ALS Focus Wave 6 – Insurance and Payment for ALS Care Survey (doi:10.7910/DVN/ERQEZK)

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Part 1: Document Description
Part 2: Study Description
Part 3: Data Files Description
Part 4: Variable Description
Part 5: Other Study-Related Materials
Entire Codebook

Document Description

Citation

Title:

ALS Focus Wave 6 – Insurance and Payment for ALS Care Survey

Identification Number:

doi:10.7910/DVN/ERQEZK

Distributor:

Harvard Dataverse

Date of Distribution:

2025-08-01

Version:

1

Bibliographic Citation:

The ALS Association, 2025, "ALS Focus Wave 6 – Insurance and Payment for ALS Care Survey", https://doi.org/10.7910/DVN/ERQEZK, Harvard Dataverse, V1, UNF:6:JuOada8YJ8PUPWJI76Kfsw== [fileUNF]

Study Description

Citation

Title:

ALS Focus Wave 6 – Insurance and Payment for ALS Care Survey

Identification Number:

doi:10.7910/DVN/ERQEZK

Authoring Entity:

The ALS Association

Distributor:

Harvard Dataverse

Access Authority:

Sherman, Alexander

Depositor:

Katsovskiy, Igor

Date of Deposit:

2025-08-01

Holdings Information:

https://doi.org/10.7910/DVN/ERQEZK

Study Scope

Keywords:

Medicine, Health and Life Sciences, ALS, Survey, ALS Focus, Insurance, Access, Claim, Denial, Prior Authorization, Appeal, Cost, Care, Treatment, Demographics, Disease history, Health status

Abstract:

The NeuroVERSE record contains the following files: <OL> <LI>ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions.</LI> <LI>ALSFocus_InsuranceAndPayment_Survey_Public – ALS Focus Insurance and Payment for ALS Care Survey written questions.</LI> <LI>ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions.</LI> <LI>ALSFocus_Demographics_Methodologies_Public – ALS Focus Demographics Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_InsuranceAndPayments_Methodologies_Public – ALS Focus Insurance and Payment for ALS Care Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_Demograhics_Dictionary – ALS Focus Demographics Survey data dictionary.</LI> <LI>ALSFocus_InsuranceAndPayments_Dictionary – ALS Focus Insurance and Payment for ALS Care (and Health Status Survey) data dictionary.</LI> <LI>ALSFocus_Demographics_Public_Stata – ALS Focus Demographics Survey data in Stata (.dta) format. </LI> <LI>ALSFocus_InsuranceAndPayments_Public_Stata – ALS Focus Insurance and Payment for ALS Care Survey data in Stata (.dta) format.</LI> </OL>

Methodology and Processing

Sources Statement

Data Access

Restrictions:

The Amyotrophic Lateral Sclerosis Association (“The Association”) grants a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (“Secondary Analyses”). Data shall not be used for any purpose other than Secondary Analyses. Data Requestor shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual.

Access Authority:

Sarah Parvanta ALSFocus@als.org 202-464-8847

Citation Requirement:

The Association must be acknowledged as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data, and a link to the Direct Object Identifier (DOI) must be included in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse.

Disclaimer:

The Association reserves the right to withhold, remove, and/or discard Data from the Dataverse without notice to You. Except to the extent prohibited by law, You assume all liability for damages which may arise from Your use, storage, disclosure, or disposal of Data. The Association will not be liable to You for any loss, claim, or demand You make, or made against You by any other party, due to or arising from the use of Data by You, except to the extent permitted by law when caused by the gross negligence or willful misconduct of The Association.

Notes:

<p><b>DATA SHARING TERMS</b></p> <p>These Data Sharing Terms (&quot;Terms&quot;) are effective as of the date of Your acceptance (&quot;Effective Date&quot;) and are between you (&quot;You&quot; or &quot;Your&quot;) and The Amyotrophic Lateral Sclerosis Association (&quot;The Association&quot;), which specifically states the license terms, liability, limitations and warranty relating to Your use of the ALS Focus Data and corresponding Data Dictionary (&quot;Data&quot;).</p> <p><b>I. Limited Rights of Use and Restrictions</b></p> <p><b>a.</b> By accepting these Terms, The Association grants You a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (&quot;Secondary Analyses&quot;). You agree that all rights, titles, and interests relating to Data belong to The Association, or to the owner of Data you use. Furthermore, you agree that you do not assert any title or interest in Data other than the rights and license granted in these Terms. </p> <p><b>b.</b> You agree that you do not have any rights to copyright, rights to trademark ownership or patents, or any other rights or licenses that belong either to The Association, or to the owner of Data, other than those given in these Terms. </p> <p><b>c.</b> Data shall not be used for any purpose other than Secondary Analyses. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual. </p> <p><b>d.</b> Except as set forth in Section III.a., You agree that You will be the only one to retain control over Data and shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. </p> <p><b>e.</b> You agree to use Data in compliance with all applicable laws, rules, and regulations, as well as all professional standards applicable to such research, including the completion of any Institutional Review Board (IRB) or ethics review or approval that may be required. It is Your responsibility to determine whether IRB or ethics review or approval is needed and what laws, rules, regulations, and professional standards apply to You. </p> <p><b>f.</b> You shall promptly report to The Association any use or disclosure of Data not provided for by these Terms of which You become aware. </p> <p><b>g.</b> You are not authorized in any manner to use The Association's name, logos, web graphics, or trademarks without express written permission from The Association except as permitted under Section III below. </p> <p><b>II. Termination of these Terms</b></p> <p><b>a.</b> You agree that The Association may terminate these Terms at any time without notice if Data were used by you in violation of any law or of any terms or limitations imposed by these Terms. </p> <p><b>b.</b> If these Terms are terminated, the license granted under these Terms will be revoked, and you must either destroy Data or return to The Association. </p> <p><b>III. Publication and Citation Requirements</b></p> <p>You are encouraged to publish and disseminate discoveries derived from Data. You must acknowledge The Association as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data and include a link to the Direct Object Identifier (DOI) in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse. </p> <p><b>IV. Acceptance of Risk</b> <p>YOU AGREE THAT USING DATA IS ENTIRELY AT YOUR OWN RISK. DATA ARE PROVIDED &quot;AS IS&quot; WITHOUT ANY WARRANTY OR FITNESS FOR ANY PURPOSE WHATSOEVER, EITHER EXPRESSLY OR IMPLIED OR THAT THE USE OF DATA WILL NOT INFRINGE ANY PATENT, COPYRIGHT, TRADEMARK, OR OTHER PROPRIETARY RIGHTS. THE ASSOCIATION DISCLAIMS ALL AND ANY RESPONSIBILITY FOR WARRANTY OR FITNESS FOR A PARTICULAR PURPOSE. YOU AGREE AND UNDERSTAND THAT DATA MAY CONTAIN ERRORS, OMISSIONS AND/OR INACCURACIES. NOTWITHSTANDING, THE ASSOCIATION, TO THE BEST OF ITS KNOWLEDGE AND BELIEF, HAS THE RIGHT AND AUTHORITY TO PROVIDE DATA TO YOU FOR SECONDARY ANALYSES. </p> <p><b>V. Indemnity</b><p> <p> You agree to indemnify, defend and hold blameless The Association, its officers, directors, employees, agents, successors, assigns, contractors, and grantees (the &quot;Association Indemnitees&quot;) against any and all damages or loss incurred by you, including without limitation any legal fees, as a result of or in connection with Your use of Data. </p>

Other Study Description Materials

File Description--f11845142

File: ALSFocus_Demographics_Public_Stata.tab

  • Number of cases: 3602

  • No. of variables per record: 114

  • Type of File: text/tab-separated-values

Notes:

UNF:6:chcTTpAZu00rcWGE8R5bFQ==

Focus Demographics Survey data in Stata (.dta) format.

File Description--f11845135

File: ALSFocus_InsuranceAndPayments_Public_Stata.tab

  • Number of cases: 194

  • No. of variables per record: 242

  • Type of File: text/tab-separated-values

Notes:

UNF:6:LV/8PFJdQjDJiiGxeC4lug==

ALS Focus Insurance and Payment for ALS Care Survey data in Stata (.dta) format.

Variable Description

List of Variables:

Variables

randomid

f11845142 Location:

Variable Format: character

Notes: UNF:6:BipDr+IKY0LKN1VdHdiMoQ==

neurostamp

f11845142 Location:

Variable Format: character

Notes: UNF:6:sX3IyVyYCyxF6vBzzapXxQ==

group

f11845142 Location:

Variable Format: character

Notes: UNF:6:KkAsz4bnnPERqoG6ETy+Rg==

dyad_id

f11845142 Location:

Variable Format: character

Notes: UNF:6:28oVfF17UfFQjw8Ecd0Tgg==

screener_consent

f11845142 Location:

Value

Label

Frequency

Text

1.

True

1772

0.

False

0

Summary Statistics: StDev 0.0; Mean 1.0; Min. 1.0; Max. 1.0; Valid 1772.0;

Variable Format: numeric

Notes: UNF:6:LqiyVZ+7nyq2H2O1a9ncwQ==

screener_responder

f11845142 Location:

Value

Label

Frequency

Text

1.

True

2392

0.

False

24

Summary Statistics: Valid 2416.0; StDev 0.09919257762081614; Mean 0.990066225165563; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:8uP9q7Ty6Ck6QtXKiMHrqg==

screener_18plus

f11845142 Location:

Value

Label

Frequency

Text

0.

False

415

1.

True

1977

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.8265050167223997; StDev 0.37875380743942777; Valid 2392.0

Variable Format: numeric

Notes: UNF:6:DiCsJLh8Sh554xoxTjaymA==

screener_us

f11845142 Location:

Value

Label

Frequency

Text

0.

False

415

1.

True

1977

Summary Statistics: StDev 0.37875380743942777; Min. 0.0; Valid 2392.0; Max. 1.0; Mean 0.8265050167223997

Variable Format: numeric

Notes: UNF:6:DiCsJLh8Sh554xoxTjaymA==

screener_pals

f11845142 Location:

Value

Label

Frequency

Text

1.

True

2392

0.

False

0

Summary Statistics: Mean 1.0; StDev 0.0; Max. 1.0; Valid 2392.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:i6sSY2Oea1jgCuf4oPyG1g==

screener_caregiver

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1557

1.

True

835

Summary Statistics: Min. 0.0; Valid 2392.0; StDev 0.4767790547833928; Mean 0.3490802675585267; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:CR0MDVXAy6NkGILdufl8wg==

screener_pastcaregiver

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2011

1.

True

381

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.1592809364548502; StDev 0.3660143792388242; Valid 2392.0;

Variable Format: numeric

Notes: UNF:6:N1PnJUu3ryT86lnJRwvyVw==

screener_proxypals

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2166

1.

True

226

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.09448160535116741; StDev 0.2925587353516148; Valid 2392.0

Variable Format: numeric

Notes: UNF:6:nkMt/XJ1Kv9eU915kJ5xbw==

screener_caredforalso

f11845142 Location:

Value

Label

Frequency

Text

1.

True

437

0.

False

1955

Summary Statistics: Valid 2392.0; Max. 1.0; StDev 0.38649486091671936; Mean 0.18269230769230788; Min. 0.0

Variable Format: numeric

Notes: UNF:6:r13nTg4g2XWNILBEWj0c8Q==

screener_caregiveralso

f11845142 Location:

Value

Label

Frequency

Text

0.

False

922

1.

True

1470

Summary Statistics: Min. 0.0; StDev 0.48680356741444325; Mean 0.614548494983278; Valid 2392.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:4/ZKYyceg7asJXw9OWGirg==

screener_caregiverproxypals

f11845142 Location:

Value

Label

Frequency

Text

1.

True

401

0.

False

1991

Summary Statistics: Valid 2392.0; StDev 0.37362630126303953; Min. 0.0; Max. 1.0; Mean 0.1676421404682273;

Variable Format: numeric

Notes: UNF:6:6PrIbFyMxs5taluWI4Qpsg==

demo_age

f11845142 Location:

Value

Label

Frequency

Text

6.

65-74

1135

5.

55-64

1053

1.

18-24

31

3.

35-44

327

4.

45-54

516

9.

Unknown

2

7.

75 or older

410

8.

Other

1

2.

25-34

127

Summary Statistics: Valid 3602.0; Min. 1.0; Max. 9.0; Mean 5.0807884508606405; StDev 1.3180112761989584;

Variable Format: numeric

Notes: UNF:6:Mo13qpv/Oq5AdSrkHApYbQ==

demo_gender

f11845142 Location:

Value

Label

Frequency

Text

4.

Prefer to self-describe

1

5.

Prefer not to answer

11

3.

Non-binary/third gender

5

2.

Male

1474

1.

Female

2107

Summary Statistics: Mean 1.4255141745414142; Valid 3598.0; Max. 5.0; Min. 1.0; StDev 0.5344765857149681;

Variable Format: numeric

Notes: UNF:6:Qq0YX/TIZcM6/+Q4CavvYg==

demo_gender_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:Lp/WKARs0QFWxAx4dCFfBg==

demo_sex

f11845142 Location:

Value

Label

Frequency

Text

3.

Prefer not to answer

11

1.

Female

2112

2.

Male

1474

Summary Statistics: Min. 1.0; Mean 1.4159021406727816; Max. 3.0; StDev 0.4991122256368464; Valid 3597.0

Variable Format: numeric

Notes: UNF:6:i/qbzHWN7OvxR7BDe2IuUg==

demo_ethnicity

f11845142 Location:

Value

Label

Frequency

Text

2.

No

3418

3.

Prefer not to answer

31

1.

Yes

146

Summary Statistics: Max. 3.0; Mean 1.9680111265646731; Min. 1.0; Valid 3595.0; StDev 0.21960231139111716

Variable Format: numeric

Notes: UNF:6:jMxzjg4FLCo1D0XVV/JFoA==

demo_responder_race

f11845142 Location:

Value

Label

Frequency

Text

1.

True

3593

0.

False

9

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.04993056131632318; Mean 0.9975013881177124; Valid 3602.0

Variable Format: numeric

Notes: UNF:6:GOJ/8ANfmAx4kM4alwX9Qw==

demo_amerin_alaskan

f11845142 Location:

Value

Label

Frequency

Text

0.

False

3551

1.

True

42

Summary Statistics: Mean 0.011689396047870842; Valid 3593.0; StDev 0.10749869912455336; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:3pV2g6hivV/YDY4Hhf+XcA==

demo_asian

f11845142 Location:

Value

Label

Frequency

Text

0.

False

3539

1.

True

54

Summary Statistics: Max. 1.0; Mean 0.015029223490119691; StDev 0.12168593645183852; Valid 3593.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:YBmQ/kmwzQhetpONeUT9eA==

demo_black

f11845142 Location:

Value

Label

Frequency

Text

1.

True

117

0.

False

3476

Summary Statistics: StDev 0.17751540276755534; Max. 1.0; Mean 0.0325633175619257; Valid 3593.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:Hf9Zsr5Ht34SNpUhuBslXA==

demo_hawaii_pacific

f11845142 Location:

Value

Label

Frequency

Text

0.

False

3582

1.

True

11

Summary Statistics: Max. 1.0; StDev 0.0552538266384465; Valid 3593.0; Mean 0.003061508488728113; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:/wHvB6ZqrKWI5zVSFsEWLw==

demo_white

f11845142 Location:

Value

Label

Frequency

Text

1.

