StDev 0.7666307926748229; Mean 2.1485148514851486; Min. 1.0; Max. 3.0; Valid 101.0

Variable Format: numeric

Notes: UNF:6:Fzkrv+RXMee/1RmF3qWH7Q==

cttn_bodyv2_priority_3

f11558027 Location:

Summary Statistics: Valid 36.0; Min. 1.0; StDev 0.6068393265551999; Max. 3.0; Mean 2.5555555555555554;

Variable Format: numeric

Notes: UNF:6:izveG0uPfqmfkUSxtbQH2w==

cttn_bodyv2_priority_4

f11558027 Location:

Summary Statistics: Min. 1.0; Valid 146.0; Max. 3.0; Mean 2.2465753424657535; StDev 0.7197858286406813

Variable Format: numeric

Notes: UNF:6:Q8W6Km9vBpgUVZnoZTbRzA==

cttn_bodyv2_priority_5

f11558027 Location:

Summary Statistics: StDev 0.8289819624037388; Min. 1.0; Mean 2.016949152542373; Valid 177.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:J6R5x/zbRFWUTCQajU/CqA==

cttn_bodyv2_priority_6

f11558027 Location:

Summary Statistics: Mean 2.6; Min. 1.0; Max. 3.0; StDev 0.7071067811865476; Valid 25.0;

Variable Format: numeric

Notes: UNF:6:/lbaJbBKu6hOzisUYyfU/A==

cttn_bodyv2_priority_7

f11558027 Location:

Summary Statistics: Valid 102.0; Max. 3.0; Min. 1.0; Mean 2.3137254901960786; StDev 0.6891003197147316;

Variable Format: numeric

Notes: UNF:6:QdWbBy4PI4icQqxEcLOGHg==

cttn_bodyv2_priority_8

f11558027 Location:

Summary Statistics: Max. 3.0; Min. 1.0; Valid 282.0; StDev 0.7860370018288649; Mean 2.25531914893617

Variable Format: numeric

Notes: UNF:6:ZjbYcz9E2LypwXUJH2RU+Q==

cttn_bodyv2_priority_9

f11558027 Location:

Summary Statistics: Max. 3.0; Mean 2.2601626016260163; Min. 1.0; Valid 246.0; StDev 0.6238445433512438;

Variable Format: numeric

Notes: UNF:6:iTQKTvYrrrf/b8IrJybW0w==

cttn_othersym_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:wrRplq/A37zz5aSdmYvRGw==

cttn_daily_1

f11558027 Location:

Summary Statistics: Mean 1.4342672413793103; Max. 3.0; Min. 1.0; StDev 0.6617865898709706; Valid 928.0;

Variable Format: numeric

Notes: UNF:6:qqTLkYy1jVlonBtBPhWJYg==

cttn_daily_2

f11558027 Location:

Summary Statistics: StDev 0.6762629193638326; Valid 438.0; Mean 2.351598173515982; Min. 1.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:GX0hZa45i1HQaruvk5iz5g==

cttn_daily_3

f11558027 Location:

Summary Statistics: StDev 0.7840507928380693; Mean 2.184818481848185; Min. 1.0; Valid 303.0; Max. 3.0;

Variable Format: numeric

Notes: UNF:6:TayZD6kbLeOSRud+meI/xg==

cttn_daily_4

f11558027 Location:

Summary Statistics: Min. 1.0; Valid 320.0; Max. 3.0; StDev 0.7769139073512178; Mean 2.328125

Variable Format: numeric

Notes: UNF:6:4aGR434chaglWB6xMj7Jog==

cttn_daily_5

f11558027 Location:

Summary Statistics: StDev 0.6833710675293876; Max. 3.0; Min. 1.0; Mean 2.49800796812749; Valid 251.0

Variable Format: numeric

Notes: UNF:6:ISdjPLipUkDumz0nG8t9BQ==

cttn_daily_6

f11558027 Location:

Summary Statistics: Mean 2.115961800818554; StDev 0.7512678236162676; Valid 733.0; Min. 1.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:Cag2F3blkkOogmIxz0Sluw==

cttn_risks_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:wJ37hpcRJRQbrCXjq6acug==

cttn_fda_responder

f11558027 Location:

Value	Label	Frequency	Text
1.	True	869
0.	False	225

Summary Statistics: Min. 0.0; StDev 0.4043732376901379; Max. 1.0; Valid 1094.0; Mean 0.7943327239488112

Variable Format: numeric

Notes: UNF:6:vUBG7ufJqxShRFuFfYupRw==

cttn_fda_1

f11558027 Location:

Value	Label	Frequency	Text
1.	True	107
0.	False	762

Summary Statistics: StDev 0.32877563383459363; Valid 869.0; Mean 0.12313003452243948; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:RMDdGNP4ieNYukScnWfCMA==

cttn_fda_2

f11558027 Location:

Value	Label	Frequency	Text
1.	True	311
0.	False	558

Summary Statistics: Valid 869.0; Max. 1.0; StDev 0.47965341753548985; Mean 0.3578826237054086; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:oz14DfqGdL1RfsgQp53vjw==

cttn_fda_3

f11558027 Location:

Value	Label	Frequency	Text
0.	False	853
1.	True	16

Summary Statistics: Min. 0.0; Mean 0.018411967779056373; Valid 869.0; Max. 1.0; StDev 0.1345131540495863

Variable Format: numeric

Notes: UNF:6:xrrX4Jy9EhfHsz2f7Fm2MA==

cttn_fda_4

f11558027 Location:

Value	Label	Frequency	Text
1.	True	135
0.	False	734

Summary Statistics: Mean 0.15535097813578835; Max. 1.0; StDev 0.36244754578645166; Min. 0.0; Valid 869.0

Variable Format: numeric

Notes: UNF:6:WYTbg2FON8+47fJvBq1LPQ==

cttn_fda_5

f11558027 Location:

Value	Label	Frequency	Text
1.	True	555
0.	False	314

Summary Statistics: Max. 1.0; Valid 869.0; Min. 0.0; Mean 0.6386651323360185; StDev 0.48066396516889054

Variable Format: numeric

Notes: UNF:6:4vk7FTMi5cF49UTEa8XD7A==

cttn_fda_8

f11558027 Location:

Value	Label	Frequency	Text
1.	True	215
0.	False	654

Summary Statistics: Min. 0.0; Mean 0.24741081703107012; StDev 0.4317559719144335; Max. 1.0; Valid 869.0

Variable Format: numeric

Notes: UNF:6:NI9ZMfISpVv8DROonegU4A==

cttn_fda_6

f11558027 Location:

Value	Label	Frequency	Text
1.	True	8
0.	False	861

Summary Statistics: Valid 869.0; Max. 1.0; Mean 0.009205983889528185; Min. 0.0; StDev 0.09556014903696734

Variable Format: numeric

Notes: UNF:6:LOHo3YDBRuyljEaTX+93yQ==

cttn_fda_7

f11558027 Location:

Value	Label	Frequency	Text
0.	False	864
1.	True	5

Summary Statistics: StDev 0.07567843154028553; Min. 0.0; Mean 0.00575373993095515; Max. 1.0; Valid 869.0

Variable Format: numeric

Notes: UNF:6:KIaejXHF7iXkkvQwivu+LA==

hs_alsfrs_responder

f11558027 Location:

Value	Label	Frequency	Text
0.	False	231
1.	True	863

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.7888482632541151; Valid 1094.0; StDev 0.4083124720732844;

Variable Format: numeric

Notes: UNF:6:YQDe1GEQpc50UW06YUfExQ==

hs_alsfrs_dk

f11558027 Location:

Value	Label	Frequency	Text
1.	True	462
0.	False	401

Summary Statistics: Max. 1.0; Mean 0.5353418308227115; Min. 0.0; Valid 863.0; StDev 0.4990386049072987

Variable Format: numeric

Notes: UNF:6:9lkPmGq+QLZZtjr+FZCsqQ==

hs_alsfrs_unknown

f11558027 Location:

