The Monica Study, 1953-1995https://doi.org/10.7910/DVN/CFCKDBEngel Archive Committee of the University of RochesterHarvard Dataverse2007-11-282018-03-09T17:03:38ZThe Monica Study is perhaps the single largest prospective case study ever conducted, including 42 years of film, video, interview, and psychological testing data of an individual and 15 of her family members. It documents the life of Monica, an American woman born with congenital atrasia of the esophagus who was fed by a gastric fistula until 2 years of age when corrective surgery was performed.<br /><br /> The project began in October of 1953 when Drs. Franz Reichsman and George Engel met Monica, age 15 months, while she was hospitalized for retarded growth and development, depression and malnutrition. What began then as a limited case study of depression in an infant with a gastric fistula expanded into an intensive, multimethod, multimedia, longitudinal exploration of her life. After filming and testing Monica during this nine month hospital stay, the research team continued to follow her development after reconstructive surgery of the esophagus at age two, into childhood, adolescence, and adulthood. Monica married at age 19 and bore four daughters over the next seven years. Data collection of Monica, her mother, siblings, husband and four children, continued until Murray Center acquisition of the data in 1995. Investigators anticipate continued contact with Monica and her family in the future. <br /><br /> The Murray Archive holds additional analogue materials for this study (11 hours of silent film (transferred to video) dating from 1953 to 1976; 40 hours of video, dating from 1972 to 1994; 232 interviews (with Monica and family members); 252 psychological tests (including projective, personality, and intelligence tests of Monica and family); 464 notes from observation of laboratory testing sessions, 39 notes from phone conversations; 148 transcripts of laboratory sessions; 57 pieces of artwork (by Monica, her siblings, and her children); 36 items of correspondence; 30 experiments; 56 medical notes; 6 newspaper articles; 145 other notes and items; 1586 photographs; and 248 audiotapes of laboratory sessions). <b>The paper data for this study have been digitized</b>. This material can be accessed with an approved application form. <br/><br /><b>Audio Data Availability Note:</b> This study contains audio data that have been digitized. There are 130 audio files available.Social Sciences2007-11-281950200019531995case study/oral history, longitudinalUnited States<div style="padding-left: 30px;"> <ul style="list-style-type: decimal;" ><li> The Murray Archive (the Distributor) has granted me a revocable license to use this dataset solely for the purposes of conducting research, and the Distributor may terminate this license at any time and for any reason. </li> <li> I will use the dataset solely for statistical analysis and reporting of aggregated information, and not for investigation of specific individuals or organizations, except when identification is authorized in writing by the Distributor. </li> <li>I will produce no links among the Distributor’s datasets or among the Distributor’s data and other datasets that could identify individuals or organizations. </li> <li>I represent that neither I, nor anyone I know, has any prior knowledge of the possible identities of any study participants in any dataset that I am being licensed to use. </li> <li> I will not knowingly divulge any information that could be used to identify individual participants in the study, nor will I attempt to identify or contact any study participant, and I agree to use any precautions necessary to prevent such identification. </li> <li> I will make no use of the identity of any person or establishment discovered inadvertently. If I suspect that I might recognize or know a study participant, I will immediately inform the Distributor, and I will not use or retain a copy of data regarding that study participant. If these measures to resolve an identity disclosure are not sufficient, the Distributor may terminate my use of the dataset. </li> <li> I will not reproduce the dataset except as is necessary for my scholarly purposes. I will destroy the dataset upon the completion of my scholarly work with it. </li> <li> I will not share data from the dataset (in any form or by any means) with any third party, including other members of my research team, as I understand that all users of data must obtain the data directly from the Distributor. </li> <li> I will make appropriate acknowledgement of the contributor of the dataset as well as the Distributor in any manuscript or presentation (published or unpublished) using the citation standard documented here: <a href="http://thedata.org/citation"> http://thedata.org/citation</a> </li> <li> THE DISTRIBUTOR MAKES NO WARRANTIES, EXPRESS OR IMPLIED, BY OPERATION OF LAW OR OTHERWISE, REGARDING OR RELATING TO THE DATASET. </li> </ul> </div>I will use these data solely for the purposes stated in my application to use data, detailed in a written research proposal. I will honor all agreements and conditions made between the Contributor of the Data and the study participants, and between the Contributor of the Data and the Henry A. Murray Research Archive, Harvard University, as specified in the Memorandum of Agreement.