True

3356

0.

False

237

Summary Statistics: Min. 0.0; Max. 1.0; Valid 3593.0; StDev 0.24824949658679712; Mean 0.9340384080155862;

Variable Format: numeric

Notes: UNF:6:CcwV/ySxrHvJtQDpt69ZjA==

demo_race_pnta

f11845142 Location:

Value

Label

Frequency

Text

0.

False

3529

1.

True

64

Summary Statistics: Valid 3593.0; StDev 0.13228757141039693; Min. 0.0; Max. 1.0; Mean 0.017812413025327056;

Variable Format: numeric

Notes: UNF:6:QJBkBg5w5PFWoOvkJyNx6Q==

demo_veteran

f11845142 Location:

Value

Label

Frequency

Text

1.

Yes

403

2.

No

3175

3.

Prefer not to answer

15

Summary Statistics: Max. 3.0; Valid 3593.0; Mean 1.8920122460339552; Min. 1.0; StDev 0.32358168826650485

Variable Format: numeric

Notes: UNF:6:467gy7bHJoXouMAtWQSkzA==

demo_education

f11845142 Location:

Value

Label

Frequency

Text

2.

High school diploma or GED

313

1.

Some high school or less

33

6.

Prefer not to answer

13

3.

Some college or technical school

917

5.

Post graduate

1015

4.

College graduate

1301

Summary Statistics: Max. 6.0; Min. 1.0; StDev 0.9776737615646391; Mean 3.8326837416481054; Valid 3592.0

Variable Format: numeric

Notes: UNF:6:OCrtzbusn9tWb0667aCKNQ==

demo_language

f11845142 Location:

Value

Label

Frequency

Text

1.

English

3549

30.

Persian

0

17.

Marathi

0

26.

Punjabi

0

35.

Bilingual

4

22.

Arabic

0

23.

German

2

20.

French

0

25.

Javanese

0

3.

Prefer not to answer

9

14.

Japanese

1

10.

Hindi

0

32.

Hausa

0

9.

Spanish

17

24.

Urdu

0

2.

Other, please specify

4

8.

Wu

0

33.

Romanian

0

18.

Telugu

0

16.

Turkish

0

4.

Chinese

1

19.

Korean

1

7.

Cantonese

0

28.

Gujarati

0

34.

American Sign Language

1

29.

Iranian

0

31.

Bhojpuri

0

13.

Russian

0

5.

Mandarin

0

27.

Italian

0

11.

Portuguese

0

15.

Vietnamese

0

21.

Tamil

0

6.

Yue

0

12.

Bengali

0

Summary Statistics: Min. 1.0; Valid 3589.0; Mean 1.1128448035664529; Max. 35.0; StDev 1.5177597701138084

Variable Format: numeric

Notes: UNF:6:Vo8MoV/UTXnqwlNpEzZKhA==

demo_language_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:n5Fsa8m3VNFXbVOLH6Cr1w==

demo_urbanrural

f11845142 Location:

Value

Label

Frequency

Text

2.

Urban

1207

1.

Rural

2315

Summary Statistics: Mean 1.3427030096536061; Valid 3522.0; Max. 2.0; StDev 0.4746805581710908; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:0bI0DeBo8gPpOdf/IHvyhw==

demo_state

f11845142 Location:

Variable Format: character

Notes: UNF:6:G7cVIOaDllWkkg7TUgXw+g==

demo_marital

f11845142 Location:

Value

Label

Frequency

Text

3.

Divorced

297

5.

Separated

21

1.

Married

2402

7.

Prefer not to answer

32

2.

Living as married

81

6.

Single, never been married

278

4.

Widowed

478

Summary Statistics: StDev 1.6726503966847754; Valid 3589.0; Min. 1.0; Max. 7.0; Mean 2.0518250208971875

Variable Format: numeric

Notes: UNF:6:s7SwRzhMkzFeHgWcJcHkWQ==

demo_hear_responder

f11845142 Location:

Value

Label

Frequency

Text

1.

True

1691

0.

False

105

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.2346826916918369; Mean 0.9415367483296213; Valid 1796.0

Variable Format: numeric

Notes: UNF:6:BNAGEw+J1b2kG3pAbywUng==

demo_hear_family

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1609

1.

True

82

Summary Statistics: Valid 1691.0; Max. 1.0; StDev 0.2148670355907648; Mean 0.048492016558249605; Min. 0.0

Variable Format: numeric

Notes: UNF:6:PyEpt4YdZu/Xghmt9thuAA==

demo_hear_group

f11845142 Location:

Value

Label

Frequency

Text

1.

True

72

0.

False

1619

Summary Statistics: Min. 0.0; Mean 0.04257835600236554; Valid 1691.0; StDev 0.20196425714565555; Max. 1.0

Variable Format: numeric

Notes: UNF:6:Jpgsu450wB6h7OFrSr0UNA==

demo_hear_provider

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1583

1.

True

108

Summary Statistics: Min. 0.0; Valid 1691.0; Max. 1.0; Mean 0.06386753400354815; StDev 0.24458914509437288

Variable Format: numeric

Notes: UNF:6:aR+VoX7dSkKVtsNmrfQA9A==

demo_hear_web

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1547

1.

True

144

Summary Statistics: Mean 0.08515671200473118; Max. 1.0; Min. 0.0; StDev 0.27919732102201134; Valid 1691.0;

Variable Format: numeric

Notes: UNF:6:bEcl6TOhqxWgPYftNWUSGQ==

demo_hear_social

f11845142 Location:

Value

Label

Frequency

Text

1.

True

481

0.

False

1210

Summary Statistics: Valid 1691.0; Max. 1.0; Min. 0.0; StDev 0.4512841362216558; Mean 0.2844470727380247;

Variable Format: numeric

Notes: UNF:6:xcGBEWSarGWR5PHE54CpxQ==

demo_hear_email

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1572

1.

True

119

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.2558495134693318; Mean 0.07037256061502078; Valid 1691.0;

Variable Format: numeric

Notes: UNF:6:/7XYOP9641kvRSAQiFj3qw==

demo_hear_event

f11845142 Location:

Value

Label

Frequency

Text

0.

False

813

1.

True

878

Summary Statistics: StDev 0.4997782760478224; Mean 0.5192193968066235; Max. 1.0; Min. 0.0; Valid 1691.0;

Variable Format: numeric

Notes: UNF:6:mSnm12Pdir9VxhELw4RZ5A==

demo_hear_org

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1621

1.

True

70

Summary Statistics: Max. 1.0; Min. 0.0; Valid 1691.0; StDev 0.19926240664693895; Mean 0.04139562389118859;

Variable Format: numeric

Notes: UNF:6:Rlf8EXisvXD4q1CzpekuQw==

demo_hear_other

f11845142 Location:

Value

Label

Frequency

Text

1.

True

37

0.

False

1654

Summary Statistics: Max. 1.0; Valid 1691.0; StDev 0.1463367678581136; Min. 0.0; Mean 0.021880544056771162

Variable Format: numeric

Notes: UNF:6:qnQ+o1/CFpsCH6ZwLQ9VIg==

demo_hear_dk

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1640

1.

True

51

Summary Statistics: Min. 0.0; Mean 0.030159668835008813; Max. 1.0; StDev 0.17107709063601031; Valid 1691.0

Variable Format: numeric

Notes: UNF:6:Q3jI7qQi8dmaLbc/ELqb3g==

demo_hear_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:KXkgJ22V9d34c2Ie3mrHdw==

med_alstype

f11845142 Location:

Value

Label

Frequency

Text

1.

Sporadic (meaning the cause is unknown)

1956

2.

Familial (meaning at least one family member was diagnosed with ALS)

247

4.

Prefer not to answer

18

3.

Do not know

213

Summary Statistics: Mean 1.2986852917009026; StDev 0.6550119124092718; Min. 1.0; Valid 2434.0; Max. 4.0

Variable Format: numeric

Notes: UNF:6:6zFqMNuii1JrJp+tAHpCEQ==

med_genetest

f11845142 Location:

Value

Label

Frequency

Text

8.

Yes, only clinical testing (ordered by you or your doctor)

86

3.

Yes, only research testing (as part of a clinical trial or research study)

214

7.

Prefer not to answer

8

4.

Yes, both clinical and research testing

270

5.

Yes, Do not remember what type of testing

293

1.

No

786

6.

Do not know

130

2.

Yes, only clinical testing (billed to insurance or paid for out-of-pocket)

647

Summary Statistics: Max. 8.0; Min. 1.0; Valid 2434.0; Mean 2.790057518488087; StDev 1.877213108697424

Variable Format: numeric

Notes: UNF:6:Q2fs5GR98/Ncfqtr/hNYgA==

med_geneinterest

f11845142 Location:

Value

Label

Frequency

Text

1.

No

361

2.

Yes

409

3.

Prefer not to answer

67

Summary Statistics: Valid 837.0; Mean 1.648745519713261; Min. 1.0; Max. 3.0; StDev 0.6232450795485306;

Variable Format: numeric

Notes: UNF:6:GyB/vAe5G7SjNa8ouB5oIA==

med_onset_location

f11845142 Location:

Value

Label

Frequency

Text

5.

Do not know

23

2.

Upper limb (hand or arm)

771

6.

Prefer not to answer

11

4.

Multiple site onset

163

3.

Lower limb (foot or leg)

934

1.

Bulbar (tongue, face, speech, or swallow)

531

Summary Statistics: StDev 0.9529656390471605; Min. 1.0; Valid 2433.0; Max. 6.0; Mean 2.346074804767777;

Variable Format: numeric

Notes: UNF:6:khdAbFw41yQrpBAAs2YOgA==

med_responder_onset

f11845142 Location:

Value

Label

Frequency

Text

1.

True

2427

0.

False

1175

Summary Statistics: Valid 3602.0; Max. 1.0; Mean 0.6737923375902368; StDev 0.4688893909511834; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:7SZn75AIpI5tB6U8K81hfA==

med_onset_datetime

f11845142 Location:

Summary Statistics: Max. 2024.0; Mean 2018.1083521444696; StDev 6.3004421736299685; Min. 1943.0; Valid 2215.0

Variable Format: numeric

Notes: UNF:6:46QZ1rerGYQHXLDXZWb8zw==

med_onset_pnta

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2400

1.

True

27

Summary Statistics: Valid 2427.0; Min. 0.0; StDev 0.10490766397338601; Max. 1.0; Mean 0.011124845488257077

Variable Format: numeric

Notes: UNF:6:tUArYVwzZ5tZMCc/wgihJQ==

med_onset_dk

f11845142 Location:

Value

Label

Frequency

Text

1.

True

170

0.

False

2257

Summary Statistics: Valid 2427.0; StDev 0.2552759809877537; Max. 1.0; Min. 0.0; Mean 0.07004532344458186;

Variable Format: numeric

Notes: UNF:6:ucQBcfx6TiZkGxSutDgmGA==

med_responder_diag

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1177

1.

True

2425

Summary Statistics: Valid 3602.0; StDev 0.4690948747686569; Max. 1.0; Mean 0.673237090505279; Min. 0.0

Variable Format: numeric

Notes: UNF:6:dVSEZpWsRZVKCHOpw/SM7w==

med_diag_datetime

f11845142 Location:

Summary Statistics: Mean 2019.7753779697625; Min. 1951.0; StDev 5.225643031493872; Valid 2315.0; Max. 2024.0;

Variable Format: numeric

Notes: UNF:6:5bknb7g0f81U0GKMRbetsg==

med_diag_pnta

f11845142 Location:

Value

Label

Frequency

Text

1.

True

22

0.

False

2403

Summary Statistics: StDev 0.09483443182746851; Min. 0.0; Max. 1.0; Mean 0.009072164948453587; Valid 2425.0

Variable Format: numeric

Notes: UNF:6:uhi/2jouMHMTJQ3SB/KGrw==

med_diag_dk

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2354

1.

True

71

Summary Statistics: StDev 0.1686204423984179; Mean 0.02927835051546393; Valid 2425.0; Min. 0.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:RI30egb9+zuk7kqb260Jnw==

med_timetodiag

f11845142 Location:

Summary Statistics: Mean 21.51150775011743; Max. 702.0; StDev 40.21337571622677; Valid 2129.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:jGLTqNc+aAgMycNDooz1Ug==

med_timetodiag_ord

f11845142 Location:

Value

Label

Frequency

Text

5.

1-2 Years

570

7.

3-4 Years

118

1.

0-3 Months

225

4.

9-12 Months

289

8.

4-5 Years

55

2.

4-6 Months

213

9.

5+ Years

118

6.

2-3 Years

220

3.

6-9 Months

321

Summary Statistics: StDev 2.087644963710698; Mean 4.353217472992016; Max. 9.0; Valid 2129.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:IGudhSCMg55HIcDvfd8+Og==

inc_prediag

f11845142 Location:

Value

Label

Frequency

Text

1.

Less than $20,000

75

5.

Between $75,000 and $99,999

391

3.

Between $35,000 and $49,999

203

6.

Between $100,000 and $150,000

505

8.

Prefer not to answer

250

7.

More than $150,000

440

2.

Between $20,000 and $34,999

164

4.

Between $50,000 and $74,999

392

Summary Statistics: StDev 1.8492439933995806; Mean 5.225206611570248; Max. 8.0; Valid 2420.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:CY3ONrIfKUvi2Pe0RE3lNQ==

inc_current

f11845142 Location:

Value

Label

Frequency

Text

3.

Between $35,000 and $49,999

289

7.

More than $150,000

259

5.

Between $75,000 and $99,999

316

6.

Between $100,000 and $150,000

352

2.

Between $20,000 and $34,999

297

8.

Prefer not to answer

306

1.

Less than $20,000

220

4.

Between $50,000 and $74,999

379

Summary Statistics: Mean 4.611248966087676; StDev 2.1817096183879956; Max. 8.0; Min. 1.0; Valid 2418.0

Variable Format: numeric

Notes: UNF:6:blJw48U+Yz1U2hFNZKIVRw==

emp_prediag

f11845142 Location:

Value

Label

Frequency

Text

11.

Self-Employed

22

1.

Employed full time

1356

3.

Unemployed

24

2.

Employed part time

155

10.

Prefer not to answer

6

13.

Deceased

0

8.

Unable to work due to other reason, please specify

9

7.

Unable to work due to disability

83

9.

Other, please specify

8

4.

Homemaker

52

5.

Student

11

6.

Retired

688

12.

Unable to work

8

Summary Statistics: Max. 12.0; Mean 2.9942196531791945; StDev 2.5754151003144496; Min. 1.0; Valid 2422.0;

Variable Format: numeric

Notes: UNF:6:XB9zzb8ZIA3uHsP3/GJqBQ==

emp_prediag_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:Ph1apC2NCSjYpmsFXcrsoQ==

emp_prediag_unable_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:ETJclolIIlDruNI2t7Dqqg==

emp_current

f11845142 Location:

Value

Label

Frequency

Text

6.

Retired

1028

5.

Student

2

8.

Unable to work due to other reason, please specify

13

7.

Unable to work due to disability

728

11.

Self-Employed

10

10.

Prefer not to answer

10

3.

Unemployed

77

1.

Employed full time

303

12.

Unable to work

125

9.

Other, please specify

8

2.