Value	Label	Frequency	Text
1.	True	159
0.	False	704

Summary Statistics: Mean 0.18424101969872547; Max. 1.0; Valid 863.0; StDev 0.38790543174423936; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:+Y9UsNa41oYrjUaD6GXn7Q==

hs_alsfrs_score

f11558027 Location:

Summary Statistics: Valid 242.0; Min. 0.0; Mean 32.64876033057851; Max. 48.0; StDev 9.889250761029343

Variable Format: numeric

Notes: UNF:6:DUMo1ic5lAXeb3hCCbE+Ng==

hs_alsfrs_year

f11558027 Location:

Summary Statistics: StDev 0.4171530487664305; Max. 2025.0; Mean 2023.8553719008264; Min. 2022.0; Valid 242.0;

Variable Format: numeric

Notes: UNF:6:c9XF810vYM16PxejFzX+eQ==

hs_fvc_responder

f11558027 Location:

Value	Label	Frequency	Text
1.	True	851
0.	False	243

Summary Statistics: Min. 0.0; Max. 1.0; Valid 1094.0; Mean 0.7778793418647156; StDev 0.4158619396595294

Variable Format: numeric

Notes: UNF:6:2Ki1YLRbxxQWbFxfaJ/2xQ==

hs_fvc_sitting

f11558027 Location:

Value	Label	Frequency	Text
1.	True	306
0.	False	545

Summary Statistics: Valid 851.0; Max. 1.0; Min. 0.0; Mean 0.35957696827262065; StDev 0.48015861069218807;

Variable Format: numeric

Notes: UNF:6:M0GGG03iryYbSJ/wJDSLjg==

hs_fvc_lyingfaceup

f11558027 Location:

Value	Label	Frequency	Text
0.	False	843
1.	True	8

Summary Statistics: Valid 851.0; Max. 1.0; Min. 0.0; Mean 0.00940070505287895; StDev 0.09655717208915814

Variable Format: numeric

Notes: UNF:6:NT68+6xco8J1iqOa5KJUKA==

hs_fvc_dk

f11558027 Location:

Value	Label	Frequency	Text
0.	False	393
1.	True	458

Summary Statistics: Min. 0.0; Valid 851.0; StDev 0.49883253486160545; Mean 0.5381903642773208; Max. 1.0

Variable Format: numeric

Notes: UNF:6:27FDmVXk7c7L5fjMik5TeQ==

hs_fvc_unknown

f11558027 Location:

Value	Label	Frequency	Text
0.	False	772
1.	True	79

Summary Statistics: StDev 0.29036746489805115; Valid 851.0; Max. 1.0; Mean 0.0928319623971798; Min. 0.0

Variable Format: numeric

Notes: UNF:6:yegGMq6ezG8PYd/XP4XoFw==

hs_fvc_percent

f11558027 Location:

Summary Statistics: Min. 0.0; Valid 314.0; StDev 68.86531710551212; Max. 999.0; Mean 79.94904458598725;

Variable Format: numeric

Notes: UNF:6:cBBbzfFWHAQUOguqYKfDxQ==

hs_fvc_year

f11558027 Location:

Summary Statistics: Mean 2023.7038216560509; Valid 314.0; Min. 2011.0; Max. 2034.0; StDev 1.0893844643755553

Variable Format: numeric

Notes: UNF:6:TL6OmzMyT82D5+saX3fMuQ==

hs_svc_responder

f11558027 Location:

Value	Label	Frequency	Text
0.	False	249
1.	True	845

Summary Statistics: Valid 1094.0; Mean 0.7723948811700199; Min. 0.0; StDev 0.4194780940330404; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:tHyQrrM3M2dkN7lavRm1AA==

hs_svc_sitting

f11558027 Location:

Value	Label	Frequency	Text
1.	True	96
0.	False	749

Summary Statistics: Max. 1.0; Valid 845.0; Mean 0.11360946745562137; Min. 0.0; StDev 0.31752428560375506

Variable Format: numeric

Notes: UNF:6:0ckzAGt2thTyT4vC4ACkEw==

hs_svc_lyingfaceup

f11558027 Location:

Value	Label	Frequency	Text
1.	True	5
0.	False	840

Summary Statistics: Valid 845.0; Min. 0.0; Max. 1.0; StDev 0.07674057826282804; Mean 0.00591715976331362

Variable Format: numeric

Notes: UNF:6:0zqnAdNh9zTnWHXY/phDOg==

hs_svc_dk

f11558027 Location:

Value	Label	Frequency	Text
1.	True	597
0.	False	248

Summary Statistics: Valid 845.0; Min. 0.0; Max. 1.0; Mean 0.7065088757396449; StDev 0.45563117149218846

Variable Format: numeric

Notes: UNF:6:9V1er5JCN/A5QqTLFrDwPA==

hs_svc_unknown

f11558027 Location:

Value	Label	Frequency	Text
0.	False	698
1.	True	147

Summary Statistics: Max. 1.0; Mean 0.17396449704142036; Min. 0.0; Valid 845.0; StDev 0.37930345698678153

Variable Format: numeric

Notes: UNF:6:M/pCOWzKNMQDXv6pBmx6eA==

hs_svc_percent

f11558027 Location:

Summary Statistics: Valid 101.0; Max. 998.0; StDev 98.31458500020419; Mean 90.22772277227723; Min. 0.0

Variable Format: numeric

Notes: UNF:6:ngjuSq6x7M9QeiUPpKLjEA==

hs_svc_year

f11558027 Location:

Summary Statistics: Mean 2023.039603960396; StDev 7.3605988779163996; Valid 101.0; Min. 1950.0; Max. 2025.0

Variable Format: numeric

Notes: UNF:6:vC2kycK9FDeBG7c7d4dsUA==

hs_speaking

f11558027 Location:

Value	Label	Frequency
1.	Can speak normally without a speech assisting device	303
5.	Can speak with difficulty, but prefer to use a speech assisting device, hand gestures, or other non-verbal ways to communicate	46
7.	Prefer not to answer	6
6.	Has lost the ability to speak completely and require a speech assisting device or other non-verbal ways to communicate	110
3.	Can speak without a speech assisting device, but with difficulty and slurring	103
4.	Can speak without a speech assisting device, but often needs to repeat what is said	113
2.	Can speak without difficulty, but with a noticeable change in voice	152

Summary Statistics: Max. 7.0; Valid 833.0; StDev 1.801261505032376; Min. 1.0; Mean 2.761104441776711

Variable Format: numeric

Notes: UNF:6:OTw/B2VQa2benRYxnBvokw==

hs_resp_responder

f11558027 Location:

Value	Label	Frequency	Text
0.	False	268
1.	True	826

Summary Statistics: Max. 1.0; Mean 0.7550274223034751; StDev 0.4302676342983874; Min. 0.0; Valid 1094.0

Variable Format: numeric

Notes: UNF:6:JkFrzD8ylM4x+1ljtmmBSg==

hs_resp_none

f11558027 Location:

Value	Label	Frequency	Text
1.	True	437
0.	False	389

Summary Statistics: Min. 0.0; Valid 826.0; Mean 0.5290556900726393; StDev 0.4994574795360974; Max. 1.0

Variable Format: numeric

Notes: UNF:6:XfgVCG99wor9lQw2X8EF1g==

hs_resp_sleeping

f11558027 Location:

Value	Label	Frequency	Text
1.	True	340
0.	False	486

Summary Statistics: Max. 1.0; Min. 0.0; Valid 826.0; StDev 0.4924255687797164; Mean 0.41162227602905577;

Variable Format: numeric

Notes: UNF:6:PkhkUfRBM8RophI+fvoUsQ==

hs_resp_awake

f11558027 Location:

Value	Label	Frequency	Text
0.	False	706
1.	True	120

Summary Statistics: Mean 0.14527845036319617; StDev 0.3525948588573396; Max. 1.0; Valid 826.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:V5pIa8pcYpDeWfJs4BgqhQ==

hs_resp_dk

f11558027 Location:

Value	Label	Frequency	Text
0.	False	820
1.	True	6

Summary Statistics: StDev 0.0849699873209501; Min. 0.0; Max. 1.0; Valid 826.0; Mean 0.007263922518159797

