10.7910/DVN/ERQEZK The ALS Association Harvard Dataverse 2025 Medicine, Health and Life Sciences ALS Survey ALS Focus Insurance Access Claim Denial Prior Authorization Appeal Cost Care Treatment Demographics Disease history Health status Sherman, Alexander Alexander Sherman Harvard University 2025-08-01 2025-08-01 860180 134594 319079 28354 778310 722797 35177 366599 1250980 application/pdf text/tab-separated-values application/pdf application/vnd.openxmlformats-officedocument.spreadsheetml.sheet application/pdf application/pdf application/vnd.openxmlformats-officedocument.spreadsheetml.sheet application/pdf text/tab-separated-values 1.0 Custom terms specific to this dataset The NeuroVERSE record contains the following files: <OL> <LI>ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions.</LI> <LI>ALSFocus_InsuranceAndPayment_Survey_Public – ALS Focus Insurance and Payment for ALS Care Survey written questions.</LI> <LI>ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions.</LI> <LI>ALSFocus_Demographics_Methodologies_Public – ALS Focus Demographics Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_InsuranceAndPayments_Methodologies_Public – ALS Focus Insurance and Payment for ALS Care Survey data cleaning approaches and guidance for data analysts.</LI> <LI>ALSFocus_Demograhics_Dictionary – ALS Focus Demographics Survey data dictionary.</LI> <LI>ALSFocus_InsuranceAndPayments_Dictionary – ALS Focus Insurance and Payment for ALS Care (and Health Status Survey) data dictionary.</LI> <LI>ALSFocus_Demographics_Public_Stata – ALS Focus Demographics Survey data in Stata (.dta) format. </LI> <LI>ALSFocus_InsuranceAndPayments_Public_Stata – ALS Focus Insurance and Payment for ALS Care Survey data in Stata (.dta) format.</LI> </OL>