Employed part time

87

13.

Deceased

8

4.

Homemaker

23

Summary Statistics: StDev 2.556068412536318; Max. 13.0; Valid 2422.0; Mean 5.806771263418656; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:s05cqlpKf4qwzBHdi3UyPw==

emp_current_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:RXIUefe8svC+wpWEVI1CQA==

emp_current_unable_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:N2kJChe5pbqLgBZPcktNJA==

lsit_responder

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1184

1.

True

2418

Summary Statistics: Min. 0.0; StDev 0.469808191210239; Mean 0.6712937257079497; Valid 3602.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:8e9icpp/IpzPlIVJgt2qUA==

lsit_nocare

f11845142 Location:

Value

Label

Frequency

Text

1.

True

721

0.

False

1697

Summary Statistics: Max. 1.0; Valid 2418.0; StDev 0.45755370888844565; Min. 0.0; Mean 0.2981803143093461

Variable Format: numeric

Notes: UNF:6:aeA5dQA7Jz4BCUYAy/ivJA==

lsit_carevisit

f11845142 Location:

Value

Label

Frequency

Text

1.

True

405

0.

False

2013

Summary Statistics: Valid 2418.0; Max. 1.0; Mean 0.16749379652605464; Min. 0.0; StDev 0.3734933946523903

Variable Format: numeric

Notes: UNF:6:Us2Uh9/gLgzNopYzR2opeQ==

lsit_sharehome

f11845142 Location:

Value

Label

Frequency

Text

1.

True

1282

0.

False

1136

Summary Statistics: Mean 0.5301902398676603; Min. 0.0; StDev 0.4991909517668463; Max. 1.0; Valid 2418.0;

Variable Format: numeric

Notes: UNF:6:aTBK6+lORunKlXQ0lSa8Sg==

lsit_facility

f11845142 Location:

Value

Label

Frequency

Text

1.

True

56

0.

False

2362

Summary Statistics: Valid 2418.0; Mean 0.023159636062861807; StDev 0.15044144170158127; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:CD9W5xNrmSY9APnnKCUFDA==

lsit_living_other

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2292

1.

True

126

Summary Statistics: Max. 1.0; Mean 0.0521091811414391; Valid 2418.0; StDev 0.22229316314991546; Min. 0.0

Variable Format: numeric

Notes: UNF:6:sEsxPSZpf1XZKlpgqdReVQ==

lsit_living_pnta

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2407

1.

True

11

Summary Statistics: Valid 2418.0; Max. 1.0; Mean 0.004549214226633532; Min. 0.0; StDev 0.06730819034860741;

Variable Format: numeric

Notes: UNF:6:1xXvR5pCETk598J+l8B4jQ==

lsit_living_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:T5dJeRsAzvUwYw3pZvfIuw==

med_physician_type

f11845142 Location:

Value

Label

Frequency

Text

2.

General or Community Neurologist

481

6.

Prefer not to answer

3

1.

Primary Care Physician

30

5.

Do not know

13

3.

ALS Clinic or Neurologist specializing in ALS

1480

4.

Other, please specify

32

Summary Statistics: Mean 2.767533104462973; Max. 6.0; StDev 0.5434102921287804; Valid 2039.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:PcqzNLl46SXIu5jGVGPy9A==

med_physician_type_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:7IlV3p/pg7BQ6ODNLL2b4Q==

med_mtd_clinic

f11845142 Location:

Value

Label

Frequency

Text

3.

Prefer not to answer

15

1.

Yes

2101

2.

No

309

Summary Statistics: StDev 0.3642490222488622; Mean 1.1397938144329893; Max. 3.0; Min. 1.0; Valid 2425.0

Variable Format: numeric

Notes: UNF:6:sPgQM2RNOsKYYJb4LLae9A==

med_commute_clinic

f11845142 Location:

Value

Label

Frequency

Text

2.

21 to 40 miles

509

7.

Do not know

8

5.

81 to 100 miles

157

3.

41 to 60 miles

249

4.

61 to 80 miles

175

6.

Over 100 miles

325

8.

Prefer not to answer

4

1.

Under 20 miles

674

Summary Statistics: Mean 2.837696335078535; Min. 1.0; Max. 8.0; Valid 2101.0; StDev 1.8394686668478917

Variable Format: numeric

Notes: UNF:6:gKfRV8PeR1SkN71GzlaiXw==

ins_responder

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1194

1.

True

2408

Summary Statistics: Mean 0.6685174902831706; StDev 0.4708114213201154; Max. 1.0; Valid 3602.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:0UmqzdVaxSwwr3ZjfUQa2Q==

ins_medicare

f11845142 Location:

Value

Label

Frequency

Text

0.

False

762

1.

True

1646

Summary Statistics: Mean 0.6835548172757469; Valid 2408.0; Max. 1.0; StDev 0.4651854416512602; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:LTKtp9iHCPH8dDkGyeUAhQ==

ins_va

f11845142 Location:

Value

Label

Frequency

Text

1.

True

206

0.

False

2202

Summary Statistics: Max. 1.0; Min. 0.0; Mean 0.0855481727574751; Valid 2408.0; StDev 0.279753791399201

Variable Format: numeric

Notes: UNF:6:bmrrvSsCjJVbeg36IOvHMA==

ins_tricare

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2329

1.

True

79

Summary Statistics: Mean 0.032807308970099876; Valid 2408.0; Max. 1.0; StDev 0.1781689429839589; Min. 0.0

Variable Format: numeric

Notes: UNF:6:QTBRf9cZ0Lwt6QR/NFPg9Q==

ins_medicaid

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2211

1.

True

197

Summary Statistics: Max. 1.0; Valid 2408.0; Mean 0.08181063122923586; Min. 0.0; StDev 0.2741329236800752;

Variable Format: numeric

Notes: UNF:6:lDXDj91bIq53N4TUHNUPuw==

ins_employer

f11845142 Location:

Value

Label

Frequency

Text

1.

True

783

0.

False

1625

Summary Statistics: Max. 1.0; Min. 0.0; Valid 2408.0; StDev 0.4685341785910808; Mean 0.3251661129568102

Variable Format: numeric

Notes: UNF:6:72408rupIjkZOrUxvl345Q==

ins_private

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1936

1.

True

472

Summary Statistics: Min. 0.0; StDev 0.3970611438593834; Mean 0.19601328903654486; Valid 2408.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:0f64PeEYUHvL4b5zZiLWvQ==

ins_tribal

f11845142 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

2405

Summary Statistics: Min. 0.0; Mean 0.001245847176079746; Valid 2408.0; Max. 1.0; StDev 0.035281893222929114

Variable Format: numeric

Notes: UNF:6:xfZ5K3iszgy3Ozny3zwCow==

ins_other

f11845142 Location:

Value

Label

Frequency

Text

1.

True

120

0.

False

2288

Summary Statistics: Mean 0.04983388704318931; StDev 0.21764683028140247; Valid 2408.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:jIJhTivgBiyyQzCCSZCbWA==

ins_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:zJ387guP6r+b3kUNQYTTlQ==

ins_none

f11845142 Location:

Value

Label

Frequency

Text

0.

False

2398

1.

True

10

Summary Statistics: StDev 0.06432181682743576; Min. 0.0; Mean 0.004152823920265777; Valid 2408.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:HDxSyUMjRRpqqDVJ2sTE4g==

ins_dk

f11845142 Location:

Value

Label

Frequency

Text

1.

True

10

0.

False

2398

Summary Statistics: Valid 2408.0; Mean 0.00415282392026581; Max. 1.0; Min. 0.0; StDev 0.06432181682743585

Variable Format: numeric

Notes: UNF:6:Swy/6DWhz/CoDxZt07G00g==

ins_pnta

f11845142 Location:

Value

Label

Frequency

Text

0.

False

0

1.

True

0

Summary Statistics: Min. NaN; Mean NaN; Max. NaN; StDev NaN; Valid 0.0;

Variable Format: numeric

Notes: UNF:6:XOsRL4JZo8EB1Xl/zRRrDg==

insmc_responder

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1063

1.

True

1353

Summary Statistics: Mean 0.5600165562913916; Valid 2416.0; StDev 0.49648770491689254; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:MFRUr3ZR5LLnnkXnqooIVg==

insmc_feeforservice

f11845142 Location:

Value

Label

Frequency

Text

0.

False

390

1.

True

963

Summary Statistics: Min. 0.0; Valid 1353.0; Max. 1.0; StDev 0.4531147533497649; Mean 0.7117516629711756

Variable Format: numeric

Notes: UNF:6:D3olmUzyfbbpSj6zZPWfxA==

insmc_partd

f11845142 Location:

Value

Label

Frequency

Text

0.

False

894

1.

True

460

Summary Statistics: Max. 1.0; Min. 0.0; Valid 1354.0; Mean 0.3397341211225995; StDev 0.4737938779580692

Variable Format: numeric

Notes: UNF:6:F/cDa7AZheXW4FgqX3/UVw==

insmc_supplement

f11845142 Location:

Value

Label

Frequency

Text

0.

False

949

1.

True

414

Summary Statistics: Min. 0.0; Valid 1363.0; Mean 0.30374174614820265; Max. 1.0; StDev 0.4600412714476048

Variable Format: numeric

Notes: UNF:6:m/65WqDde3OLPH0yr/+Hpg==

insmc_advantage

f11845142 Location:

Value

Label

Frequency

Text

1.

True

361

0.

False

1001

Summary Statistics: Max. 1.0; Mean 0.2650513950073422; Valid 1362.0; Min. 0.0; StDev 0.4415226862134169

Variable Format: numeric

Notes: UNF:6:BGNGUm9ef3I1yM25SlK2xg==

insmc_dk

f11845142 Location:

Value

Label

Frequency

Text

0.

False

1284

1.

True

69

Summary Statistics: Mean 0.05099778270509994; StDev 0.22007454525331557; Min. 0.0; Max. 1.0; Valid 1353.0;

Variable Format: numeric

Notes: UNF:6:q+AdQypgXh0hw3nM4dIQIQ==

insmc_pnta

f11845142 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

1350

Summary Statistics: StDev 0.04705331952349396; Max. 1.0; Mean 0.0022172949002217447; Min. 0.0; Valid 1353.0

Variable Format: numeric

Notes: UNF:6:RT8fz9+kJymHNcy6HQBwlA==

ccg_professional

f11845142 Location:

Value

Label

Frequency

Text

3.

Prefer not to answer

1

1.

Yes

100

2.

No

1372

Summary Statistics: StDev 0.2531677462285658; Mean 1.9327902240325865; Max. 3.0; Valid 1473.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:TqadBrqsa9SATjS9svp1og==

ccg_empcurrent

f11845142 Location:

Value

Label

Frequency

Text

12.

Unable to work

14

13.

Deceased

0

11.

Self-Employed

5

10.

Prefer not to answer

5

8.

Unable to work due to other reason, please specify

0

5.

Student

4

2.

Employed part time

54

3.

Unemployed

25

7.

Unable to work due to disability

1

1.

Employed full time

228

6.

Retired

223

4.

Homemaker

32

9.

Other, please specify

8

Summary Statistics: Valid 599.0; Min. 1.0; StDev 2.7983884740133167; Mean 3.754590984974958; Max. 12.0

Variable Format: numeric

Notes: UNF:6:eJi/QH4iR10IprkWB7QZHg==

ccg_empcurrent_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:w/wdsZCJ0hvGObMOHJRdvw==

ccg_empcurrent_unable_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:5vDL/tsvM4eiqf0UvabFmQ==

ccg_living

f11845142 Location:

Value

Label

Frequency

Text

5.

I share a home with the person I care for

273

2.

I live with the person I care for

244

1.

I do not live with the person I care for

102

3.

Other, please specify

38

4.

Prefer not to answer

4

Summary Statistics: Valid 661.0; Max. 5.0; StDev 1.6200730491388107; Mean 3.154311649016645; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:mkvERWGPKJm6CqrltYeiUQ==

ccg_living_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:0y0SF7TMI/v0rbwmxQh84Q==

ccg_inc_prediag

f11845142 Location:

Value

Label

Frequency

Text

4.

Between $50,000 and $74,999

14

8.

Prefer not to answer

14

6.

Between $100,000 and $150,000

14

7.

More than $150,000

13

1.

Less than $20,000

2

3.

Between $35,000 and $49,999

2

2.

Between $20,000 and $34,999

7

5.

Between $75,000 and $99,999

9

Summary Statistics: Mean 5.466666666666667; Valid 75.0; StDev 1.9887068549575007; Min. 1.0; Max. 8.0

Variable Format: numeric

Notes: UNF:6:K9mldDhUt7fd4ZJT4ylXww==

ccg_inc_current

f11845142 Location:

Value

Label

Frequency

Text

3.

Between $35,000 and $49,999

108

7.

More than $150,000

122

8.

Prefer not to answer

201

5.

Between $75,000 and $99,999

142

2.

Between $20,000 and $34,999

95

6.

Between $100,000 and $150,000

140

4.

Between $50,000 and $74,999

158

1.

Less than $20,000

60

Summary Statistics: Mean 5.0857699805068215; Min. 1.0; Valid 1026.0; StDev 2.171759372583727; Max. 8.0;

Variable Format: numeric

Notes: UNF:6:IYnNXtEK+NM78TPpTOcFLA==

pcg_lastcare

f11845142 Location:

Value

Label

Frequency

Text

7.

Other

0

6.

More than 20 years ago

49

2.

1 to 5 years ago

354

3.

6 to 10 years ago

131

8.

Prefer not to answer

1

5.

16 to 20 years ago

32

1.

Less than 1 year ago

118

4.

11 to 15 years ago

83

Summary Statistics: Min. 1.0; Valid 768.0; Max. 8.0; StDev 1.3475257548704267; Mean 2.62109375

Variable Format: numeric

Notes: UNF:6:YqdL0PpSF5BF0hJXSTiCEQ==

pcg_lastcare_dk

f11845142 Location:

Value

Label

Frequency

Text

1.

True

5

0.

False

0

Summary Statistics: Mean 1.0; Max. 1.0; Valid 5.0; StDev 0.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:UaoihOlnJBuDnXA0rtedtw==

pcg_lastcare_pnta

f11845142 Location:

Value

Label

Frequency

Text

0.

False

0

1.

True

0

Summary Statistics: Valid 0.0; StDev NaN; Min. NaN; Mean NaN; Max. NaN

Variable Format: numeric

Notes: UNF:6:XOsRL4JZo8EB1Xl/zRRrDg==

pcg_professional

f11845142 Location:

Value

Label

Frequency

Text

1.

Yes

19

2.

No

346

3.

Prefer not to answer

0

Summary Statistics: Valid 365.0; Max. 2.0; Mean 1.9479452054794522; Min. 1.0; StDev 0.22244247869948638

Variable Format: numeric

Notes: UNF:6:eP/bzxZ9OePLmSGHGnmo9A==

pcg_empcurrent

f11845142 Location:

Value

Label

Frequency

Text

6.

Retired

142

7.

Unable to work due to disability

0

12.

Unable to work

4

13.

Deceased

0

11.

Self-Employed

4

8.

Unable to work due to other reason, please specify

0

5.

Student

8

10.

Prefer not to answer

3

4.

Homemaker

13

2.

Employed part time

37

3.

Unemployed

10

9.

Other, please specify

1

1.