Variable Format: numeric

Notes: UNF:6:6qhemRRdwXPWEcnBdDnlCg==

hs_resp_pnta

f11558027 Location:

Value	Label	Frequency	Text
0.	False	822
1.	True	4

Summary Statistics: Min. 0.0; StDev 0.06946225955849435; Valid 826.0; Mean 0.0048426150121065326; Max. 1.0

Variable Format: numeric

Notes: UNF:6:pIkvxx4ox/ZRS06Xd0cM4Q==

hs_resp_numhours

f11558027 Location:

Value	Label	Frequency
1.	Less than 6 hours	80
5.	Do not know	1
6.	Prefer not to answer	1
3.	12 to 23 hours	48
4.	24 hours	35
2.	6 to 11 hours	209

Summary Statistics: StDev 0.878069967192284; Min. 1.0; Mean 2.120320855614973; Max. 6.0; Valid 374.0;

Variable Format: numeric

Notes: UNF:6:hVxcbFCuEGEyZJhjq6V9qw==

hs_resp_invasive

f11558027 Location:

Value	Label	Frequency
1.	Non-invasive (ventilation does not require a tracheostomy)	347
3.	Do not know	2
4.	Prefer not to answer	3
2.	Invasive (ventilation requires a tracheostomy)	22

Summary Statistics: StDev 0.37951782210261953; Min. 1.0; Valid 374.0; Max. 4.0; Mean 1.0935828877005347

Variable Format: numeric

Notes: UNF:6:FUpmgztQn0tXx6vSdkFutg==

hs_resp_device

f11558027 Location:

Value	Label	Frequency
4.	ResMed Astral	46
5.	Philips Respironics Trilogy	122
1.	Philips Respironics BiPAP� device	46
2.	ResMed Bi-level device	70
6.	LTV Ventilator	5
3.	Ventec life VOCSN	5
7.	Other, please specify	48
8.	Do not know	32
9.	Prefer not to answer	3

Summary Statistics: StDev 2.1946132020235014; Mean 4.360742705570292; Max. 9.0; Valid 377.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:K+S5QgutjlbEUV9Jy4f/Jg==

hs_resp_device_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:kXJyz0KM/6NxEk9+oGS2Ew==

hs_mob_responder

f11558027 Location:

Value	Label	Frequency	Text
1.	True	835
0.	False	259

Summary Statistics: Valid 1094.0; Max. 1.0; Mean 0.7632541133455207; StDev 0.4252794306156214; Min. 0.0

Variable Format: numeric

Notes: UNF:6:C4gi52RHN7QMuMrRaOvH3w==

hs_mob_none

f11558027 Location:

Value	Label	Frequency	Text
0.	False	645
1.	True	190

Summary Statistics: Max. 1.0; Valid 835.0; Mean 0.22754491017964076; StDev 0.4194984830690122; Min. 0.0

Variable Format: numeric

Notes: UNF:6:1iltqRFC5Ix/hlTu9HEM7g==

hs_mob_cane

f11558027 Location:

Value	Label	Frequency	Text
1.	True	136
0.	False	699

Summary Statistics: Valid 835.0; StDev 0.3694722105709474; Min. 0.0; Mean 0.1628742514970057; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:Rr8ly15myP0ye3NpYfO9CQ==

hs_mob_walker

f11558027 Location:

Value	Label	Frequency	Text
0.	False	561
1.	True	274

Summary Statistics: StDev 0.46981886242954474; Mean 0.32814371257485025; Max. 1.0; Min. 0.0; Valid 835.0

Variable Format: numeric

Notes: UNF:6:aohU6IO4lNmERQS6gXqojw==

hs_mob_manualwc

f11558027 Location:

Value	Label	Frequency	Text
0.	False	714
1.	True	121

Summary Statistics: Valid 835.0; Min. 0.0; Max. 1.0; StDev 0.35222122889017365; Mean 0.14491017964071856

Variable Format: numeric

Notes: UNF:6:P/xeHA13of2uAx7GVm3rUg==

hs_mob_motorizedwc

f11558027 Location:

Value	Label	Frequency	Text
0.	False	459
1.	True	376

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.4978219047616863; Valid 835.0; Mean 0.45029940119760486

Variable Format: numeric

Notes: UNF:6:2thzMwE/8Do69fCTUOzrHg==

hs_mob_other

f11558027 Location:

Value	Label	Frequency	Text
0.	False	768
1.	True	67

Summary Statistics: Valid 835.0; StDev 0.27182647187189246; Min. 0.0; Mean 0.08023952095808383; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:hG9/X9lLxeoafqEVx+xM8w==

hs_mob_pnta

f11558027 Location:

Value	Label	Frequency	Text
0.	False	834
1.	True	1

Summary Statistics: Mean 0.001197604790419162; StDev 0.03460642701029968; Min. 0.0; Max. 1.0; Valid 835.0

Variable Format: numeric

Notes: UNF:6:KCTnWnyqKJCu9kP6XkX+CA==

hs_mob_other_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:5Fn0DX1A7rax+3mWH1pNMg==

hs_wheelchair_responder

f11558027 Location:

Value	Label	Frequency	Text
0.	False	721
1.	True	373

Summary Statistics: Mean 0.3409506398537485; Min. 0.0; Valid 1094.0; Max. 1.0; StDev 0.474245595685442;

Variable Format: numeric

Notes: UNF:6:VCwNuj9UQjJSXDKeg+Ag1Q==

hs_wheelchair_joystick

f11558027 Location:

Value	Label	Frequency	Text
1.	True	325
0.	False	48

Summary Statistics: Max. 1.0; Valid 373.0; Min. 0.0; Mean 0.8713136729222521; StDev 0.335302208014868

Variable Format: numeric

Notes: UNF:6:6jiDUwn4ml+LUiFjrlSBYw==

hs_wheelchair_headcontrols

f11558027 Location:

Value	Label	Frequency	Text
0.	False	362
1.	True	11

Summary Statistics: StDev 0.1694044217564595; Min. 0.0; Valid 373.0; Max. 1.0; Mean 0.029490616621983917;

Variable Format: numeric

Notes: UNF:6:wl93zhqw3VEGJ3hbbsi5Hg==

hs_wheelchair_sipnpuff

f11558027 Location:

Value	Label	Frequency	Text
1.	True	1
0.	False	372

Summary Statistics: Valid 373.0; Max. 1.0; Mean 0.0026809651474530814; Min. 0.0; StDev 0.05177803730784997

Variable Format: numeric

Notes: UNF:6:b1kNzkceo2rlEk8xZU2KDg==

hs_wheelchair_eye

f11558027 Location:

Value	Label	Frequency	Text
0.	False	360
1.	True	13

Summary Statistics: Mean 0.03485254691689007; StDev 0.18365258291103248; Valid 373.0; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:Ym3buY5gcJcK0jh1Z5vAnA==

hs_wheelchair_caregiver

f11558027 Location:

Value	Label	Frequency	Text
1.	True	55
0.	False	318

Summary Statistics: Max. 1.0; Valid 373.0; Min. 0.0; Mean 0.14745308310991964; StDev 0.35503324253320323

Variable Format: numeric

Notes: UNF:6:mWzH9gDfHKTWmz7AiQ+ByQ==

hs_wheelchair_other

f11558027 Location:

Value	Label	Frequency	Text
1.	True	2
0.	False	371

Summary Statistics: Max. 1.0; StDev 0.07312671539041572; Mean 0.005361930294906163; Valid 373.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:2K9MBBvAqXUufEJ0Ep8PvQ==

hs_wheelchair_pnta

f11558027 Location:

Value	Label	Frequency	Text
1.	True	0
0.	False	373

Summary Statistics: Max. 0.0; Valid 373.0; Min. 0.0; StDev 0.0; Mean 0.0

Variable Format: numeric

Notes: UNF:6:Dpj1gDn5u3A3aZckam458g==

hs_wheelchair_other_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:SzcAdcwgei/fvFGvXokKgA==

hs_feedingtube

f11558027 Location:

Value	Label	Frequency
6.	Nasogastric (NG)	0
7.	Other, please specify	13
9.	Prefer not to answer	3
8.	Do not know	5
2.	Percutaneous Endoscopic Gastrostomy (PEG)	109
1.	Does not currently have a feeding tube	643
5.	Gastrojejunal (GJ)	6
3.	Radioscopically Inserted Percutaneous Gastrostomy (RIG)	5
4.	Mic-Key	55

Summary Statistics: Valid 839.0; Max. 9.0; Mean 1.5303933253873663; StDev 1.2874346706796718; Min. 1.0

Variable Format: numeric

Notes: UNF:6:SkMriDsV9uzcMJygdM2+tw==

hs_feedingtube_oe

f11558027 Location:

Variable Format: character

Notes: UNF:6:Pre9ZLs45gnM6sRixjsnCg==

randomid

f11558020 Location:

Variable Format: character

Notes: UNF:6:BipDr+IKY0LKN1VdHdiMoQ==

neurostamp

f11558020 Location:

Variable Format: character

Notes: UNF:6:sX3IyVyYCyxF6vBzzapXxQ==

group

f11558020 Location:

Variable Format: character

Notes: UNF:6:KkAsz4bnnPERqoG6ETy+Rg==

dyad_id

f11558020 Location:

Variable Format: character

Notes: UNF:6:28oVfF17UfFQjw8Ecd0Tgg==

screener_consent

f11558020 Location:

Value	Label	Frequency	Text
1.	True	1772
0.	False	0

Summary Statistics: Valid 1772.0; Mean 1.0; Min. 1.0; Max. 1.0; StDev 0.0;

Variable Format: numeric

Notes: UNF:6:LqiyVZ+7nyq2H2O1a9ncwQ==

screener_responder

f11558020 Location:

Value	Label	Frequency	Text
1.	True	2392
0.	False	24

Summary Statistics: Max. 1.0; StDev 0.09919257762081614; Min. 0.0; Mean 0.990066225165563; Valid 2416.0

Variable Format: numeric

Notes: UNF:6:8uP9q7Ty6Ck6QtXKiMHrqg==

screener_18plus

f11558020 Location:

Value	Label	Frequency	Text
0.	False	415
1.	True	1977

Summary Statistics: StDev 0.37875380743942777; Valid 2392.0; Max. 1.0; Min. 0.0; Mean 0.8265050167223997

Variable Format: numeric

Notes: UNF:6:DiCsJLh8Sh554xoxTjaymA==

screener_us

f11558020 Location:

Value	Label	Frequency	Text
1.	True	1977
0.	False	415

Summary Statistics: Min. 0.0; Mean 0.8265050167223997; Valid 2392.0; Max. 1.0; StDev 0.37875380743942777

Variable Format: numeric

Notes: UNF:6:DiCsJLh8Sh554xoxTjaymA==

screener_pals

f11558020 Location:

Value	Label	Frequency	Text
0.	False	0
1.	True	2392

Summary Statistics: Mean 1.0; Max. 1.0; Min. 1.0; Valid 2392.0; StDev 0.0

Variable Format: numeric

Notes: UNF:6:i6sSY2Oea1jgCuf4oPyG1g==

screener_caregiver

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1557
1.	True	835

Summary Statistics: Min. 0.0; Mean 0.3490802675585267; StDev 0.4767790547833928; Max. 1.0; Valid 2392.0

Variable Format: numeric

Notes: UNF:6:CR0MDVXAy6NkGILdufl8wg==

screener_pastcaregiver

f11558020 Location:

Value	Label	Frequency	Text
1.	True	381
0.	False	2011

Summary Statistics: Max. 1.0; Valid 2392.0; Min. 0.0; Mean 0.1592809364548502; StDev 0.3660143792388242;

Variable Format: numeric

Notes: UNF:6:N1PnJUu3ryT86lnJRwvyVw==

screener_proxypals

f11558020 Location:

Value	Label	Frequency	Text
1.	True	226
0.	False	2166

Summary Statistics: Valid 2392.0; Max. 1.0; StDev 0.2925587353516148; Min. 0.0; Mean 0.09448160535116741

Variable Format: numeric

Notes: UNF:6:nkMt/XJ1Kv9eU915kJ5xbw==

screener_caredforalso

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1955
1.	True	437

Summary Statistics: StDev 0.38649486091671936; Mean 0.18269230769230788; Valid 2392.0; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:r13nTg4g2XWNILBEWj0c8Q==

screener_caregiveralso

f11558020 Location:

Value	Label	Frequency	Text
1.	True	1470
0.	False	922

Summary Statistics: Max. 1.0; Valid 2392.0; StDev 0.48680356741444325; Min. 0.0; Mean 0.614548494983278

Variable Format: numeric

Notes: UNF:6:4/ZKYyceg7asJXw9OWGirg==

screener_caregiverproxypals

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1991
1.	True	401

Summary Statistics: Valid 2392.0; Max. 1.0; Min. 0.0; Mean 0.1676421404682273; StDev 0.37362630126303953

Variable Format: numeric

Notes: UNF:6:6PrIbFyMxs5taluWI4Qpsg==

demo_age

f11558020 Location:

Value	Label	Frequency
7.	75 or older	410
6.	65-74	1135
1.	18-24	31
3.	35-44	327
4.	45-54	516
8.	Other	1
5.	55-64	1053
2.	25-34	127
9.	Unknown	2

Summary Statistics: Mean 5.0807884508606405; StDev 1.3180112761989584; Max. 9.0; Valid 3602.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:Mo13qpv/Oq5AdSrkHApYbQ==

demo_gender

f11558020 Location:

Value	Label	Frequency
2.	Male	1474
3.	Non-binary/third gender	5
5.	Prefer not to answer	11
1.	Female	2107
4.	Prefer to self-describe	1

Summary Statistics: Mean 1.4255141745414142; Min. 1.0; StDev 0.5344765857149681; Max. 5.0; Valid 3598.0;

Variable Format: numeric

Notes: UNF:6:Qq0YX/TIZcM6/+Q4CavvYg==

demo_gender_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:Lp/WKARs0QFWxAx4dCFfBg==

demo_sex

f11558020 Location:

Value	Label	Frequency
2.	Male	1474
1.	Female	2112
3.	Prefer not to answer	11

Summary Statistics: StDev 0.4991122256368464; Max. 3.0; Valid 3597.0; Min. 1.0; Mean 1.4159021406727816;

Variable Format: numeric

Notes: UNF:6:i/qbzHWN7OvxR7BDe2IuUg==

demo_ethnicity

f11558020 Location:

Value	Label	Frequency
3.	Prefer not to answer	31
1.	Yes	146
2.	No	3418

Summary Statistics: Valid 3595.0; Min. 1.0; Mean 1.9680111265646731; StDev 0.21960231139111716; Max. 3.0

Variable Format: numeric

Notes: UNF:6:jMxzjg4FLCo1D0XVV/JFoA==

demo_responder_race

f11558020 Location:

Value	Label	Frequency	Text
1.	True	3593
0.	False	9

Summary Statistics: Mean 0.9975013881177124; Valid 3602.0; StDev 0.04993056131632318; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:GOJ/8ANfmAx4kM4alwX9Qw==

demo_amerin_alaskan

f11558020 Location:

Value	Label	Frequency	Text
0.	False	3551
1.	True	42

Summary Statistics: Min. 0.0; Valid 3593.0; Max. 1.0; StDev 0.10749869912455336; Mean 0.011689396047870842

Variable Format: numeric

Notes: UNF:6:3pV2g6hivV/YDY4Hhf+XcA==

demo_asian

f11558020 Location:

Value	Label	Frequency	Text
1.	True	54
0.	False	3539

Summary Statistics: Min. 0.0; Valid 3593.0; StDev 0.12168593645183852; Mean 0.015029223490119691; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:YBmQ/kmwzQhetpONeUT9eA==

demo_black

f11558020 Location:

Value	Label	Frequency	Text
0.	False	3476
1.	True	117

Summary Statistics: Min. 0.0; StDev 0.17751540276755534; Mean 0.0325633175619257; Valid 3593.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:Hf9Zsr5Ht34SNpUhuBslXA==

demo_hawaii_pacific

f11558020 Location:

Value	Label	Frequency	Text
1.	True	11
0.	False	3582

Summary Statistics: Valid 3593.0; StDev 0.0552538266384465; Max. 1.0; Mean 0.003061508488728113; Min. 0.0

Variable Format: numeric

Notes: UNF:6:/wHvB6ZqrKWI5zVSFsEWLw==

demo_white

f11558020 Location:

Value	Label	Frequency	Text
0.	False	237
1.	True	3356

Summary Statistics: Mean 0.9340384080155862; Min. 0.0; StDev 0.24824949658679712; Valid 3593.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:CcwV/ySxrHvJtQDpt69ZjA==

demo_race_pnta

f11558020 Location:

Value	Label	Frequency	Text
0.	False	3529
1.	True	64

Summary Statistics: Valid 3593.0; Min. 0.0; Mean 0.017812413025327056; StDev 0.13228757141039693; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:QJBkBg5w5PFWoOvkJyNx6Q==

demo_veteran

f11558020 Location:

Value	Label	Frequency
3.	Prefer not to answer	15
1.	Yes	403
2.	No	3175

Summary Statistics: Min. 1.0; Max. 3.0; StDev 0.32358168826650485; Valid 3593.0; Mean 1.8920122460339552

Variable Format: numeric

Notes: UNF:6:467gy7bHJoXouMAtWQSkzA==

demo_education

f11558020 Location:

Value	Label	Frequency
6.	Prefer not to answer	13
5.	Post graduate	1015
3.	Some college or technical school	917
1.	Some high school or less	33
4.	College graduate	1301
2.	High school diploma or GED	313

Summary Statistics: StDev 0.9776737615646391; Max. 6.0; Valid 3592.0; Min. 1.0; Mean 3.8326837416481054;

Variable Format: numeric

Notes: UNF:6:OCrtzbusn9tWb0667aCKNQ==

demo_language

f11558020 Location:

Value	Label	Frequency
19.	Korean	1
35.	Bilingual	4
4.	Chinese	1
14.	Japanese	1
24.	Urdu	0
11.	Portuguese	0
32.	Hausa	0
8.	Wu	0
3.	Prefer not to answer	9
26.	Punjabi	0
28.	Gujarati	0
7.	Cantonese	0
1.	English	3549
5.	Mandarin	0
22.	Arabic	0
18.	Telugu	0
9.	Spanish	17
21.	Tamil	0
13.	Russian	0
33.	Romanian	0
2.	Other, please specify	4
27.	Italian	0
30.	Persian	0
15.	Vietnamese	0
6.	Yue	0
31.	Bhojpuri	0
29.	Iranian	0
17.	Marathi	0
23.	German	2
10.	Hindi	0
25.	Javanese	0
20.	French	0
12.	Bengali	0
16.	Turkish	0
34.	American Sign Language	1

Summary Statistics: Max. 35.0; Mean 1.1128448035664529; Min. 1.0; StDev 1.5177597701138084; Valid 3589.0

Variable Format: numeric

Notes: UNF:6:Vo8MoV/UTXnqwlNpEzZKhA==

demo_language_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:n5Fsa8m3VNFXbVOLH6Cr1w==

demo_urbanrural

f11558020 Location:

Value	Label	Frequency	Text
2.	Urban	1207
1.	Rural	2315

Summary Statistics: Valid 3522.0; Min. 1.0; Max. 2.0; Mean 1.3427030096536061; StDev 0.4746805581710908;

Variable Format: numeric

Notes: UNF:6:0bI0DeBo8gPpOdf/IHvyhw==

demo_state

f11558020 Location:

Variable Format: character

Notes: UNF:6:G7cVIOaDllWkkg7TUgXw+g==

demo_marital

f11558020 Location:

Value	Label	Frequency
1.	Married	2402
4.	Widowed	478
5.	Separated	21
2.	Living as married	81
7.	Prefer not to answer	32
3.	Divorced	297
6.	Single, never been married	278

Summary Statistics: Max. 7.0; Valid 3589.0; Mean 2.0518250208971875; StDev 1.6726503966847754; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:s7SwRzhMkzFeHgWcJcHkWQ==

demo_hear_responder

f11558020 Location:

Value	Label	Frequency	Text
1.	True	1691
0.	False	105

Summary Statistics: Min. 0.0; StDev 0.2346826916918369; Mean 0.9415367483296213; Valid 1796.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:BNAGEw+J1b2kG3pAbywUng==

demo_hear_family

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1609
1.	True	82

Summary Statistics: Max. 1.0; StDev 0.2148670355907648; Valid 1691.0; Mean 0.048492016558249605; Min. 0.0

Variable Format: numeric

Notes: UNF:6:PyEpt4YdZu/Xghmt9thuAA==

demo_hear_group

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1619
1.	True	72

Summary Statistics: Min. 0.0; Mean 0.04257835600236554; Valid 1691.0; Max. 1.0; StDev 0.20196425714565555;

Variable Format: numeric

Notes: UNF:6:Jpgsu450wB6h7OFrSr0UNA==

demo_hear_provider

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1583
1.	True	108

Summary Statistics: StDev 0.24458914509437288; Mean 0.06386753400354815; Max. 1.0; Valid 1691.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:aR+VoX7dSkKVtsNmrfQA9A==

demo_hear_web

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1547
1.	True	144

Summary Statistics: Min. 0.0; Mean 0.08515671200473118; Valid 1691.0; Max. 1.0; StDev 0.27919732102201134;

Variable Format: numeric

Notes: UNF:6:bEcl6TOhqxWgPYftNWUSGQ==

demo_hear_social

f11558020 Location:

Value	Label	Frequency	Text
1.	True	481
0.	False	1210

Summary Statistics: Mean 0.2844470727380247; Min. 0.0; Max. 1.0; Valid 1691.0; StDev 0.4512841362216558

Variable Format: numeric

Notes: UNF:6:xcGBEWSarGWR5PHE54CpxQ==

demo_hear_email

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1572
1.	True	119

Summary Statistics: StDev 0.2558495134693318; Max. 1.0; Mean 0.07037256061502078; Valid 1691.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:/7XYOP9641kvRSAQiFj3qw==

demo_hear_event

f11558020 Location:

Value	Label	Frequency	Text
0.	False	813
1.	True	878

Summary Statistics: Min. 0.0; Max. 1.0; Valid 1691.0; Mean 0.5192193968066235; StDev 0.4997782760478224

Variable Format: numeric

Notes: UNF:6:mSnm12Pdir9VxhELw4RZ5A==

demo_hear_org

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1621
1.	True	70

Summary Statistics: Min. 0.0; StDev 0.19926240664693895; Valid 1691.0; Max. 1.0; Mean 0.04139562389118859

Variable Format: numeric

Notes: UNF:6:Rlf8EXisvXD4q1CzpekuQw==

demo_hear_other

f11558020 Location:

Value	Label	Frequency	Text
1.	True	37
0.	False	1654

Summary Statistics: Min. 0.0; Mean 0.021880544056771162; StDev 0.1463367678581136; Max. 1.0; Valid 1691.0

Variable Format: numeric

Notes: UNF:6:qnQ+o1/CFpsCH6ZwLQ9VIg==

demo_hear_dk

f11558020 Location:

Value	Label	Frequency	Text
1.	True	51
0.	False	1640

Summary Statistics: Max. 1.0; Valid 1691.0; StDev 0.17107709063601031; Mean 0.030159668835008813; Min. 0.0

Variable Format: numeric

Notes: UNF:6:Q3jI7qQi8dmaLbc/ELqb3g==

demo_hear_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:KXkgJ22V9d34c2Ie3mrHdw==

med_alstype

f11558020 Location:

Value	Label	Frequency
4.	Prefer not to answer	18
2.	Familial (meaning at least one family member was diagnosed with ALS)	247
1.	Sporadic (meaning the cause is unknown)	1956
3.	Do not know	213

Summary Statistics: Max. 4.0; Min. 1.0; Mean 1.2986852917009026; Valid 2434.0; StDev 0.6550119124092718

Variable Format: numeric

Notes: UNF:6:6zFqMNuii1JrJp+tAHpCEQ==

med_genetest

f11558020 Location:

Value	Label	Frequency
4.	Yes, both clinical and research testing	270
3.	Yes, only research testing (as part of a clinical trial or research study)	214
2.	Yes, only clinical testing (billed to insurance or paid for out-of-pocket)	647
5.	Yes, Do not remember what type of testing	293
6.	Do not know	130
1.	No	786
7.	Prefer not to answer	8
8.	Yes, only clinical testing (ordered by you or your doctor)	86

Summary Statistics: StDev 1.877213108697424; Mean 2.790057518488087; Min. 1.0; Valid 2434.0; Max. 8.0

Variable Format: numeric

Notes: UNF:6:Q2fs5GR98/Ncfqtr/hNYgA==

med_geneinterest

f11558020 Location:

Value	Label	Frequency
3.	Prefer not to answer	67
1.	No	361
2.	Yes	409

Summary Statistics: Max. 3.0; Valid 837.0; StDev 0.6232450795485306; Min. 1.0; Mean 1.648745519713261

Variable Format: numeric

Notes: UNF:6:GyB/vAe5G7SjNa8ouB5oIA==

med_onset_location

f11558020 Location:

Value	Label	Frequency
1.	Bulbar (tongue, face, speech, or swallow)	531
6.	Prefer not to answer	11
4.	Multiple site onset	163
5.	Do not know	23
2.	Upper limb (hand or arm)	771
3.	Lower limb (foot or leg)	934

Summary Statistics: Mean 2.346074804767777; StDev 0.9529656390471605; Min. 1.0; Max. 6.0; Valid 2433.0

Variable Format: numeric

Notes: UNF:6:khdAbFw41yQrpBAAs2YOgA==

med_responder_onset

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1175
1.	True	2427

Summary Statistics: StDev 0.4688893909511834; Max. 1.0; Mean 0.6737923375902368; Min. 0.0; Valid 3602.0;

Variable Format: numeric

Notes: UNF:6:7SZn75AIpI5tB6U8K81hfA==

med_onset_datetime

f11558020 Location:

Summary Statistics: StDev 6.3004421736299685; Min. 1943.0; Valid 2215.0; Max. 2024.0; Mean 2018.1083521444696

Variable Format: numeric

Notes: UNF:6:46QZ1rerGYQHXLDXZWb8zw==

med_onset_pnta

f11558020 Location:

Value	Label	Frequency	Text
0.	False	2400
1.	True	27

Summary Statistics: Max. 1.0; Min. 0.0; Mean 0.011124845488257077; StDev 0.10490766397338601; Valid 2427.0

Variable Format: numeric

Notes: UNF:6:tUArYVwzZ5tZMCc/wgihJQ==

med_onset_dk

f11558020 Location:

Value	Label	Frequency	Text
0.	False	2257
1.	True	170

Summary Statistics: Min. 0.0; Mean 0.07004532344458186; Max. 1.0; StDev 0.2552759809877537; Valid 2427.0

Variable Format: numeric

Notes: UNF:6:ucQBcfx6TiZkGxSutDgmGA==

med_responder_diag

f11558020 Location:

Value	Label	Frequency	Text
1.	True	2425
0.	False	1177

Summary Statistics: Mean 0.673237090505279; Valid 3602.0; Min. 0.0; Max. 1.0; StDev 0.4690948747686569

Variable Format: numeric

Notes: UNF:6:dVSEZpWsRZVKCHOpw/SM7w==

med_diag_datetime

f11558020 Location:

Summary Statistics: Valid 2315.0; Mean 2019.7753779697625; Max. 2024.0; Min. 1951.0; StDev 5.225643031493872;

Variable Format: numeric

Notes: UNF:6:5bknb7g0f81U0GKMRbetsg==

med_diag_pnta

f11558020 Location:

Value	Label	Frequency	Text
1.	True	22
0.	False	2403

Summary Statistics: Mean 0.009072164948453587; Valid 2425.0; StDev 0.09483443182746851; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:uhi/2jouMHMTJQ3SB/KGrw==

med_diag_dk

f11558020 Location:

Value	Label	Frequency	Text
0.	False	2354
1.	True	71

Summary Statistics: StDev 0.1686204423984179; Min. 0.0; Valid 2425.0; Max. 1.0; Mean 0.02927835051546393;

Variable Format: numeric

Notes: UNF:6:RI30egb9+zuk7kqb260Jnw==

med_timetodiag

f11558020 Location:

Summary Statistics: Mean 21.51150775011743; Valid 2129.0; Min. 0.0; Max. 702.0; StDev 40.21337571622677;

Variable Format: numeric

Notes: UNF:6:jGLTqNc+aAgMycNDooz1Ug==

med_timetodiag_ord

f11558020 Location:

Value	Label	Frequency
4.	9-12 Months	289
2.	4-6 Months	213
8.	4-5 Years	55
9.	5+ Years	118
7.	3-4 Years	118
6.	2-3 Years	220
1.	0-3 Months	225
5.	1-2 Years	570
3.	6-9 Months	321

Summary Statistics: Min. 1.0; StDev 2.087644963710698; Max. 9.0; Mean 4.353217472992016; Valid 2129.0

Variable Format: numeric

Notes: UNF:6:IGudhSCMg55HIcDvfd8+Og==

inc_prediag

f11558020 Location:

Value	Label	Frequency
1.	Less than $20,000	75
8.	Prefer not to answer	250
2.	Between $20,000 and $34,999	164
5.	Between $75,000 and $99,999	391
6.	Between $100,000 and $150,000	505
4.	Between $50,000 and $74,999	392
7.	More than $150,000	440
3.	Between $35,000 and $49,999	203

Summary Statistics: Valid 2420.0; StDev 1.8492439933995806; Max. 8.0; Min. 1.0; Mean 5.225206611570248

Variable Format: numeric

Notes: UNF:6:CY3ONrIfKUvi2Pe0RE3lNQ==

inc_current

f11558020 Location:

Value	Label	Frequency
5.	Between $75,000 and $99,999	316
8.	Prefer not to answer	306
4.	Between $50,000 and $74,999	379
1.	Less than $20,000	220
7.	More than $150,000	259
2.	Between $20,000 and $34,999	297
6.	Between $100,000 and $150,000	352
3.	Between $35,000 and $49,999	289

Summary Statistics: Mean 4.611248966087676; StDev 2.1817096183879956; Valid 2418.0; Max. 8.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:blJw48U+Yz1U2hFNZKIVRw==

emp_prediag

f11558020 Location:

Value	Label	Frequency
2.	Employed part time	155
5.	Student	11
11.	Self-Employed	22
9.	Other, please specify	8
8.	Unable to work due to other reason, please specify	9
4.	Homemaker	52
3.	Unemployed	24
13.	Deceased	0
7.	Unable to work due to disability	83
12.	Unable to work	8
6.	Retired	688
1.	Employed full time	1356
10.	Prefer not to answer	6

Summary Statistics: StDev 2.5754151003144496; Valid 2422.0; Min. 1.0; Mean 2.9942196531791945; Max. 12.0;

Variable Format: numeric

Notes: UNF:6:XB9zzb8ZIA3uHsP3/GJqBQ==

emp_prediag_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:Ph1apC2NCSjYpmsFXcrsoQ==

emp_prediag_unable_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:ETJclolIIlDruNI2t7Dqqg==

emp_current

f11558020 Location:

Value	Label	Frequency
13.	Deceased	8
3.	Unemployed	77
8.	Unable to work due to other reason, please specify	13
7.	Unable to work due to disability	728
10.	Prefer not to answer	10
1.	Employed full time	303
5.	Student	2
11.	Self-Employed	10
9.	Other, please specify	8
6.	Retired	1028
4.	Homemaker	23
12.	Unable to work	125
2.	Employed part time	87

Summary Statistics: Max. 13.0; Valid 2422.0; StDev 2.556068412536318; Min. 1.0; Mean 5.806771263418656

