10.7910/DVN/XE1SKQ The ALS Association Harvard Dataverse 2025 Medicine, Health and Life Sciences ALS Survey ALS Focus Clinical trial Participation Treatment Need Preference Symptoms Drug Benefit Risk Demographics Disease history Health status Sherman, Alexander Alexander Sherman Harvard University 2025-03-24 2025-05-23 29073 1250980 778310 366599 722703 28354 1054555 324341 499910 application/vnd.openxmlformats-officedocument.spreadsheetml.sheet text/tab-separated-values application/pdf application/pdf application/pdf application/vnd.openxmlformats-officedocument.spreadsheetml.sheet application/pdf application/pdf text/tab-separated-values 1.0 Custom terms specific to this dataset The NeuroVERSE record contains the following files: <OL> <LI>ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions.</LI> <LI>ALSFocus_CTTN_Survey_Public – ALS Focus Clinical Trials and Treatment Needs Survey written questions.</LI> <LI>ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions.</LI> <LI>ALSFocus_Demographics_Methodologies_Public – ALS Focus Demographics Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_CTTN_Methodologies_Public – ALS Focus Clinical Trials and Treatment Needs Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_Demograhics_Dictionary – ALS Focus Demographics Survey data dictionary. <LI>ALSFocus_CTTN_Dictionary – ALS Focus Clinical Trials and Treatment Needs (and Health Status Survey) data dictionary.</LI> <LI>ALSFocus_Demographics_Public_Stata – ALS Focus Demographics Survey data file in Stata (.dta) format.</LI> <LI>ALSFocus_CTTN_Public_Stata – ALS Focus Clinical Trials and Treatment Needs Survey data in Stata (.dta) format.</LI> </OL>