Employed full time

143

Summary Statistics: Valid 365.0; Min. 1.0; StDev 2.6487736419733476; Mean 3.6219178082191776; Max. 12.0;

Variable Format: numeric

Notes: UNF:6:+lw053g3v18VC5p68eWjOg==

pcg_empcurrent_oe

f11845142 Location:

Variable Format: character

Notes: UNF:6:/W21m9EnG8PyAjercrgUNQ==

randomid

f11845135 Location:

Variable Format: character

Notes: UNF:6:jUF7Duyla8eaEleoCBHVcQ==

neurostamp

f11845135 Location:

Variable Format: character

Notes: UNF:6:enKYG7ZqMP6lzolrn3Ob/g==

group

f11845135 Location:

Variable Format: character

Notes: UNF:6:U5wJ8h+h1H6xsnbsQ6goDQ==

dyad_id

f11845135 Location:

Variable Format: character

Notes: UNF:6:E7gUZHXpzKDoReyFEoortg==

pt_ins_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

0

1.

True

194

Summary Statistics: Valid 194.0; StDev 0.0; Max. 1.0; Mean 1.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:Jglz4Rgwp8pfaktQQoOEeA==

pt_ins_medicare

f11845135 Location:

Value

Label

Frequency

Text

1.

True

153

0.

False

41

Summary Statistics: Min. 0.0; Valid 194.0; Mean 0.7886597938144331; StDev 0.4093154372649251; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:/WkC9KHUMun1X//ue3AGDw==

pt_ins_va

f11845135 Location:

Value

Label

Frequency

Text

1.

True

21

0.

False

173

Summary Statistics: Mean 0.10824742268041235; Max. 1.0; Min. 0.0; StDev 0.3114965058870668; Valid 194.0

Variable Format: numeric

Notes: UNF:6:80PvuA9Aq5JXHHTIjFIx7g==

pt_ins_tricare

f11845135 Location:

Value

Label

Frequency

Text

0.

False

183

1.

True

11

Summary Statistics: Mean 0.05670103092783506; Valid 194.0; StDev 0.23186882860291533; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:qxzW46bYH4lBeaVqhtxAXw==

pt_ins_gov

f11845135 Location:

Value

Label

Frequency

Text

0.

False

179

1.

True

15

Summary Statistics: Valid 194.0; Mean 0.07731958762886601; StDev 0.2677889334505543; Min. 0.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:ucV6o8ZP5xYldPurHBE8hg==

pt_ins_employer

f11845135 Location:

Value

Label

Frequency

Text

0.

False

140

1.

True

54

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.4493465155201446; Mean 0.2783505154639176; Valid 194.0;

Variable Format: numeric

Notes: UNF:6:6/yakbvQMkj1CYFZTNhAvw==

pt_ins_private

f11845135 Location:

Value

Label

Frequency

Text

0.

False

165

1.

True

29

Summary Statistics: Mean 0.14948453608247425; Valid 194.0; StDev 0.3574879863455405; Min. 0.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:+VBlZrxrzntI5xcjUHjPzg==

pt_ins_tribal

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

194

Summary Statistics: Min. 0.0; StDev 0.0; Valid 194.0; Mean 0.0; Max. 0.0;

Variable Format: numeric

Notes: UNF:6:JALO9RPuonYtzmoBLqwJmg==

pt_ins_none

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

193

Summary Statistics: Max. 1.0; Mean 0.005154639175257742; Valid 194.0; Min. 0.0; StDev 0.07179581586177358;

Variable Format: numeric

Notes: UNF:6:Wi4Yqk+J5cC4dStaJ/xH0A==

pt_ins_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

186

1.

True

8

Summary Statistics: Mean 0.04123711340206186; Max. 1.0; Valid 194.0; Min. 0.0; StDev 0.19935261925038053;

Variable Format: numeric

Notes: UNF:6:kBlBCntSryxDkAwSwNvt8w==

pt_ins_dk

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

192

Summary Statistics: Max. 1.0; StDev 0.10127123185047568; Mean 0.010309278350515464; Valid 194.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:3xzjMYnn61Od2A+tJ5ZMMQ==

pt_ins_pnta

f11845135 Location:

Value

Label

Frequency

Text

0.

False

194

1.

True

0

Summary Statistics: Max. 0.0; Mean 0.0; StDev 0.0; Min. 0.0; Valid 194.0

Variable Format: numeric

Notes: UNF:6:JALO9RPuonYtzmoBLqwJmg==

pt_ins_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:QChAbyNh7EnEYIwJUeaX8A==

pt_medicare_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

42

1.

True

152

Summary Statistics: Mean 0.7835051546391754; Min. 0.0; Max. 1.0; Valid 194.0; StDev 0.41292095176743576;

Variable Format: numeric

Notes: UNF:6:BZHD3y335Ripn9jVOd3IBw==

pt_medicare_fee

f11845135 Location:

Value

Label

Frequency

Text

1.

True

107

0.

False

45

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.7039473684210525; StDev 0.45802362340350705; Valid 152.0;

Variable Format: numeric

Notes: UNF:6:qFAJkVRQYX8B8v2eRrRvRQ==

pt_medicare_partd

f11845135 Location:

Value

Label

Frequency

Text

0.

False

91

1.

True

61

Summary Statistics: StDev 0.49178507690682; Valid 152.0; Mean 0.4013157894736842; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:LrZOlZWrUex2HUl9cFDXUw==

pt_medicare_supp

f11845135 Location:

Value

Label

Frequency

Text

1.

True

39

0.

False

113

Summary Statistics: StDev 0.4381887845946999; Mean 0.25657894736842096; Valid 152.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:i13nfzg1zjNwUu1M7Sehnw==

pt_medicare_advantage

f11845135 Location:

Value

Label

Frequency

Text

1.

True

43

0.

False

109

Summary Statistics: Valid 152.0; Min. 0.0; Max. 1.0; Mean 0.28289473684210525; StDev 0.45189465979172033

Variable Format: numeric

Notes: UNF:6:SB7cDFP8d3sFyYpejZJQ3g==

pt_medicare_dk

f11845135 Location:

Value

Label

Frequency

Text

0.

False

144

1.

True

8

Summary Statistics: Mean 0.05263157894736844; StDev 0.22403505178125466; Valid 152.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:dU4ihdj43uE9dd+DmecSVQ==

pt_medicare_pnta

f11845135 Location:

Value

Label

Frequency

Text

0.

False

151

1.

True

1

Summary Statistics: Valid 152.0; Mean 0.006578947368421064; Min. 0.0; StDev 0.08111071056538126; Max. 1.0

Variable Format: numeric

Notes: UNF:6:TYXEXE1HQbtX49rq/0PvIA==

pt_priorauth

f11845135 Location:

Value

Label

Frequency

Text

2.

No

66

1.

Yes

80

3.

Do not know

18

Summary Statistics: Valid 164.0; StDev 0.6763351966439144; Mean 1.6219512195121952; Max. 3.0; Min. 1.0;

Variable Format: numeric

Notes: UNF:6:wIC2yZ+3ufOaqvIcevxwnw==

pt_priorauth_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

No

6

3.

Do not know

2

1.

Yes

19

Summary Statistics: Max. 3.0; Mean 1.3703703703703705; Min. 1.0; StDev 0.6292943635623919; Valid 27.0;

Variable Format: numeric

Notes: UNF:6:TRa7neNPEFCEvcClsh9jJg==

pt_authhelp_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

75

0.

False

119

Summary Statistics: Mean 0.38659793814432986; Min. 0.0; Max. 1.0; StDev 0.48823014745805876; Valid 194.0

Variable Format: numeric

Notes: UNF:6:IIFsVFeiPL3niKLTN/QOfg==

pt_authhelp_none

f11845135 Location:

Value

Label

Frequency

Text

0.

False

66

1.

True

9

Summary Statistics: Mean 0.11999999999999995; Valid 75.0; StDev 0.3271498540837626; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:ihFX2O1/djJE/Qqpcic2Ow==

pt_authhelp_caregiver

f11845135 Location:

Value

Label

Frequency

Text

0.

False

67

1.

True

8

Summary Statistics: Max. 1.0; Mean 0.10666666666666672; Min. 0.0; StDev 0.3107677212591046; Valid 75.0

Variable Format: numeric

Notes: UNF:6:jqtaejRqko8EmP/MksWb3A==

pt_authhelp_family

f11845135 Location:

Value

Label

Frequency

Text

1.

True

9

0.

False

66

Summary Statistics: Min. 0.0; StDev 0.32714985408376257; Max. 1.0; Mean 0.11999999999999997; Valid 75.0;

Variable Format: numeric

Notes: UNF:6:jSoJ8PqekdivfEHYUarixQ==

pt_authhelp_friend

f11845135 Location:

Value

Label

Frequency

Text

0.

False

74

1.

True

1

Summary Statistics: Valid 75.0; Min. 0.0; StDev 0.11547005383792533; Max. 1.0; Mean 0.013333333333333346

Variable Format: numeric

Notes: UNF:6:XemWMiODI0JCjh7XgyYM2A==

pt_authhelp_med

f11845135 Location:

Value

Label

Frequency

Text

0.

False

17

1.

True

58

Summary Statistics: Valid 75.0; Max. 1.0; Min. 0.0; Mean 0.7733333333333333; StDev 0.4214945523463593;

Variable Format: numeric

Notes: UNF:6:MKlKnNUPJ+byin7gEyAImg==

pt_authhelp_socwrk

f11845135 Location:

Value

Label

Frequency

Text

0.

False

71

1.

True

4

Summary Statistics: Max. 1.0; Mean 0.05333333333333333; StDev 0.22621045769630357; Valid 75.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:DgEy6MSU0tsL7DBvxW0ptA==

pt_authhelp_insrep

f11845135 Location:

Value

Label

Frequency

Text

0.

False

69

1.

True

6

Summary Statistics: StDev 0.2731201101980494; Min. 0.0; Mean 0.07999999999999999; Valid 75.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:yTuULWDUCI64UZV6pRKqlQ==

pt_authhelp_dmerep

f11845135 Location:

Value

Label

Frequency

Text

0.

False

59

1.

True

16

Summary Statistics: Min. 0.0; Mean 0.21333333333333332; Valid 75.0; StDev 0.4124197983730775; Max. 1.0

Variable Format: numeric

Notes: UNF:6:5tVTgw9S05yTuCUcQOyA0g==

pt_authhelp_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

72

1.

True

3

Summary Statistics: Mean 0.03999999999999999; StDev 0.19727878476642866; Min. 0.0; Valid 75.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:mSamodu8jj5DKtmq62zqzg==

pt_authhelp_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:Qzv/ia0O6NWdPQ/vbaUOkQ==

pt_authhelp_cg_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

176

1.

True

18

Summary Statistics: Valid 194.0; Min. 0.0; Max. 1.0; StDev 0.2908794678285673; Mean 0.09278350515463916;

Variable Format: numeric

Notes: UNF:6:yF+Dnu5SD0oilaElhEhi1g==

pt_authhelp_none_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

18

Summary Statistics: Min. 0.0; Mean 0.0; Valid 18.0; Max. 0.0; StDev 0.0

Variable Format: numeric

Notes: UNF:6:YqGv/2dKrJyEdNzCyYSorQ==

pt_authhelp_caregiver_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

16

Summary Statistics: Min. 0.0; Valid 18.0; Mean 0.11111111111111108; Max. 1.0; StDev 0.3233808333817773;

Variable Format: numeric

Notes: UNF:6:8PAailDfA08AaXkTjIta5Q==

pt_authhelp_family_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

18

1.

True

0

Summary Statistics: Valid 18.0; Min. 0.0; Mean 0.0; StDev 0.0; Max. 0.0;

Variable Format: numeric

Notes: UNF:6:YqGv/2dKrJyEdNzCyYSorQ==

pt_authhelp_friend_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

18

1.

True

0

Summary Statistics: Min. 0.0; Max. 0.0; Valid 18.0; Mean 0.0; StDev 0.0

Variable Format: numeric

Notes: UNF:6:YqGv/2dKrJyEdNzCyYSorQ==

pt_authhelp_med_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

4

1.

True

14

Summary Statistics: Max. 1.0; StDev 0.4277926319464987; Min. 0.0; Mean 0.7777777777777778; Valid 18.0;

Variable Format: numeric

Notes: UNF:6:lCefyodwrvtGR1Jva5CKYQ==

pt_authhelp_socwrk_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

15

1.

True

3

Summary Statistics: Valid 18.0; Min. 0.0; StDev 0.3834824944236851; Mean 0.16666666666666669; Max. 1.0

Variable Format: numeric

Notes: UNF:6:yy3iQDQkCwvBnFNT7wlAtw==

pt_authhelp_insrep_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

16

1.

True

2

Summary Statistics: StDev 0.32338083338177737; Min. 0.0; Max. 1.0; Mean 0.11111111111111108; Valid 18.0;

Variable Format: numeric

Notes: UNF:6:iruHPt/AF5Zkcm+EG1e0jw==

pt_authhelp_dmerep_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

8

0.

False

10

Summary Statistics: Max. 1.0; Mean 0.4444444444444444; Valid 18.0; StDev 0.5113099925649136; Min. 0.0

Variable Format: numeric

Notes: UNF:6:aRYFklwsfLjfnLguw/RMPQ==

pt_authhelp_other_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

17

Summary Statistics: Min. 0.0; StDev 0.23570226039551584; Mean 0.05555555555555554; Max. 1.0; Valid 18.0

Variable Format: numeric

Notes: UNF:6:m3J3grfuawSuXrMmIZnvcQ==

pt_authhelp_other_oe_cg

f11845135 Location:

Variable Format: character

Notes: UNF:6:wRPS+P5T4nRGs9tCBoHkcQ==

pt_authdifficulty

f11845135 Location:

Value

Label

Frequency

Text

6.

Do not know/Not applicable

7

3.

Neither difficult nor easy

26

1.

Very difficult

2

4.

Somewhat easy

18

5.

Very easy

11

2.

Somewhat difficult

15

Summary Statistics: StDev 1.2693168265259522; Min. 1.0; Max. 6.0; Mean 3.5316455696202533; Valid 79.0;

Variable Format: numeric

Notes: UNF:6:+3/VMa8nGcfLyGu1FFOA7w==

pt_authdifficulty_cg

f11845135 Location:

Value

Label

Frequency

Text

5.

Very easy

4

2.

Somewhat difficult

4

4.

Somewhat easy

2

3.

Neither difficult nor easy

7

6.

Do not know/Not applicable

1

1.

Very difficult

1

Summary Statistics: Max. 6.0; Min. 1.0; Mean 3.3684210526315788; Valid 19.0; StDev 1.3420765964144055

Variable Format: numeric

Notes: UNF:6:v/1Gfft07YCVdmtolSDvRA==

pt_claim

f11845135 Location:

Value

Label

Frequency

Text

1.

Yes

121

3.

Do not know

12

2.

No

30

Summary Statistics: Mean 1.3312883435582823; Min. 1.0; StDev 0.6091404055131467; Valid 163.0; Max. 3.0;

Variable Format: numeric

Notes: UNF:6:FQXURmpHT0OU62S6rKteww==

pt_claim_cg

f11845135 Location:

Value

Label

Frequency

Text

3.

Do not know

4

1.

Yes

17

2.