Variable Format: numeric

Notes: UNF:6:s05cqlpKf4qwzBHdi3UyPw==

emp_current_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:RXIUefe8svC+wpWEVI1CQA==

emp_current_unable_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:N2kJChe5pbqLgBZPcktNJA==

lsit_responder

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1184
1.	True	2418

Summary Statistics: Max. 1.0; StDev 0.469808191210239; Valid 3602.0; Min. 0.0; Mean 0.6712937257079497;

Variable Format: numeric

Notes: UNF:6:8e9icpp/IpzPlIVJgt2qUA==

lsit_nocare

f11558020 Location:

Value	Label	Frequency	Text
1.	True	721
0.	False	1697

Summary Statistics: Min. 0.0; Mean 0.2981803143093461; Valid 2418.0; StDev 0.45755370888844565; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:aeA5dQA7Jz4BCUYAy/ivJA==

lsit_carevisit

f11558020 Location:

Value	Label	Frequency	Text
0.	False	2013
1.	True	405

Summary Statistics: Max. 1.0; StDev 0.3734933946523903; Min. 0.0; Valid 2418.0; Mean 0.16749379652605464

Variable Format: numeric

Notes: UNF:6:Us2Uh9/gLgzNopYzR2opeQ==

lsit_sharehome

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1136
1.	True	1282

Summary Statistics: Valid 2418.0; StDev 0.4991909517668463; Min. 0.0; Mean 0.5301902398676603; Max. 1.0

Variable Format: numeric

Notes: UNF:6:aTBK6+lORunKlXQ0lSa8Sg==

lsit_facility

f11558020 Location:

Value	Label	Frequency	Text
1.	True	56
0.	False	2362

Summary Statistics: Max. 1.0; Min. 0.0; Valid 2418.0; StDev 0.15044144170158127; Mean 0.023159636062861807

Variable Format: numeric

Notes: UNF:6:CD9W5xNrmSY9APnnKCUFDA==

lsit_living_other

f11558020 Location:

Value	Label	Frequency	Text
1.	True	126
0.	False	2292

Summary Statistics: Valid 2418.0; StDev 0.22229316314991546; Max. 1.0; Mean 0.0521091811414391; Min. 0.0

Variable Format: numeric

Notes: UNF:6:sEsxPSZpf1XZKlpgqdReVQ==

lsit_living_pnta

f11558020 Location:

Value	Label	Frequency	Text
1.	True	11
0.	False	2407

Summary Statistics: StDev 0.06730819034860741; Mean 0.004549214226633532; Valid 2418.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:1xXvR5pCETk598J+l8B4jQ==

lsit_living_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:T5dJeRsAzvUwYw3pZvfIuw==

med_physician_type

f11558020 Location:

Value	Label	Frequency
5.	Do not know	13
2.	General or Community Neurologist	481
6.	Prefer not to answer	3
1.	Primary Care Physician	30
3.	ALS Clinic or Neurologist specializing in ALS	1480
4.	Other, please specify	32

Summary Statistics: StDev 0.5434102921287804; Min. 1.0; Valid 2039.0; Max. 6.0; Mean 2.767533104462973;

Variable Format: numeric

Notes: UNF:6:PcqzNLl46SXIu5jGVGPy9A==

med_physician_type_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:7IlV3p/pg7BQ6ODNLL2b4Q==

med_mtd_clinic

f11558020 Location:

Value	Label	Frequency
3.	Prefer not to answer	15
1.	Yes	2101
2.	No	309

Summary Statistics: Valid 2425.0; StDev 0.3642490222488622; Mean 1.1397938144329893; Max. 3.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:sPgQM2RNOsKYYJb4LLae9A==

med_commute_clinic

f11558020 Location:

Value	Label	Frequency
3.	41 to 60 miles	249
6.	Over 100 miles	325
7.	Do not know	8
4.	61 to 80 miles	175
2.	21 to 40 miles	509
5.	81 to 100 miles	157
1.	Under 20 miles	674
8.	Prefer not to answer	4

Summary Statistics: StDev 1.8394686668478917; Valid 2101.0; Min. 1.0; Max. 8.0; Mean 2.837696335078535

Variable Format: numeric

Notes: UNF:6:gKfRV8PeR1SkN71GzlaiXw==

ins_responder

f11558020 Location:

Value	Label	Frequency	Text
1.	True	2408
0.	False	1194

Summary Statistics: Mean 0.6685174902831706; Min. 0.0; Valid 3602.0; StDev 0.4708114213201154; Max. 1.0

Variable Format: numeric

Notes: UNF:6:0UmqzdVaxSwwr3ZjfUQa2Q==

ins_medicare

f11558020 Location:

Value	Label	Frequency	Text
0.	False	762
1.	True	1646

Summary Statistics: Mean 0.6835548172757469; Valid 2408.0; Max. 1.0; Min. 0.0; StDev 0.4651854416512602;

Variable Format: numeric

Notes: UNF:6:LTKtp9iHCPH8dDkGyeUAhQ==

ins_va

f11558020 Location:

Value	Label	Frequency	Text
1.	True	206
0.	False	2202

Summary Statistics: StDev 0.279753791399201; Mean 0.0855481727574751; Valid 2408.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:bmrrvSsCjJVbeg36IOvHMA==

ins_tricare

f11558020 Location:

Value	Label	Frequency	Text
1.	True	79
0.	False	2329

Summary Statistics: Mean 0.032807308970099876; Max. 1.0; Min. 0.0; StDev 0.1781689429839589; Valid 2408.0

Variable Format: numeric

Notes: UNF:6:QTBRf9cZ0Lwt6QR/NFPg9Q==

ins_medicaid

f11558020 Location:

Value	Label	Frequency	Text
1.	True	197
0.	False	2211

Summary Statistics: Valid 2408.0; Min. 0.0; Mean 0.08181063122923586; StDev 0.2741329236800752; Max. 1.0

Variable Format: numeric

Notes: UNF:6:lDXDj91bIq53N4TUHNUPuw==

ins_employer

f11558020 Location:

Value	Label	Frequency	Text
1.	True	783
0.	False	1625

Summary Statistics: Min. 0.0; Mean 0.3251661129568102; Max. 1.0; StDev 0.4685341785910808; Valid 2408.0

Variable Format: numeric

Notes: UNF:6:72408rupIjkZOrUxvl345Q==

ins_private

f11558020 Location:

Value	Label	Frequency	Text
1.	True	472
0.	False	1936

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.3970611438593834; Mean 0.19601328903654486; Valid 2408.0

Variable Format: numeric

Notes: UNF:6:0f64PeEYUHvL4b5zZiLWvQ==

ins_tribal

f11558020 Location:

Value	Label	Frequency	Text
0.	False	2405
1.	True	3

Summary Statistics: StDev 0.035281893222929114; Valid 2408.0; Max. 1.0; Mean 0.001245847176079746; Min. 0.0

Variable Format: numeric

Notes: UNF:6:xfZ5K3iszgy3Ozny3zwCow==

ins_other

f11558020 Location:

Value	Label	Frequency	Text
1.	True	120
0.	False	2288

Summary Statistics: Valid 2408.0; Mean 0.04983388704318931; Min. 0.0; StDev 0.21764683028140247; Max. 1.0

Variable Format: numeric

Notes: UNF:6:jIJhTivgBiyyQzCCSZCbWA==

ins_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:zJ387guP6r+b3kUNQYTTlQ==

ins_none

f11558020 Location:

Value	Label	Frequency	Text
1.	True	10
0.	False	2398

Summary Statistics: StDev 0.06432181682743576; Valid 2408.0; Max. 1.0; Min. 0.0; Mean 0.004152823920265777;

Variable Format: numeric

Notes: UNF:6:HDxSyUMjRRpqqDVJ2sTE4g==

ins_dk

f11558020 Location:

Value	Label	Frequency	Text
1.	True	10
0.	False	2398

Summary Statistics: Min. 0.0; Valid 2408.0; Max. 1.0; Mean 0.00415282392026581; StDev 0.06432181682743585;

Variable Format: numeric

Notes: UNF:6:Swy/6DWhz/CoDxZt07G00g==

ins_pnta

f11558020 Location:

Value	Label	Frequency	Text
1.	True	0
0.	False	0

Summary Statistics: Mean NaN; StDev NaN; Valid 0.0; Max. NaN; Min. NaN;