No

6

Summary Statistics: Valid 27.0; StDev 0.7529618628798984; Min. 1.0; Max. 3.0; Mean 1.5185185185185186

Variable Format: numeric

Notes: UNF:6:iugD/KY223pkH5Z0sgY4kA==

pt_claimhelp_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

116

0.

False

78

Summary Statistics: Min. 0.0; Mean 0.597938144329897; Max. 1.0; Valid 194.0; StDev 0.49158291041500113;

Variable Format: numeric

Notes: UNF:6:0yp0uU8NCJ2fJy0tIvYKwQ==

pt_claimhelp_none

f11845135 Location:

Value

Label

Frequency

Text

0.

False

96

1.

True

20

Summary Statistics: Max. 1.0; Valid 116.0; Mean 0.1724137931034482; StDev 0.37937848645120764; Min. 0.0

Variable Format: numeric

Notes: UNF:6:IL3l+baeq5o9wq7bh2xuWQ==

pt_claimhelp_caregiver

f11845135 Location:

Value

Label

Frequency

Text

0.

False

104

1.

True

12

Summary Statistics: Max. 1.0; StDev 0.30586471419290234; Min. 0.0; Mean 0.10344827586206898; Valid 116.0

Variable Format: numeric

Notes: UNF:6:eWxeq7pXkCF5bYeSvAAkSw==

pt_claimhelp_family

f11845135 Location:

Value

Label

Frequency

Text

0.

False

98

1.

True

18

Summary Statistics: StDev 0.36363977100761546; Mean 0.15517241379310348; Max. 1.0; Valid 116.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:T1xuVIYjKl+5cgOSHof49w==

pt_claimhelp_friend

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

115

Summary Statistics: Mean 0.00862068965517242; Valid 116.0; Min. 0.0; Max. 1.0; StDev 0.09284766908852583;

Variable Format: numeric

Notes: UNF:6:wduW0ppXIjayY3nh+MWzwA==

pt_claimhelp_med

f11845135 Location:

Value

Label

Frequency

Text

0.

False

39

1.

True

77

Summary Statistics: Min. 0.0; StDev 0.47446016036977295; Mean 0.6637931034482759; Max. 1.0; Valid 116.0;

Variable Format: numeric

Notes: UNF:6:8cES5pNSa03BkfsyWTd3yQ==

pt_claimhelp_socwrk

f11845135 Location:

Value

Label

Frequency

Text

1.

True

5

0.

False

111

Summary Statistics: StDev 0.20397107123572583; Valid 116.0; Max. 1.0; Min. 0.0; Mean 0.04310344827586205;

Variable Format: numeric

Notes: UNF:6:QCzAaDoFIxxFS+EuOLAnuA==

pt_claimhelp_insrep

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

114

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.13073428881844096; Mean 0.01724137931034482; Valid 116.0

Variable Format: numeric

Notes: UNF:6:E3XQFj0ntmnOMK2RFj6HTw==

pt_claimhelp_dmerep

f11845135 Location:

Value

Label

Frequency

Text

1.

True

16

0.

False

100

Summary Statistics: Valid 116.0; Mean 0.1379310344827586; Min. 0.0; StDev 0.34632359143582453; Max. 1.0

Variable Format: numeric

Notes: UNF:6:FmgNuqI0L6aAqG7n9Lt/yQ==

pt_claimhelp_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

110

1.

True

6

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.2224303539735879; Mean 0.05172413793103444; Valid 116.0

Variable Format: numeric

Notes: UNF:6:bGpEJwbO+iPZbF1Fhd4U4g==

pt_claimhelp_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:FfxZrTF7yWRaA73Ahsyr6g==

pt_claimhelp_cg_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

17

0.

False

177

Summary Statistics: StDev 0.2834859728082116; Valid 194.0; Mean 0.08762886597938145; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:bKKuMYVFjr252onaGwarDw==

pt_claimhelp_none_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

14

1.

True

3

Summary Statistics: Mean 0.1764705882352941; Valid 17.0; Max. 1.0; Min. 0.0; StDev 0.3929526239966879

Variable Format: numeric

Notes: UNF:6:9CA4t+Mt8k2WEpcGmEUiDg==

pt_claimhelp_caregiver_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

14

1.

True

3

Summary Statistics: Valid 17.0; StDev 0.3929526239966879; Max. 1.0; Min. 0.0; Mean 0.1764705882352941

Variable Format: numeric

Notes: UNF:6:shw4SJGVwV/rzyesQGg9Qg==

pt_claimhelp_family_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

17

Summary Statistics: StDev 0.0; Mean 0.0; Valid 17.0; Max. 0.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:SrbmmRerGVweFClHL695Fg==

pt_claimhelp_friend_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

17

1.

True

0

Summary Statistics: Mean 0.0; Valid 17.0; Min. 0.0; StDev 0.0; Max. 0.0

Variable Format: numeric

Notes: UNF:6:SrbmmRerGVweFClHL695Fg==

pt_claimhelp_med_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

11

0.

False

6

Summary Statistics: Min. 0.0; StDev 0.492592183071889; Valid 17.0; Mean 0.6470588235294118; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:UeYYRSXyCR2GpnjZoRkd+g==

pt_claimhelp_socwrk_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

15

Summary Statistics: Max. 1.0; StDev 0.3321055820775357; Min. 0.0; Mean 0.1176470588235294; Valid 17.0

Variable Format: numeric

Notes: UNF:6:wv3uvqkMMMCUam/Jps1fmw==

pt_claimhelp_insrep_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

17

Summary Statistics: Max. 0.0; Min. 0.0; Mean 0.0; Valid 17.0; StDev 0.0

Variable Format: numeric

Notes: UNF:6:SrbmmRerGVweFClHL695Fg==

pt_claimhelp_dmerep_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

4

0.

False

13

Summary Statistics: Mean 0.2352941176470588; Min. 0.0; Valid 17.0; Max. 1.0; StDev 0.4372373160976031

Variable Format: numeric

Notes: UNF:6:8WcxA/AFMEFBTa83WESEiA==

pt_claimhelp_other_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

16

Summary Statistics: StDev 0.242535625036333; Mean 0.0588235294117647; Valid 17.0; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:7xGicfxH5YTQet9tS2jRQg==

pt_claimhelp_other_oe_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

0

Summary Statistics: Valid 0.0; Min. NaN; Max. NaN; StDev NaN; Mean NaN

Variable Format: numeric

Notes: UNF:6:SIkoH1evt/HZV6jd9VjVRw==

pt_claimdifficulty

f11845135 Location:

Value

Label

Frequency

Text

3.

Neither difficult nor easy

27

2.

Somewhat difficult

16

6.

Do not know/Not applicable

22

1.

Very difficult

4

5.

Very easy

34

4.

Somewhat easy

16

Summary Statistics: Valid 119.0; Max. 6.0; Min. 1.0; Mean 4.0588235294117645; StDev 1.4514406498784729

Variable Format: numeric

Notes: UNF:6:FcBTUIFkxyvhdUxi9fMQvw==

pt_claimdifficulty_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

Somewhat difficult

4

5.

Very easy

4

6.

Do not know/Not applicable

1

3.

Neither difficult nor easy

5

4.

Somewhat easy

2

1.

Very difficult

1

Summary Statistics: Max. 6.0; Mean 3.411764705882353; Valid 17.0; StDev 1.4168108346481794; Min. 1.0

Variable Format: numeric

Notes: UNF:6:GGw+uRPJl+n6DlPHWxQI5w==

pt_denial

f11845135 Location:

Value

Label

Frequency

Text

2.

No

82

3.

Do not know

13

1.

Yes

50

Summary Statistics: Max. 3.0; Min. 1.0; Valid 145.0; StDev 0.6098646291599333; Mean 1.7448275862068965

Variable Format: numeric

Notes: UNF:6:bMf6kU0hb9cPyJ+wrmE4qg==

pt_denial_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

No

8

1.

Yes

12

3.

Do not know

5

Summary Statistics: Valid 25.0; Mean 1.72; Min. 1.0; Max. 3.0; StDev 0.7916228058025278

Variable Format: numeric

Notes: UNF:6:hkqe5Fs+QzVJismAkhLJww==

pt_dcare_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

167

1.

True

27

Summary Statistics: Max. 1.0; Valid 194.0; Mean 0.13917525773195882; StDev 0.3470248683898908; Min. 0.0

Variable Format: numeric

Notes: UNF:6:fLvHINq85yZK9HoJCgCaKg==

pt_dcare_nurse

f11845135 Location:

Value

Label

Frequency

Text

0.

False

22

1.

True

5

Summary Statistics: Valid 27.0; Min. 0.0; Max. 1.0; Mean 0.1851851851851852; StDev 0.3958473906635696;

Variable Format: numeric

Notes: UNF:6:V4SiemHoPQF3YlWfAi9bFQ==

pt_dcare_pt

f11845135 Location:

Value

Label

Frequency

Text

0.

False

16

1.

True

11

Summary Statistics: StDev 0.5007117441325404; Mean 0.4074074074074074; Max. 1.0; Min. 0.0; Valid 27.0;

Variable Format: numeric

Notes: UNF:6:R/Y7+cUcv45p4Qn9rckJNQ==

pt_dcare_cna

f11845135 Location:

Value

Label

Frequency

Text

0.

False

17

1.

True

10

Summary Statistics: StDev 0.49210287762341126; Max. 1.0; Valid 27.0; Mean 0.3703703703703704; Min. 0.0

Variable Format: numeric

Notes: UNF:6:yXCgRj5hc6j3HW5BQ02dMA==

pt_dcare_assistant

f11845135 Location:

Value

Label

Frequency

Text

1.

True

8

0.

False

19

Summary Statistics: Mean 0.2962962962962963; StDev 0.4653216269680751; Min. 0.0; Valid 27.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:N8RUNXdtSrGYXgWL0oXoQA==

pt_dcare_oohpt

f11845135 Location:

Value

Label

Frequency

Text

1.

True

9

0.

False

18

Summary Statistics: StDev 0.48038446141526137; Mean 0.33333333333333337; Max. 1.0; Min. 0.0; Valid 27.0

Variable Format: numeric

Notes: UNF:6:dKlDC9noF/NSzQhD5qSBhQ==

pt_dcare_oohmentalhealth

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

25

Summary Statistics: StDev 0.26688025634181195; Max. 1.0; Valid 27.0; Min. 0.0; Mean 0.07407407407407407

Variable Format: numeric

Notes: UNF:6:uLnv1L9wnqka53Bk6IeaqA==

pt_dsupp_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

23

0.

False

171

Summary Statistics: Max. 1.0; StDev 0.3241025542636957; Min. 0.0; Mean 0.11855670103092783; Valid 194.0;

Variable Format: numeric

Notes: UNF:6:eYM4l2S2ee55I7XJjE2HGw==

pt_dsupp_nutritioneqp

f11845135 Location:

Value

Label

Frequency

Text

1.

True

5

0.

False

18

Summary Statistics: Min. 0.0; StDev 0.42174116783664983; Mean 0.2173913043478261; Valid 23.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:4j6t0Lc3UmKqXvh1sbYVTA==

pt_dsupp_formula

f11845135 Location:

Value

Label

Frequency

Text

1.

True

5

0.

False

18

Summary Statistics: Valid 23.0; Min. 0.0; Max. 1.0; Mean 0.21739130434782608; StDev 0.42174116783664994

Variable Format: numeric

Notes: UNF:6:LcRzXHLRsXx6tvYzPYcIuQ==

pt_dsupp_coughassist

f11845135 Location:

Value

Label

Frequency

Text

0.

False

17

1.

True

6

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.4489777585448797; Valid 23.0; Mean 0.2608695652173913;

Variable Format: numeric

Notes: UNF:6:Kk9E4WwjA81KU548gBcfiw==

pt_dsupp_suction

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

20

Summary Statistics: Valid 23.0; Min. 0.0; Mean 0.13043478260869565; StDev 0.3443502215750909; Max. 1.0

Variable Format: numeric

Notes: UNF:6:3SEchE45wlcDWgHHPJSlRQ==

pt_dsupp_vest

f11845135 Location:

Value

Label

Frequency

Text

0.

False

20

1.

True

3

Summary Statistics: Valid 23.0; Mean 0.13043478260869565; Min. 0.0; Max. 1.0; StDev 0.34435022157509093

Variable Format: numeric

Notes: UNF:6:0cJn0ZC9rQ+la6cDIVD+fw==

pt_dsupp_noninvvent

f11845135 Location:

Value

Label

Frequency

Text

0.

False

14

1.

True

9

Summary Statistics: Max. 1.0; Valid 23.0; StDev 0.4990108793478453; Min. 0.0; Mean 0.39130434782608703

Variable Format: numeric

Notes: UNF:6:G4/g0L4uzfZHOLeQwxT6+Q==

pt_dsupp_invvent

f11845135 Location:

Value

Label

Frequency

Text

0.

False

21

1.

True

2

Summary Statistics: Max. 1.0; Min. 0.0; Mean 0.08695652173913043; StDev 0.2881040655200304; Valid 23.0;

Variable Format: numeric

Notes: UNF:6:5yP9+LXkxsQEFUTIU9Ro1w==

pt_dsupp_resptraining

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

20

Summary Statistics: StDev 0.34435022157509093; Min. 0.0; Valid 23.0; Mean 0.13043478260869568; Max. 1.0

Variable Format: numeric

Notes: UNF:6:ef9pzL0lFowu0IAlBCunVw==

pt_dsupplies_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

168

1.

True

26

Summary Statistics: Max. 1.0; Min. 0.0; Valid 194.0; StDev 0.34155590289999793; Mean 0.13402061855670105;

Variable Format: numeric

Notes: UNF:6:7RoWT1CdxWT0ru+jw4yGtQ==

pt_dsupplies_toilet

f11845135 Location:

Value

Label

Frequency

Text

0.

False

18

1.

True

8

Summary Statistics: Max. 1.0; StDev 0.47067872433164165; Mean 0.3076923076923077; Min. 0.0; Valid 26.0

Variable Format: numeric

Notes: UNF:6:GQPbo7iLa79MrjG+QptWOQ==

pt_dsupplies_splints

f11845135 Location:

Value

Label

Frequency

Text

1.

True

6

0.

False

20

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.4296689244236597; Valid 26.0; Mean 0.23076923076923075

Variable Format: numeric

Notes: UNF:6:h5vzkPgKcyuyS62W8Gb23g==

pt_dsupplies_clothing

f11845135 Location:

Value

Label

Frequency

Text

0.

False

21

1.

True

5

Summary Statistics: Mean 0.19230769230769232; StDev 0.4019184762342501; Min. 0.0; Max. 1.0; Valid 26.0

Variable Format: numeric

Notes: UNF:6:1dTt7k8QZvFEaIQ2R2HcXw==

pt_dsupplies_aids

f11845135 Location:

Value

Label

Frequency

Text

0.

False

21

1.

True

5

Summary Statistics: Min. 0.0; Mean 0.19230769230769232; Valid 26.0; StDev 0.40191847623425014; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:Zk0yHVFB3YcxcqjFR+NrQw==

pt_dsupplies_speech

f11845135 Location:

Value

Label

Frequency

Text

0.

False

17

1.

True

9

Summary Statistics: Min. 0.0; StDev 0.4851645240375839; Valid 26.0; Mean 0.34615384615384615; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:O1PoVfHjoMNqEJJh4nCTmQ==

pt_dsupplies_commeval

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

24

Summary Statistics: Valid 26.0; StDev 0.271746488194703; Mean 0.07692307692307694; Max. 1.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:Ae4v/Jw5KZxiQxIy3nZMgg==

pt_dsupplies_commdevice

f11845135 Location:

Value

Label

Frequency

Text

0.

False

23

1.

True

3

Summary Statistics: Valid 26.0; Max. 1.0; StDev 0.325812593608421; Mean 0.11538461538461536; Min. 0.0

Variable Format: numeric

Notes: UNF:6:Fvcrr5iahNmiWpeK0IS4pw==

pt_dsupplies_accessories

f11845135 Location:

Value

Label

Frequency

Text

1.

True

9

0.

False

17

Summary Statistics: StDev 0.4851645240375839; Max. 1.0; Min. 0.0; Valid 26.0; Mean 0.34615384615384615;

Variable Format: numeric

Notes: UNF:6:iHe1ONGpStlr9JTBWNzTlw==

pt_dsupplies_alerts

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

23

Summary Statistics: Mean 0.11538461538461536; StDev 0.325812593608421; Max. 1.0; Min. 0.0; Valid 26.0

Variable Format: numeric

Notes: UNF:6:/ampWP4jgVtLAsxjXrMrrw==

pt_dsupplies_smarthome

f11845135 Location:

Value

Label

Frequency

Text

1.

True

4

0.

False

22

Summary Statistics: Max. 1.0; StDev 0.3679464844031199; Valid 26.0; Min. 0.0; Mean 0.15384615384615385;

Variable Format: numeric

Notes: UNF:6:vG6HVkHVp2vOnMA6OVfuXQ==

pt_dmob_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

163

1.

True

31

Summary Statistics: StDev 0.36736276033608434; Valid 194.0; Min. 0.0; Max. 1.0; Mean 0.15979381443298976;

Variable Format: numeric

Notes: UNF:6:azPFemwUiQuV+QaZu0H5wQ==

pt_dmob_pwc

f11845135 Location:

Value

Label

Frequency

Text

0.

False

18

1.

True

13

Summary Statistics: Max. 1.0; Mean 0.4193548387096774; Valid 31.0; Min. 0.0; StDev 0.5016103101271011

Variable Format: numeric

Notes: UNF:6:FiQtBEskn2lVyu+0Zvoyhg==

pt_dmob_mwc

f11845135 Location:

Value

Label

Frequency

Text

1.

True

4

0.

False

27

Summary Statistics: Max. 1.0; StDev 0.34077710054823895; Valid 31.0; Mean 0.12903225806451615; Min. 0.0

Variable Format: numeric

Notes: UNF:6:rK5mRdsSxbgXIXOk13nM4Q==

pt_dmob_wcaccessories

f11845135 Location:

Value

Label

Frequency

Text

1.

True

15

0.

False

16

Summary Statistics: Min. 0.0; Valid 31.0; Mean 0.4838709677419355; Max. 1.0; StDev 0.5080005080007621;

Variable Format: numeric

Notes: UNF:6:OeIP41kcSVhKdNWwcFDZuA==

pt_dmob_ramp

f11845135 Location:

Value

Label

Frequency

Text

0.

False

24

1.

True

7

Summary Statistics: StDev 0.4250237185032414; Valid 31.0; Max. 1.0; Min. 0.0; Mean 0.22580645161290322;

Variable Format: numeric

Notes: UNF:6:EIivVC3aSoDbY0Z42fZEiQ==

pt_dmob_rollator

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

30

Summary Statistics: StDev 0.1796053020267749; Mean 0.03225806451612905; Valid 31.0; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:4t/ubJfBKMhrMwd6WEf7AA==

pt_dmob_vehiclemods

f11845135 Location:

Value

Label

Frequency

Text

0.

False

20

1.

True

11

Summary Statistics: Max. 1.0; Mean 0.3548387096774193; StDev 0.4863734571139201; Min. 0.0; Valid 31.0;

Variable Format: numeric

Notes: UNF:6:42uE1q8/gVKXNdWNj+gJHA==

pt_dmob_taxi

f11845135 Location:

Value

Label

Frequency

Text

0.

False

30

1.

True

1

Summary Statistics: Min. 0.0; Mean 0.032258064516129045; Max. 1.0; Valid 31.0; StDev 0.17960530202677497

Variable Format: numeric

Notes: UNF:6:03Ya8GFe3DqNa7b4C4Ke6g==

pt_deqp_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

173

1.

True

21

Summary Statistics: StDev 0.31149650588706684; Min. 0.0; Mean 0.10824742268041243; Max. 1.0; Valid 194.0

Variable Format: numeric

Notes: UNF:6:7OhGXWu8BqynhIGA/vhlZw==

pt_deqp_lift

f11845135 Location:

Value

Label

Frequency

Text

1.

True

9

0.

False

12

Summary Statistics: Mean 0.42857142857142855; StDev 0.50709255283711; Min. 0.0; Valid 21.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:odYo3KNe6LuA81ibTDD6vA==

pt_deqp_bed

f11845135 Location:

Value

Label

Frequency

Text

0.

False

14

1.

True

7

Summary Statistics: Max. 1.0; StDev 0.483045891539648; Min. 0.0; Mean 0.33333333333333337; Valid 21.0

Variable Format: numeric

Notes: UNF:6:tPWJkdEcrap3Lx1GEeoBlQ==

pt_deqp_mattress

f11845135 Location:

Value

Label

Frequency

Text

0.

False

16

1.

True

5

Summary Statistics: StDev 0.43643578047198484; Max. 1.0; Min. 0.0; Mean 0.23809523809523805; Valid 21.0

Variable Format: numeric

Notes: UNF:6:4tj5S8xrHg+CpfZrZXJ57w==

pt_deqp_shower

f11845135 Location:

Value

Label

Frequency

Text

1.

True

9

0.

False

12

Summary Statistics: Max. 1.0; StDev 0.50709255283711; Min. 0.0; Valid 21.0; Mean 0.42857142857142855

Variable Format: numeric

Notes: UNF:6:PCxNvn1PzNYmxcU2MXB8Dw==

pt_deqp_ramp

f11845135 Location:

Value

Label

Frequency

Text

1.

True

10

0.

False

11

Summary Statistics: Max. 1.0; Min. 0.0; Valid 21.0; Mean 0.47619047619047616; StDev 0.5117663157191589

Variable Format: numeric

Notes: UNF:6:rZ4Q7hmCrG42OUOnBpSMlw==

pt_deqp_bathroommods

f11845135 Location:

Value

Label

Frequency

Text

0.

False

11

1.

True

10

Summary Statistics: StDev 0.5117663157191589; Mean 0.47619047619047616; Valid 21.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:jiSROwvcQPfk8ZkMz6YsrQ==

pt_deqp_generator

f11845135 Location:

Value

Label

Frequency

Text

1.

True

8

0.

False

13

Summary Statistics: StDev 0.4976133515281192; Max. 1.0; Min. 0.0; Valid 21.0; Mean 0.38095238095238093;

Variable Format: numeric

Notes: UNF:6:CaS+Lw7SEky+LreCWzNu3w==

pt_dmed_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

39

0.

False

155

Summary Statistics: Mean 0.20103092783505153; Max. 1.0; Min. 0.0; StDev 0.4018080497987467; Valid 194.0

Variable Format: numeric

Notes: UNF:6:rZVPwCC5ooJRO34e2M3Y8A==

pt_dmed_prescriptions

f11845135 Location:

Value

Label

Frequency

Text

0.

False

12

1.

True

27

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.4675719001195178; Mean 0.6923076923076923; Valid 39.0

Variable Format: numeric

Notes: UNF:6:jFttF04K8uF0ZEyEaQ4/Xg==

pt_dmed_hospital

f11845135 Location:

Value

Label

Frequency

Text

0.

False

35

1.

True

4

Summary Statistics: StDev 0.3073547406047281; Mean 0.10256410256410253; Valid 39.0; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:PV8ald+UBNs2LBVCvmbVgQ==

pt_dmed_er

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

36

Summary Statistics: Min. 0.0; Valid 39.0; Max. 1.0; Mean 0.07692307692307694; StDev 0.2699527623995085;

Variable Format: numeric

Notes: UNF:6:aMXq2w9TW2bRbNSBQ0EWIA==

pt_dmed_mdtclinic

f11845135 Location:

Value

Label

Frequency

Text

0.

False

35

1.

True

4

Summary Statistics: Max. 1.0; Mean 0.10256410256410256; Valid 39.0; Min. 0.0; StDev 0.3073547406047283;

Variable Format: numeric

Notes: UNF:6:MV1y8EzKIBxxVa4SUjj+Vw==

pt_dmed_genetest

f11845135 Location:

Value

Label

Frequency

Text

0.

False

33

1.

True

6

Summary Statistics: Min. 0.0; Mean 0.15384615384615388; Max. 1.0; Valid 39.0; StDev 0.36551776819519577

Variable Format: numeric

Notes: UNF:6:LjjBaXazMa7kMFkg6T41Jg==

pt_dmed_genecounseling

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

38

Summary Statistics: Max. 1.0; Valid 39.0; Mean 0.025641025641025633; StDev 0.1601281538050872; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:tXYNxEGyax+HdYq9FmBgFw==

pt_dmed_nursefacility

f11845135 Location:

Value

Label

Frequency

Text

1.

True

4

0.

False

35

Summary Statistics: StDev 0.3073547406047282; Mean 0.10256410256410257; Valid 39.0; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:4Vtbtd1R5sD8OkH4JZYMXQ==

pt_dmed_hospice

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

38

Summary Statistics: Max. 1.0; Min. 0.0; Valid 39.0; Mean 0.025641025641025633; StDev 0.16012815380508716

Variable Format: numeric

Notes: UNF:6:lTrwYOjeoqQ7NrkjmI2mhQ==

pt_dmed_palliative

f11845135 Location:

Value

Label

Frequency

Text

1.

True

5

0.

False

34

Summary Statistics: Valid 39.0; Min. 0.0; Max. 1.0; StDev 0.3386884284293705; Mean 0.1282051282051282;

Variable Format: numeric

Notes: UNF:6:ZHUz+F/RoSRqR1/0cF3irA==

pt_dmed_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

37

1.

True

2

Summary Statistics: Max. 1.0; Min. 0.0; Mean 0.051282051282051266; StDev 0.22345586503095888; Valid 39.0

Variable Format: numeric

Notes: UNF:6:1tnsmfYvmyzN0LE/RWYtKw==

pt_dmed_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:14vPoGkZNmo4komqg2FrFg==

pt_dresult_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

147

1.

True

47

Summary Statistics: Mean 0.24226804123711337; Valid 194.0; Max. 1.0; Min. 0.0; StDev 0.4295641969301282

Variable Format: numeric

Notes: UNF:6:GT7nH2mi2ujpCABAhI4HOg==

pt_dresult_er

f11845135 Location:

Value

Label

Frequency

Text

0.

False

43

1.

True

4

Summary Statistics: StDev 0.2820566728469694; Valid 47.0; Mean 0.08510638297872344; Min. 0.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:I4HwTjAWuOeyw1aOkF75SQ==

pt_dresult_hospital

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

44

Summary Statistics: Valid 47.0; Mean 0.06382978723404256; Max. 1.0; StDev 0.2470922481451655; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:+3h0FXzuDUpR6TyE1ve0Cw==

pt_dresult_provider

f11845135 Location:

Value

Label

Frequency

Text

0.

False

45

1.

True

2

Summary Statistics: StDev 0.20402970888857885; Min. 0.0; Mean 0.04255319148936171; Valid 47.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:2B5uncH7Yk+zyoTCpv96eg==

pt_dresult_injury

f11845135 Location:

Value

Label

Frequency

Text

0.

False

44

1.

True

3

Summary Statistics: StDev 0.2470922481451655; Min. 0.0; Mean 0.06382978723404256; Max. 1.0; Valid 47.0

Variable Format: numeric

Notes: UNF:6:I2AMFAhqUGR4OG0hifyPJQ==

pt_dresult_infection

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

46

Summary Statistics: StDev 0.14586499149789456; Mean 0.021276595744680844; Max. 1.0; Min. 0.0; Valid 47.0

Variable Format: numeric

Notes: UNF:6:X8XyFH7Zfcuc+4IKgHWdEg==

pt_dresult_delay

f11845135 Location:

Value

Label

Frequency

Text

0.

False

37

1.

True

10

Summary Statistics: Min. 0.0; Mean 0.2127659574468085; Max. 1.0; StDev 0.41368808943170027; Valid 47.0;

Variable Format: numeric

Notes: UNF:6:Pj/1BM9aIdYiwMHDAGeCnA==

pt_dresult_finances

f11845135 Location:

Value

Label

Frequency

Text

0.

False

31

1.

True

16

Summary Statistics: Max. 1.0; Mean 0.3404255319148936; Valid 47.0; Min. 0.0; StDev 0.4789751624985074

Variable Format: numeric

Notes: UNF:6:K5+8oh6O5qjqoSQoHRU9vg==

pt_dresult_stress

f11845135 Location:

Value

Label

Frequency

Text

1.

True

24

0.

False

23

Summary Statistics: StDev 0.5052911526399115; Min. 0.0; Mean 0.5106382978723405; Valid 47.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:9NU37gQ6tWZ9x0tiEEyi9A==

pt_dresult_timeloss

f11845135 Location:

Value

Label

Frequency

Text

1.

True

12

0.

False

35

Summary Statistics: Valid 47.0; Max. 1.0; Min. 0.0; StDev 0.4407545460261734; Mean 0.25531914893617025;

Variable Format: numeric

Notes: UNF:6:I+lMSf01Gu+OEdBA18lAJg==

pt_dresult_cgchallenges

f11845135 Location:

Value

Label

Frequency

Text

1.

True

13

0.

False

34

Summary Statistics: Max. 1.0; Valid 47.0; StDev 0.45215078571752687; Min. 0.0; Mean 0.276595744680851

Variable Format: numeric

Notes: UNF:6:LnlXXAR35v2+6DrgCFbmkg==

pt_dresult_care

f11845135 Location:

Value

Label

Frequency

Text

1.

True

6

0.

False

41

Summary Statistics: Valid 47.0; Min. 0.0; Mean 0.12765957446808512; Max. 1.0; StDev 0.33731814917823866

Variable Format: numeric

Notes: UNF:6:5/AtxwAafNu3ihejYFDoag==

pt_dresult_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

43

1.

True

4

Summary Statistics: Mean 0.0851063829787234; Max. 1.0; StDev 0.28205667284696945; Valid 47.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:63Z/TYVl7oP4lrvwSAlwmw==

pt_dresult_none

f11845135 Location:

Value

Label

Frequency

Text

0.

False

35

1.

True

12

Summary Statistics: Valid 47.0; StDev 0.4407545460261734; Min. 0.0; Mean 0.25531914893617025; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:e9Md3n9UUafO/T6Iavz0Zw==

pt_dresult_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:cWxfHlNQa5XJ//JoYs+Uqg==

pt_dresult_cg_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

11

0.