Variable Format: numeric

Notes: UNF:6:XOsRL4JZo8EB1Xl/zRRrDg==

insmc_responder

f11558020 Location:

Value	Label	Frequency	Text
1.	True	1353
0.	False	1063

Summary Statistics: Valid 2416.0; StDev 0.49648770491689254; Max. 1.0; Min. 0.0; Mean 0.5600165562913916

Variable Format: numeric

Notes: UNF:6:MFRUr3ZR5LLnnkXnqooIVg==

insmc_feeforservice

f11558020 Location:

Value	Label	Frequency	Text
1.	True	963
0.	False	390

Summary Statistics: Valid 1353.0; Min. 0.0; Mean 0.7117516629711756; Max. 1.0; StDev 0.4531147533497649

Variable Format: numeric

Notes: UNF:6:D3olmUzyfbbpSj6zZPWfxA==

insmc_partd

f11558020 Location:

Value	Label	Frequency	Text
0.	False	894
1.	True	460

Summary Statistics: Valid 1354.0; Min. 0.0; Max. 1.0; Mean 0.3397341211225995; StDev 0.4737938779580692

Variable Format: numeric

Notes: UNF:6:F/cDa7AZheXW4FgqX3/UVw==

insmc_supplement

f11558020 Location:

Value	Label	Frequency	Text
0.	False	949
1.	True	414

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.4600412714476048; Valid 1363.0; Mean 0.30374174614820265

Variable Format: numeric

Notes: UNF:6:m/65WqDde3OLPH0yr/+Hpg==

insmc_advantage

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1001
1.	True	361

Summary Statistics: Max. 1.0; Mean 0.2650513950073422; StDev 0.4415226862134169; Valid 1362.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:BGNGUm9ef3I1yM25SlK2xg==

insmc_dk

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1284
1.	True	69

Summary Statistics: Min. 0.0; Valid 1353.0; Mean 0.05099778270509994; Max. 1.0; StDev 0.22007454525331557;

Variable Format: numeric

Notes: UNF:6:q+AdQypgXh0hw3nM4dIQIQ==

insmc_pnta

f11558020 Location:

Value	Label	Frequency	Text
0.	False	1350
1.	True	3

Summary Statistics: Valid 1353.0; Max. 1.0; Min. 0.0; StDev 0.04705331952349396; Mean 0.0022172949002217447

Variable Format: numeric

Notes: UNF:6:RT8fz9+kJymHNcy6HQBwlA==

ccg_professional

f11558020 Location:

Value	Label	Frequency
1.	Yes	100
2.	No	1372
3.	Prefer not to answer	1

Summary Statistics: Min. 1.0; Max. 3.0; StDev 0.2531677462285658; Mean 1.9327902240325865; Valid 1473.0

Variable Format: numeric

Notes: UNF:6:TqadBrqsa9SATjS9svp1og==

ccg_empcurrent

f11558020 Location:

Value	Label	Frequency
13.	Deceased	0
10.	Prefer not to answer	5
6.	Retired	223
7.	Unable to work due to disability	1
2.	Employed part time	54
11.	Self-Employed	5
1.	Employed full time	228
8.	Unable to work due to other reason, please specify	0
9.	Other, please specify	8
12.	Unable to work	14
5.	Student	4
4.	Homemaker	32
3.	Unemployed	25

Summary Statistics: Max. 12.0; Min. 1.0; Valid 599.0; StDev 2.7983884740133167; Mean 3.754590984974958

Variable Format: numeric

Notes: UNF:6:eJi/QH4iR10IprkWB7QZHg==

ccg_empcurrent_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:w/wdsZCJ0hvGObMOHJRdvw==

ccg_empcurrent_unable_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:5vDL/tsvM4eiqf0UvabFmQ==

ccg_living

f11558020 Location:

Value	Label	Frequency
1.	I do not live with the person I care for	102
3.	Other, please specify	38
5.	I share a home with the person I care for	273
4.	Prefer not to answer	4
2.	I live with the person I care for	244

Summary Statistics: Valid 661.0; StDev 1.6200730491388107; Mean 3.154311649016645; Min. 1.0; Max. 5.0;

Variable Format: numeric

Notes: UNF:6:mkvERWGPKJm6CqrltYeiUQ==

ccg_living_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:0y0SF7TMI/v0rbwmxQh84Q==

ccg_inc_prediag

f11558020 Location:

Value	Label	Frequency
6.	Between $100,000 and $150,000	14
5.	Between $75,000 and $99,999	9
1.	Less than $20,000	2
4.	Between $50,000 and $74,999	14
3.	Between $35,000 and $49,999	2
2.	Between $20,000 and $34,999	7
7.	More than $150,000	13
8.	Prefer not to answer	14

Summary Statistics: Min. 1.0; Valid 75.0; Max. 8.0; StDev 1.9887068549575007; Mean 5.466666666666667

Variable Format: numeric

Notes: UNF:6:K9mldDhUt7fd4ZJT4ylXww==

ccg_inc_current

f11558020 Location:

Value	Label	Frequency
7.	More than $150,000	122
1.	Less than $20,000	60
6.	Between $100,000 and $150,000	140
3.	Between $35,000 and $49,999	108
8.	Prefer not to answer	201
2.	Between $20,000 and $34,999	95
5.	Between $75,000 and $99,999	142
4.	Between $50,000 and $74,999	158

Summary Statistics: Mean 5.0857699805068215; Min. 1.0; Valid 1026.0; Max. 8.0; StDev 2.171759372583727

Variable Format: numeric

Notes: UNF:6:IYnNXtEK+NM78TPpTOcFLA==

pcg_lastcare

f11558020 Location:

Value	Label	Frequency
1.	Less than 1 year ago	118
7.	Other	0
6.	More than 20 years ago	49
2.	1 to 5 years ago	354
3.	6 to 10 years ago	131
8.	Prefer not to answer	1
5.	16 to 20 years ago	32
4.	11 to 15 years ago	83

Summary Statistics: Min. 1.0; Valid 768.0; StDev 1.3475257548704267; Mean 2.62109375; Max. 8.0

Variable Format: numeric

Notes: UNF:6:YqdL0PpSF5BF0hJXSTiCEQ==

pcg_lastcare_dk

f11558020 Location:

Value	Label	Frequency	Text
0.	False	0
1.	True	5

Summary Statistics: StDev 0.0; Max. 1.0; Mean 1.0; Valid 5.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:UaoihOlnJBuDnXA0rtedtw==

pcg_lastcare_pnta

f11558020 Location:

Value	Label	Frequency	Text
1.	True	0
0.	False	0

Summary Statistics: Min. NaN; Valid 0.0; Mean NaN; StDev NaN; Max. NaN

Variable Format: numeric

Notes: UNF:6:XOsRL4JZo8EB1Xl/zRRrDg==

pcg_professional

f11558020 Location:

Value	Label	Frequency
2.	No	346
1.	Yes	19
3.	Prefer not to answer	0

Summary Statistics: Mean 1.9479452054794522; Min. 1.0; Valid 365.0; Max. 2.0; StDev 0.22244247869948638

Variable Format: numeric

Notes: UNF:6:eP/bzxZ9OePLmSGHGnmo9A==

pcg_empcurrent

f11558020 Location:

Value	Label	Frequency
4.	Homemaker	13
3.	Unemployed	10
6.	Retired	142
5.	Student	8
2.	Employed part time	37
8.	Unable to work due to other reason, please specify	0
13.	Deceased	0
7.	Unable to work due to disability	0
9.	Other, please specify	1
1.	Employed full time	143
12.	Unable to work	4
10.	Prefer not to answer	3
11.	Self-Employed	4

Summary Statistics: Min. 1.0; Valid 365.0; Max. 12.0; Mean 3.6219178082191776; StDev 2.6487736419733476

Variable Format: numeric

Notes: UNF:6:+lw053g3v18VC5p68eWjOg==

pcg_empcurrent_oe

f11558020 Location:

Variable Format: character

Notes: UNF:6:/W21m9EnG8PyAjercrgUNQ==

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