False

183

Summary Statistics: Min. 0.0; Mean 0.0567010309278351; StDev 0.23186882860291533; Max. 1.0; Valid 194.0;

Variable Format: numeric

Notes: UNF:6:MzPTunfRy0qhcnTUDCEIbQ==

pt_dresult_er_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

9

Summary Statistics: Mean 0.1818181818181818; StDev 0.4045199174779453; Min. 0.0; Max. 1.0; Valid 11.0;

Variable Format: numeric

Notes: UNF:6:KfG4LWn9Obiq2t/dj+XePQ==

pt_dresult_hospital_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

10

Summary Statistics: StDev 0.30151134457776363; Min. 0.0; Mean 0.0909090909090909; Max. 1.0; Valid 11.0

Variable Format: numeric

Notes: UNF:6:lUtfcmWlBZlZnOnfoE/5qg==

pt_dresult_provider_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

11

1.

True

0

Summary Statistics: Max. 0.0; StDev 0.0; Min. 0.0; Mean 0.0; Valid 11.0

Variable Format: numeric

Notes: UNF:6:k5oVkO8kddHE9R+vqI/NFg==

pt_dresult_injury_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

10

1.

True

1

Summary Statistics: Min. 0.0; Mean 0.0909090909090909; StDev 0.30151134457776363; Max. 1.0; Valid 11.0

Variable Format: numeric

Notes: UNF:6:lUtfcmWlBZlZnOnfoE/5qg==

pt_dresult_infection_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

10

Summary Statistics: Mean 0.0909090909090909; Max. 1.0; Min. 0.0; StDev 0.30151134457776363; Valid 11.0

Variable Format: numeric

Notes: UNF:6:lUtfcmWlBZlZnOnfoE/5qg==

pt_dresult_delay_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

10

1.

True

1

Summary Statistics: StDev 0.30151134457776363; Mean 0.0909090909090909; Max. 1.0; Valid 11.0; Min. 0.0;

Variable Format: numeric

Notes: UNF:6:lUtfcmWlBZlZnOnfoE/5qg==

pt_dresult_finances_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

8

1.

True

3

Summary Statistics: Mean 0.2727272727272727; Min. 0.0; StDev 0.46709936649691375; Valid 11.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:cxWaJ+bNPEYeQanWi9lzsg==

pt_dresult_stress_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

6

0.

False

5

Summary Statistics: Max. 1.0; Min. 0.0; StDev 0.5222329678670935; Mean 0.5454545454545454; Valid 11.0

Variable Format: numeric

Notes: UNF:6:HPNSLiZY4CMkvATyY/ENyg==

pt_dresult_timeloss_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

9

1.

True

2

Summary Statistics: Min. 0.0; StDev 0.4045199174779453; Mean 0.1818181818181818; Max. 1.0; Valid 11.0;

Variable Format: numeric

Notes: UNF:6:KfG4LWn9Obiq2t/dj+XePQ==

pt_dresult_cgchallenges_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

4

1.

True

7

Summary Statistics: Min. 0.0; Max. 1.0; Mean 0.6363636363636364; Valid 11.0; StDev 0.504524979109513

Variable Format: numeric

Notes: UNF:6:g0NOibaHNENJjI+itx9t7Q==

pt_dresult_care_cg

f11845135 Location:

Value

Label

Frequency

Text

1.

True

1

0.

False

10

Summary Statistics: Min. 0.0; Max. 1.0; Valid 11.0; Mean 0.09090909090909088; StDev 0.30151134457776363

Variable Format: numeric

Notes: UNF:6:3M2s9rcu/KrGuyhqU/XzOQ==

pt_dresult_other_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

9

1.

True

2

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.40451991747794525; Valid 11.0; Mean 0.1818181818181818;

Variable Format: numeric

Notes: UNF:6:14G2T2IoQibZud93N7EFqQ==

pt_dresult_none_cg

f11845135 Location:

Value

Label

Frequency

Text

0.

False

9

1.

True

2

Summary Statistics: Max. 1.0; StDev 0.4045199174779452; Min. 0.0; Mean 0.18181818181818177; Valid 11.0

Variable Format: numeric

Notes: UNF:6:CPgHSXY70+TtENNl8VZUFA==

pt_dresult_other_oe_cg

f11845135 Location:

Variable Format: character

Notes: UNF:6:uLHX79B9co1ElvxEHNtu1w==

pt_authdenial_appeal

f11845135 Location:

Value

Label

Frequency

Text

1.

Yes, appealed

26

4.

Prefer not to answer

0

3.

Do not know

2

2.

No, never appealed

11

Summary Statistics: StDev 0.5900662146334272; Valid 39.0; Mean 1.3846153846153846; Min. 1.0; Max. 3.0;

Variable Format: numeric

Notes: UNF:6:l0XDJhIJ7rf10nSijEimdw==

pt_authdenial_appeal_cg

f11845135 Location:

Value

Label

Frequency

Text

3.

Do not know

3

2.

No, never appealed

1

1.

Yes, appealed

7

4.

Prefer not to answer

0

Summary Statistics: Valid 11.0; Min. 1.0; Max. 3.0; StDev 0.9244162777371754; Mean 1.6363636363636362

Variable Format: numeric

Notes: UNF:6:4bgZFiLn96rLO6TAMqbtlQ==

pt_authappeal_caretype_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:Z5LrIMZ6Lf+UFsyW6Hy7VA==

pt_authappeal_caretype_oe_cg

f11845135 Location:

Variable Format: character

Notes: UNF:6:6Kw6qMRb7brj/fDxVkA0fQ==

pt_authappeal_start

f11845135 Location:

Summary Statistics: Max. 2022.0; StDev 1.590293135891782; Valid 31.0; Mean 2020.9354838709678; Min. 2016.0

Variable Format: numeric

Notes: UNF:6:rUrJq1cynjQZxfrCKpPDjA==

pt_authappeal_length

f11845135 Location:

Value

Label

Frequency

Text

2.

1-3 months

9

4.

7-12 months

2

6.

This appeal process is still ongoing

6

5.

More than a year

1

3.

4-6 months

8

1.

Less than a month

4

Summary Statistics: Max. 6.0; Valid 30.0; Mean 3.1666666666666665; Min. 1.0; StDev 1.7036134686526496

Variable Format: numeric

Notes: UNF:6:Gv46GojRzIACPlb5ldob5Q==

pt_authappeal_numappeals

f11845135 Location:

Value

Label

Frequency

Text

3.

Appealed three times

2

4.

Appealed four times or more

2

1.

Appealed once

8

2.

Appealed twice

12

5.

Do not know or remember

2

Summary Statistics: Mean 2.1538461538461537; Min. 1.0; StDev 1.189699380257305; Max. 5.0; Valid 26.0;

Variable Format: numeric

Notes: UNF:6:zEGu3yKvM8pVYMiwXnZKfA==

pt_authappeal_authgranted

f11845135 Location:

Value

Label

Frequency

Text

1.

Yes, prior authorization fully granted

14

2.

Yes, prior authorization partially granted

5

3.

No, prior authorization not granted

5

4.

Do not know or remember

1

Summary Statistics: Valid 25.0; Max. 4.0; Min. 1.0; StDev 0.9363047936792093; Mean 1.72;

Variable Format: numeric

Notes: UNF:6:ePwj+rEloCN4vo64FlELCw==

pt_authappeal_carereceived

f11845135 Location:

Value

Label

Frequency

Text

1.

Yes

6

2.

No

5

3.

Do not know or remember

0

Summary Statistics: Mean 1.4545454545454546; Min. 1.0; Valid 11.0; Max. 2.0; StDev 0.5222329678670935;

Variable Format: numeric

Notes: UNF:6:EhNczw7XVfKm84hHJyh+wA==

pt_authappeal_authgranted_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

Yes, prior authorization partially granted

0

1.

Yes, prior authorization fully granted

0

4.

Do not know or remember

0

3.

No, prior authorization not granted

1

Summary Statistics: StDev 0.0; Mean 3.0; Min. 3.0; Valid 1.0; Max. 3.0;

Variable Format: numeric

Notes: UNF:6:7cu6QgdPfstT1rTpT0t7sA==

pt_authappeal_carereceived_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

No

1

3.

Do not know or remember

0

1.

Yes

0

Summary Statistics: Max. 2.0; Mean 2.0; StDev 0.0; Min. 2.0; Valid 1.0

Variable Format: numeric

Notes: UNF:6:NHzXtWX43fn+7rSF1WE7Lg==

pt_authappeal_oopcost

f11845135 Location:

Value

Label

Frequency

Text

2.

Yes, paid the full cost out of pocket

1

4.

Do not know or remember

0

3.

No, did not pay any of the cost out of pocket

1

1.

Yes, paid some of the cost out of pocket

4

Summary Statistics: Min. 1.0; Mean 1.5; Max. 3.0; StDev 0.8366600265340756; Valid 6.0

Variable Format: numeric

Notes: UNF:6:6v05JNowMS/SFnZv7eQjjg==

pt_claimdenial_appeal

f11845135 Location:

Value

Label

Frequency

Text

4.

Prefer not to answer

0

1.

Yes, appealed

21

3.

Do not know

9

2.

No, never appealed

16

Summary Statistics: StDev 0.7727233976497426; Mean 1.7391304347826086; Min. 1.0; Valid 46.0; Max. 3.0

Variable Format: numeric

Notes: UNF:6:Pq5hieBxrVa9x3Rf1GRYMQ==

pt_claimdenial_appeal_cg

f11845135 Location:

Value

Label

Frequency

Text

2.

No, never appealed

2

3.

Do not know

1

1.

Yes, appealed

6

4.

Prefer not to answer

0

Summary Statistics: Valid 9.0; Min. 1.0; Mean 1.4444444444444444; Max. 3.0; StDev 0.7264831572567789

Variable Format: numeric

Notes: UNF:6:jqDIeJhieeXeHa8C+YVavg==

pt_claimappeal_caretype_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:aYHvHVHEWex/lkpZM29sTg==

pt_claimappeal_caretype_oe_cg

f11845135 Location:

Variable Format: character

Notes: UNF:6:fM4Dit0eRsaef3fb1VzN3A==

pt_claimappeal_start

f11845135 Location:

Summary Statistics: StDev 1.9339079605813712; Min. 2016.0; Max. 2022.0; Valid 25.0; Mean 2020.64

Variable Format: numeric

Notes: UNF:6:4tDnHBlIkHuoT36kl3BeUA==

pt_claimappeal_length

f11845135 Location:

Value

Label

Frequency

Text

3.

4-6 months

5

4.

7-12 months

1

6.

This appeal process is still ongoing

5

5.

More than a year

2

1.

Less than a month

2

2.

1-3 months

9

Summary Statistics: StDev 1.7315277663950706; Mean 3.291666666666667; Max. 6.0; Min. 1.0; Valid 24.0;

Variable Format: numeric

Notes: UNF:6:IMnDbQ12HwVHq+ZHuLQAew==

pt_claimappeal_numappeals

f11845135 Location:

Value

Label

Frequency

Text

2.

Appealed twice

4

4.

Appealed four times or more

2

3.

Appealed three times

1

5.

Do not know or remember

3

1.

Appealed once

11

Summary Statistics: Valid 21.0; Min. 1.0; Max. 5.0; Mean 2.142857142857143; StDev 1.5259657363687524

Variable Format: numeric

Notes: UNF:6:rX4dfdFry3uVO6SIs2+kaQ==

pt_claimappeal_claimgranted

f11845135 Location:

Value

Label

Frequency

Text

3.

No, the claim was not paid

7

1.

Yes, the claim was fully paid by the health insurance plan

9

4.

Do not know or remember

2

2.

Yes, the claim was partially paid by the health insurance plan

3

Summary Statistics: StDev 1.091089451179962; Min. 1.0; Valid 21.0; Max. 4.0; Mean 2.0952380952380953;

Variable Format: numeric

Notes: UNF:6:uHUIOP5l1Lm+I5y0NbZ+rw==

pt_claimappeal_carereceived

f11845135 Location:

Value

Label

Frequency

Text

2.

No

6

1.

Yes

5

3.

Do not know or remember

1

Summary Statistics: Max. 3.0; Valid 12.0; Mean 1.6666666666666667; StDev 0.6513389472789297; Min. 1.0

Variable Format: numeric

Notes: UNF:6:aI5336bFV/lJy4qFtsa9sQ==

pt_claimappeal_oopcost

f11845135 Location:

Value

Label

Frequency

Text

2.

Yes, paid the full cost out of pocket

3

4.

Do not know or remember

1

1.

Yes, paid some of the cost out of pocket

1

3.

No, did not pay any of the cost out of pocket

1

Summary Statistics: Valid 6.0; StDev 1.0327955589886444; Min. 1.0; Mean 2.3333333333333335; Max. 4.0

Variable Format: numeric

Notes: UNF:6:lwBCIQ9KVqi8+ajKFheX3Q==

pt_otherexperiences_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:zcOdeBhUMtbbybmz2/HE5g==

hs_alsfrs_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

10

1.

True

184

Summary Statistics: StDev 0.22168146968670416; Min. 0.0; Valid 194.0; Mean 0.9484536082474225; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:WUxqfgoAB5X1pcbQ3RWkLQ==

hs_alsfrs_dk

f11845135 Location:

Value

Label

Frequency

Text

0.

False

102

1.

True

82

Summary Statistics: Min. 0.0; Valid 184.0; StDev 0.49839371350013084; Max. 1.0; Mean 0.44565217391304346

Variable Format: numeric

Notes: UNF:6:zaxV02ebNoHarmdQRa+k8w==

hs_alsfrs_unknown

f11845135 Location:

Value

Label

Frequency

Text

1.

True

33

0.

False

151

Summary Statistics: Valid 184.0; Mean 0.1793478260869565; Max. 1.0; StDev 0.38469007992262577; Min. 0.0

Variable Format: numeric

Notes: UNF:6:TJXO1Atw5t0eh5eFbBHm8Q==

hs_alsfrs_score_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:6Lcwf4Q6Dpu8ZHnCZrtM6A==

hs_alsfrs_score

f11845135 Location:

Summary Statistics: Max. 47.0; StDev 11.535463684704762; Mean 28.18840579710145; Valid 69.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:tiq7t2ZaQ8hHIzOCWplJvw==

hs_alsfrs_year_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:lE8RDeHv4jZxxPs+aXzy+g==

hs_alsfrs_year

f11845135 Location:

Summary Statistics: Min. 2020.0; Valid 69.0; StDev 0.26760278996477405; Max. 2022.0; Mean 2021.9565217391305;

Variable Format: numeric

Notes: UNF:6:nf3exGYRSWbz/0FR6GeQlQ==

hs_fvc_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

183

0.

False

11

Summary Statistics: Mean 0.9432989690721648; Min. 0.0; Max. 1.0; StDev 0.23186882860291538; Valid 194.0

Variable Format: numeric

Notes: UNF:6:cwjODgPUpUle6B7Gd3j8Xw==

hs_fvc_sitting

f11845135 Location:

Value

Label

Frequency

Text

0.

False

94

1.

True

89

Summary Statistics: Mean 0.48633879781420775; Valid 183.0; StDev 0.5011845692930378; Min. 0.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:CDvpIBo1zlbHzoKpxQoeNg==

hs_fvc_lyingfaceup

f11845135 Location:

Value

Label

Frequency

Text

1.

True

3

0.

False

180

Summary Statistics: StDev 0.127331437209432; Min. 0.0; Mean 0.016393442622950807; Max. 1.0; Valid 183.0

Variable Format: numeric

Notes: UNF:6:uOez5ipaKe9qMw87NHPUhw==

hs_fvc_dk

f11845135 Location:

Value

Label

Frequency

Text

0.

False

106

1.

True

77

Summary Statistics: Mean 0.4207650273224045; Max. 1.0; Valid 183.0; StDev 0.4950363117782196; Min. 0.0

Variable Format: numeric

Notes: UNF:6:chqLAPcj2Zb5YmqQHKtMBQ==

hs_fvc_unknown

f11845135 Location:

Value

Label

Frequency

Text

0.

False

173

1.

True

10

Summary Statistics: Max. 1.0; StDev 0.22790917692405344; Mean 0.05464480874316938; Valid 183.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:KxoTIZBLeQ7VwGDCSJQW6w==

hs_fvc_percent_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:i9ETLJmtw96CYsxaRG4E+w==

hs_fvc_percent

f11845135 Location:

Summary Statistics: Max. 122.0; Mean 66.6184705882353; Valid 85.0; StDev 28.464390849666476; Min. 0.0

Variable Format: numeric

Notes: UNF:6:kX4rPgbac8S+KkhwYFzfCA==

hs_fvc_year_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:p/F30ttQLDrwTj3cn2CP4A==

hs_fvc_year

f11845135 Location:

Summary Statistics: Mean 2021.516129032258; Valid 93.0; Min. 2010.0; Max. 2023.0; StDev 1.619265152883745

Variable Format: numeric

Notes: UNF:6:7P3Qr654fgyLSPoleqIyxg==

hs_svc_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

179

0.

False

15

Summary Statistics: Min. 0.0; StDev 0.2677889334505546; Max. 1.0; Valid 194.0; Mean 0.9226804123711339

Variable Format: numeric

Notes: UNF:6:WXVX1w9bfkFbo12Q//zbVg==

hs_svc_sitting

f11845135 Location:

Value

Label

Frequency

Text

0.

False

149

1.

True

30

Summary Statistics: Mean 0.16759776536312845; Min. 0.0; Valid 179.0; StDev 0.37455641958942937; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:aatN1K2KxWUqRybuuhnzAA==

hs_svc_lyingfaceup

f11845135 Location:

Value

Label

Frequency

Text

0.

False

176

1.

True

3

Summary Statistics: Valid 179.0; Min. 0.0; Mean 0.01675977653631288; StDev 0.12873020018783146; Max. 1.0

Variable Format: numeric

Notes: UNF:6:x8AmyRrgjxxLOBB8SrKXHw==

hs_svc_dk

f11845135 Location:

Value

Label

Frequency

Text

0.

False

73

1.

True

106

Summary Statistics: Mean 0.5921787709497207; Max. 1.0; Valid 179.0; Min. 0.0; StDev 0.4928081097444942

Variable Format: numeric

Notes: UNF:6:E+Z+bf/o8IbpUc1FhECn5w==

hs_svc_unknown

f11845135 Location:

Value

Label

Frequency

Text

1.

True

38

0.

False

141

Summary Statistics: Min. 0.0; Mean 0.21229050279329606; Max. 1.0; StDev 0.41007645829877853; Valid 179.0

Variable Format: numeric

Notes: UNF:6:mRKrg8rZsSF0uhADtq9fZw==

hs_svc_percent_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:36WOvW16HuJqtWtzSzBfeQ==

hs_svc_percent

f11845135 Location:

Summary Statistics: Valid 28.0; Max. 104.0; StDev 22.098523820075744; Mean 75.10071428571429; Min. 30.0

Variable Format: numeric

Notes: UNF:6:22u5r92xw2PvRPyfmzv3cg==

hs_svc_year_orig

f11845135 Location:

Variable Format: character

Notes: UNF:6:HQpFGygMruTtc+4icMtdYA==

hs_svc_year

f11845135 Location:

Summary Statistics: Valid 33.0; Min. 2020.0; Max. 2023.0; Mean 2021.878787878788; StDev 0.4846116845975598

Variable Format: numeric

Notes: UNF:6:2m/+4JNzEYuEfdT+0BbkfA==

hs_speaking

f11845135 Location:

Value

Label

Frequency

Text

7.

Prefer not to answer

1

4.

Can speak without a speech assisting device, but often needs to repeat what is said

31

6.

Has lost the ability to speak completely and require a speech assisting device or other non-verbal ways to communicate

26

3.

Can speak without a speech assisting device, but with difficulty and slurring

11

1.

Can speak normally without a speech assisting device

57

2.

Can speak without difficulty, but with a noticeable change in voice

33

5.

Can speak with difficulty, but prefer to use a speech assisting device, hand gestures, or other non-verbal ways to communicate

17

Summary Statistics: Min. 1.0; Max. 7.0; Mean 3.0; StDev 1.867006771737662; Valid 176.0

Variable Format: numeric

Notes: UNF:6:C1p9xrLqHFn6UcuayOH+YA==

hs_resp_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

0

1.

True

194

Summary Statistics: Max. 1.0; Min. 1.0; Valid 194.0; Mean 1.0; StDev 0.0;

Variable Format: numeric

Notes: UNF:6:Jglz4Rgwp8pfaktQQoOEeA==

hs_resp_none

f11845135 Location:

Value

Label

Frequency

Text

1.

True

86

0.

False

108

Summary Statistics: StDev 0.49805990785487203; Mean 0.44329896907216476; Valid 194.0; Max. 1.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:GecuMPVUp9K1rracr2NBlg==

hs_resp_sleeping

f11845135 Location:

Value

Label

Frequency

Text

1.

True

83

0.

False

111

Summary Statistics: Min. 0.0; Mean 0.4278350515463917; Max. 1.0; StDev 0.4960449311174375; Valid 194.0;

Variable Format: numeric

Notes: UNF:6:/bJwWPGQHD8sV5ITvYZBdg==

hs_resp_awake

f11845135 Location:

Value

Label

Frequency

Text

1.

True

34

0.

False

160

Summary Statistics: Valid 194.0; Max. 1.0; StDev 0.3811710692159937; Mean 0.17525773195876276; Min. 0.0

Variable Format: numeric

Notes: UNF:6:5jN4JSlsg5n49EjOpOVf1w==

hs_resp_dk

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

194

Summary Statistics: StDev 0.0; Mean 0.0; Valid 194.0; Max. 0.0; Min. 0.0

Variable Format: numeric

Notes: UNF:6:JALO9RPuonYtzmoBLqwJmg==

hs_resp_pnta

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

194

Summary Statistics: Max. 0.0; Valid 194.0; StDev 0.0; Min. 0.0; Mean 0.0

Variable Format: numeric

Notes: UNF:6:JALO9RPuonYtzmoBLqwJmg==

hs_resp_numhours

f11845135 Location:

Value

Label

Frequency

Text

3.

12 to 23 hours

8

6.

Prefer not to answer

0

5.

Do not know

2

2.

6 to 11 hours

47

4.

24 hours

19

1.

Less than 6 hours

12

Summary Statistics: Min. 1.0; Max. 5.0; Mean 2.454545454545454; StDev 1.04945624573073; Valid 88.0;

Variable Format: numeric

Notes: UNF:6:v9AxjcnSOiUNbrA1dDbc0Q==

hs_resp_invasive

f11845135 Location:

Value

Label

Frequency

Text

2.

Invasive (ventilation requires a tracheostomy)

14

1.

Non-invasive (ventilation does not require a tracheostomy)

72

4.

Prefer not to answer

0

3.

Do not know

0

Summary Statistics: Mean 1.1627906976744184; Max. 2.0; Valid 86.0; Min. 1.0; StDev 0.3713398670404584

Variable Format: numeric

Notes: UNF:6:udFCVL6izqnqv6fbLmwdSw==

hs_resp_device

f11845135 Location:

Value

Label

Frequency

Text

5.

Philips Respironics Trilogy

0

1.

Philips Respironics BiPAP� device

0

8.

Do not know

0

3.

Ventec life VOCSN

0

2.

ResMed Bi-level device

0

7.

Other, please specify

194

4.

ResMed Astral

0

6.

LTV Ventilator

0

9.

Prefer not to answer

0

Summary Statistics: Min. 7.0; Mean 7.0; Valid 194.0; Max. 7.0; StDev 0.0

Variable Format: numeric

Notes: UNF:6:YVCaR/+T3JPg84R9JLvNjw==

hs_resp_device_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:n8t/nz0Ih359RorvMhtlDw==

hs_mob_responder

f11845135 Location:

Value

Label

Frequency

Text

1.

True

175

0.

False

19

Summary Statistics: Max. 1.0; Mean 0.9020618556701029; Valid 194.0; StDev 0.29800002832120703; Min. 0.0

Variable Format: numeric

Notes: UNF:6:c7gVlq5sX4g6vqMU3gJYaw==

hs_mob_none

f11845135 Location:

Value

Label

Frequency

Text

1.

True

28

0.

False

147

Summary Statistics: StDev 0.3676580120072237; Max. 1.0; Min. 0.0; Mean 0.15999999999999998; Valid 175.0

Variable Format: numeric

Notes: UNF:6:kzXqTFwJxhMX7dAn4o2WgQ==

hs_mob_cane

f11845135 Location:

Value

Label

Frequency

Text

1.

True

28

0.

False

147

Summary Statistics: Min. 0.0; StDev 0.3676580120072237; Max. 1.0; Mean 0.16; Valid 175.0;

Variable Format: numeric

Notes: UNF:6:Q1bEWUiF3BY0nTIw+NhIaw==

hs_mob_walker

f11845135 Location:

Value

Label

Frequency

Text

1.

True

48

0.

False

127

Summary Statistics: StDev 0.4474338435288232; Max. 1.0; Valid 175.0; Min. 0.0; Mean 0.2742857142857143

Variable Format: numeric

Notes: UNF:6:fSqi3xkzq1gm1llJbG4PhQ==

hs_mob_manualwc

f11845135 Location:

Value

Label

Frequency

Text

1.

True

28

0.

False

147

Summary Statistics: Mean 0.15999999999999998; Valid 175.0; Min. 0.0; Max. 1.0; StDev 0.36765801200722387

Variable Format: numeric

Notes: UNF:6:jVWppI6dNjsh6184zSTubQ==

hs_mob_motorizedwc

f11845135 Location:

Value

Label

Frequency

Text

1.

True

97

0.

False

78

Summary Statistics: Mean 0.5542857142857143; Max. 1.0; Min. 0.0; Valid 175.0; StDev 0.498470567239372

Variable Format: numeric

Notes: UNF:6:/l2X6wnWM/Rm6H5Ce356QQ==

hs_mob_other

f11845135 Location:

Value

Label

Frequency

Text

0.

False

166

1.

True

9

Summary Statistics: Min. 0.0; Max. 1.0; StDev 0.22150403926083836; Mean 0.051428571428571455; Valid 175.0

Variable Format: numeric

Notes: UNF:6:FFVzU0FfEx1vrw45DU5eQw==

hs_mob_pnta

f11845135 Location:

Value

Label

Frequency

Text

0.

False

175

1.

True

0

Summary Statistics: Valid 175.0; StDev 0.0; Mean 0.0; Min. 0.0; Max. 0.0

Variable Format: numeric

Notes: UNF:6:yKaaWwv0c6F5x+BWlxU5Tw==

hs_mob_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:uvnXOr5sfJ/Imgp3joEt3A==

hs_wheelchair_responder

f11845135 Location:

Value

Label

Frequency

Text

0.

False

101

1.

True

93

Summary Statistics: Min. 0.0; Mean 0.47938144329896903; Valid 194.0; StDev 0.5008672570527486; Max. 1.0

Variable Format: numeric

Notes: UNF:6:Fwp0UalYIvNCCyUHNTjABg==

hs_wheelchair_joystick

f11845135 Location:

Value

Label

Frequency

Text

1.

True

75

0.

False

18

Summary Statistics: StDev 0.39722035599928224; Mean 0.8064516129032258; Min. 0.0; Max. 1.0; Valid 93.0

Variable Format: numeric

Notes: UNF:6:V6CGPVru0YlC/qWUZrX0Vg==

hs_wheelchair_headcontrols

f11845135 Location:

Value

Label

Frequency

Text

0.

False

90

1.

True

3

Summary Statistics: Valid 93.0; Max. 1.0; StDev 0.17764234361221218; Min. 0.0; Mean 0.03225806451612905;

Variable Format: numeric

Notes: UNF:6:VN1HGpW5ouv649SMi11Y7w==

hs_wheelchair_sipnpuff

f11845135 Location:

Value

Label

Frequency

Text

0.

False

93

1.

True

0

Summary Statistics: Min. 0.0; Max. 0.0; StDev 0.0; Mean 0.0; Valid 93.0

Variable Format: numeric

Notes: UNF:6:TPbE/eqr8YwF8Cg2wPvYfQ==

hs_wheelchair_eye

f11845135 Location:

Value

Label

Frequency

Text

0.

False

85

1.

True

8

Summary Statistics: Max. 1.0; Valid 93.0; StDev 0.2819155739522734; Min. 0.0; Mean 0.08602150537634408;

Variable Format: numeric

Notes: UNF:6:bGEl2BU3fUM2X1PQQRus0w==

hs_wheelchair_caregiver

f11845135 Location:

Value

Label

Frequency

Text

1.

True

20

0.

False

73

Summary Statistics: StDev 0.4130865359806689; Min. 0.0; Valid 93.0; Max. 1.0; Mean 0.21505376344086022;

Variable Format: numeric

Notes: UNF:6:oGwJ2Kaqk7lcvkhhMk+vOQ==

hs_wheelchair_other

f11845135 Location:

Value

Label

Frequency

Text

1.

True

2

0.

False

91

Summary Statistics: Valid 93.0; Min. 0.0; StDev 0.14584794223227635; Max. 1.0; Mean 0.021505376344086027;

Variable Format: numeric

Notes: UNF:6:S1/KngY/XBEUEZ68ghnywg==

hs_wheelchair_pnta

f11845135 Location:

Value

Label

Frequency

Text

1.

True

0

0.

False

93

Summary Statistics: StDev 0.0; Max. 0.0; Mean 0.0; Min. 0.0; Valid 93.0

Variable Format: numeric

Notes: UNF:6:TPbE/eqr8YwF8Cg2wPvYfQ==

hs_wheelchair_other_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:sa8g2u+34uDyK6ZQ1TxemA==

hs_feedingtube

f11845135 Location:

Value

Label

Frequency

Text

7.

Other, please specify

1

8.

Do not know

3

2.

Percutaneous Endoscopic Gastrostomy (PEG)

29

3.

Radioscopically Inserted Percutaneous Gastrostomy (RIG)

2

6.

Nasogastric (NG)

0

1.

Does not currently have a feeding tube

116

4.

Mic-Key

19

9.

Prefer not to answer

0

5.

Gastrojejunal (GJ)

1

Summary Statistics: Valid 171.0; Max. 8.0; Mean 1.7076023391812867; Min. 1.0; StDev 1.3749440993108748

Variable Format: numeric

Notes: UNF:6:83FrLchcojI1CzPzsKsmSg==

hs_feedingtube_oe

f11845135 Location:

Variable Format: character

Notes: UNF:6:pIK8pCjL7QQZyd1rVuA+BQ==

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